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BODIES OF
EVIDENCE
AIDS AND
RELIGION CONFERENCE
ATLANTA, GEORGIA 1998
PROF.DR.ELIAS
FARAJAJE'-JONES
I greet
the Four Directions of the universe and ask permission of our First
Nations sisters and brothers, the FIRST PEOPLE, to gather on their soil,
near their waters. I also call upon all of those who have gone before
us, all of those whom we have lost to HIV and ask them to be present
here with us today, to bring us the strength and resilience of their
spirits and to ask them to remind us today and every day of our lives
the crucial importance of the work in which we are engaged. Without them
we cannot exist and if we do not do what we are challenged to do then
perhaps there will be no tomorrow.
I come to
the task of doing HIV thea/ologies with an intense passion. It is my
firm belief that "theology", as we know it, has been radically changed
by the HIV pandemic. We can no longer continue with business as usual.
HIV theologies are indeed grassroots, subversive thea/ologies, for they
arise from the lives and dreams and struggles and fears and triumphs of
people living with HIV and those who love them and make community with
them. These HIV thea/ologies challenge the complacency of "theology" in
the face of HIV disease and also force us to look at the role that
"theology" has played in fostering the kinds of conditions that allow
HIV to be where it is today in this country and elsewhere, especially
amongst those people whom the dominating culture considers to be
"disposable people". I have been arrested several times for committing
acts of civil disobedience connected to HIV -related issues. In 1992, 1
lost my partner, Zawadi, to HIV. By the end of that year, most of my
circle of friends had died of HIV-related complications. And I am the
father of a 23-year old, Kuji, who is living with HIV. For the last 15
years, my community has been the HIV communities. I worked in HIV first
in Switzerland and from 1986 until the present here in the United
States. I have worked as an HIV- test counselor/educator, and as a safer
sex activist I have also taught a course on HIV Theo/ologies in
seminaries since the late 1980s. It is about how to develop grassroots
Theo/ologies and practices out of the multiply intersecting contexts of
people living with HIV. The only requirement for this course was that
one be trained as a safer sex educator,, an HIV educator, a test
counselor, etc. and be directly involved in HIV work. As part of this
class, people have been tested and then reported back on their different
experiences with test counselors and clinics and the ways in which they
were received based on the assumptions that the counselors made about
them, about who they were. This is helpful in getting people in ministry
to understand that often there work in regards to HIV might be a
ministry of advocacy and agitation. One of the most important
theoretical parts of the course was looking at religious attitudes
towards the Plague and particularly the role of the poor during the
Plague.
CHRYSTOS,
that great Native American (Menominee) /Two-Spirit/lesbian poet and
critical thinker, activist for queer rights,
First
Nations land and treaties rights; and prisoners' rights, says in her
poem, "FROM THE OTHER WORLD" :The dead call to me singing in voices I
barely remember....
We are a
people for whom death is common as colds We stagger under grief not even
able to lean on one another because no one stays rooted in a hurricane
Rain comes from the south blowing hard the grass lies down until it is
over We hardly speak of the deaths for we know we have years more to
carry The hatred we have had to withstand storms on There is little pity
for us in the hearts we live among as we face time with no shelter
How do we
create new ways of facing time "with shelter"? In 1851, Sojourner Truth
gave her great "Ain't I a woman?" speech, in which she makes it very
clear to us that there is nothing "ESSENTIAL" (as we would say today) or
fixed in stone about gender, anymore than there was anything immutable
or fixed in stone about race, class, sexuality, or the right to
self-definition and self-determination. Sojourner Truth, that great
escaped slave, abolitionist, womanist theologian, traveling orator,
preacher, gender outlaw and over-all paradigm subverter points to the
intersections of race and class in the construction of gender. Sojourner
is my hero, because, instead of trying to adapt herself to The
societal-accepted definition of WOMAN of her time, she challenged
both the definition and The standards that had created it. Her speech,
but more importantly her life, exposed the concepts of "woman" and "man"
as being socially constructed and therefore, like notions of race,
class, sexuality, or self-determination, subject to change according to
social, political, geographical, historical, ideological, economic, etc.
factors and circumstances. Sojourner Truth deconstructed with her words
AND WITH HER BODY. For her, there was no conflict between
Sojourner Truth the abolitionist and So Sojourner Truth The women's
rights activist; the one j informed the other, for the same power of
white male supremacy substood both. And the example of Sojourner Truth
leads us to look at HIV as we know it today as being at the intersection
of many different issues that we have to begin to address
simultaneously. HIV is pushing us to move beyond either/or thinking.
This is what I call "HIV-in intersection"": At The end of the 201
century and facing the beginning of the 21 a' century, HIV-in
intersection means acknowledging the particular issues of women of color
with HIV in their struggles against multiple oppressions.
HIV-in-intersection means acknowledging that it is impossible to
understand these issues without a class-analysis of The socio-political
economic factors contributing to SEXISM (understood as systemic
oppression perpetuated by a process of sociosexual power relations which
reflect and reproduce male dominance) as compounded by WHITE SUPREMACY
(not just "bad" white people). Without sexism, gender oppression,
heterosexism (the systemic display of heterosexual male power and
privilege), ableism, classism, racism, erotophobla, etc. coming together
to shape and inform religious and societal discourses, the response to
HIV in this country could have been profoundly different. So, HIV-in
intersection means also being a lesbian of color single mother with HIV
living right here in Atlanta who risks losing custody of her children
for a whole host of reasons. HIV-in-intersection means acknowledging
that race lass/gender sexuality/spirituality are not monolithic distinct
categories; it means creating a space where we all can come to an
understanding of race that must include an understanding of The elements
of class, gender, sexualities, geographies, etc. that go into shaping
notions of race. how race, gender, sexualities, geography, go into
shaping notions of class, how race, class, gender, geography, religion
are factors and facets in the shaping of sexualities, how race, class,
sexuality, geography, religion, are factors in the shaping of gender,,
how racism, fear and hatred of women, erotophobia (The fear of the
erotic and of its power), homohatred,, fear of the earth, and HlVphobia/aparth
AIDS all came together so that now we can see how the war against women
and their bodies from the Inquisition until the beginning of the
dismantling of women's reproductive rights, is connected to The
masculinisation and The industrialization of healing; which is connected
to the hardening of Western Christian religious dogma in Northern
Europe; which is connected to the driving out of all feminine
manifestations of the Divine; which is connected to the expulsion
of the OTHER, of
Muslims and Jews from Spain; which is connected to the African slave
trade and the invasions of the Americas, Asia, and the Pacific Islands,
where Indigenous Peoples, Africans, and Asians were enslaved and
massacred because they were considered to be like women: Incarnations of
evil/unbridled lust/too connected to the body and sexi too filled with
disease (like HIV)/too connected to the earth, the black and red earth
which, like women, was to be destroyed because, like women, it was
considered to be wild and needing to be dominated; like darkskinned
peoples,, it too needed to be dominated and controlled. We cannot
understand or effectively struggle against HIV in all of our communities
if we do not attempt to grasp the complex ways in which HIV and the
problems surrounding it are all inextricably bound-up together.
In THE BIRTH OF
THE CLINIC/ An archaeology of medical perception, Michel Foucault
writes: "Doctor and patient are caught up in an ever-greater proximity,
bound together, the doctor by an evermore attentive, more insistent,
more penetrating gaze, the patient by all the silent, irreplaceable
qualities that, in him, betray-that is, reveal and conceal-the clearly
ordered forms of the disease. Let us call tertiary spatialisation all
the gestures by which, in a given society, a disease is circumscribed,
medically invested, isolated, divided up into closed, privileged,
regions, or distributed throughout cure centres, arranged in the most
favorable way.... it brings into play a system of options that reveals
the way in which a group, in order to protect itself, practices
exclusions, establishes the forms of assistance, and reacts to poverty
and to the fear of death. "(pp. 15-16).
Why does it
sometimes seem that HIV-prevention and education efforts have not been
able to do what they set out to do? The deeper issue, again from the
perspective of tertiary spatialisation, is that HIV is not a separate,
isolated issue. It cannot be seen in isolation from other issues such as
the prison industrial complex (in which people of colour are grossly
disproportionately present), sexism, heterosexism, sexphobia, racism and
classism, just to name a few. Especially in the communities of colour,
HIV represents an entire complex of issues. We have consistently avoided
dealing with these issues,, and that is why it often seems that we are
back at the starting point. In order to move wisely into the future,,
the interconnectedness of these issues will have to be constantly
addressed. This might mean that we will have to develop much more
complex and complicated approaches to prevention, education and
health-care, but is there REALLY any other solution?
According to an
article entitled, "The Death Penalty: AIDS and Medical Care in
California Prisons" which appeared in the August 13,1998 issue of San
Francisco Frontiers, a local queer publication, the California
Department of Corrections held more than 165,000 prisoners in its system
as of 1997. It also identifies only 1500 prisoners with HIV/AIDS.
However, according to Judy Greenspan, the chair of the HIV in Prison
Committee of California Prison Focus, even the Department of
Corrections' own studies conducted with the state Department of Health
Services revealed a seroprevalence rate of about 3%, which equals
approximately 4000 HIV positive prisoners. There are, however, according
to Greenspan's findings, approximately 10,000 prisoners living with HIV.
Needless to say, they receive absolutely substandard medical care.
Prisoners relate how they are deprived of their HIV medications when
prison doctors feel that their attitudes are too negative. One doctor at
Corcoran has been known to refuse to give vitamins to an HIV positive
prisoner. Furthermore, pain medications are often systematically denied
to women and men prisoners with HIV since it is believed that they are
all drug-users. HIV-positive prisoners state that when they are
relocated from one prison to another, their medications are stopped when
they enter a new prison. This seems to be especially the case when it
comes to combination therapies including protease inhibitors; this, of
course, creates the context for HIV to develop resistance to these
particular medications. Others state that those prisoners who are on
combination therapies are often subjected to 7-14 day prescription
delays when they run out of their medications. They are required to
request a new prescription every time they have exhausted their supply
of medications. This, of course, creates the kind of context that leads
to HIV developing drug resistance. Prisoners who try to created hidden
supplies of HIV medications so that they will not run out are punished.
4-6 week waits to get medical attention are not unusual. The situation
for women prisoners with HIV is even more grim: according to Greenspan,
at the Central California Women's Facility, the only on-call physician
is a retired pediatrician whose information about HIV/AIDS is limited to
what he has learned from the prisoners. Guards with minimal medical
training do triage; this means that women prisoners with HIV are often
misdiagnosed and opportunistic infections go untreated. Some prisoners
die simply because their medical complaints are ignored; they are often
sent back from the infirmary with their problem never having been
addressed. Women prisoners in California are basically in a system where
there is no medical care. At the Central California Women's Facility and
the Valley State Prison for Women, the one and only infectious-disease
physician does not do medical exams. Women hardly ever (if at all) get
to see a gynecologist; this is particularly dangerous since many of the
HIV -related complications in women impact on their uterine system.
Being in prison should not mean that one is subjected to substandard
health care; being in prison with HIV can become its own death sentence.
And the problems are magnified when it comes to issues of Transgendered
prisoners living with HIV. If the conditions that foster the development
of HIV strains that are drug-resistant are allowed to persist in
prisons, then we are actually facing new forms of the death penalty. And
this will have an effect on how HIV will develop in the general
population. Foucault, in the above-mentioned work, does point out that
in the history of medicine, it was understood (for example, in
post-revolutionary France) that the first task of the healer (be that
healer religious worker/social worker/cultural worker/health-care
worker) was POLITICAL: "The struggle against disease must begin with a
struggle against bad government."(p.33)
We live in a
world of fluid constructions of sexualities, desires, and genders, where
there are many people who have sex with all genders in varying and
dazzling relational configurations: this should shape the ways in which
we see the many faces and facets of HIV prevention and education. to HIV
is not a separated and isolated issue; community development and
empowerment are part of HIV prevention and education. HIV cannot be seen
in isolation from other issues such as anti-immigration, erotophobia,
racism, classism, ableism, ageism, domestic violence, lesbiphobia,
transgenderphobia, etc.. It means that we must move beyond a way of
thinking rooted in binary oppositions ("either or" thinking) so that we
can understand how injectable drug users might also be
lesbian/gay/bisexual/Transgendered/intersexed/ queer/questioning; where
women with HIV also means lesbian/bisexual/Transgendered/intersexed/queer
questioning women; where erotophobia hampers prevention and education
strategies by not letting us talk openly about sex (it cost surgeon
general elders her job). That when we talk about HIV in prisons
we are NOT ONLY
talking about, but WE ARE ALSO talking about lesbian/ gay/ bisexual/
Transgendered/ intersexed/ queer/questioning people in prison, not just
situationally, but who went in that way and will come out that way.
HIV-in-intersection provides ways for us to say that boundaries are
blurred, that erotophobia,, the fear of the power and uses of the erotic
and sets us up to be dominated and controlled and kept in neat,
monolithic categories. Part of our colonized mentality has made us think
that if we deny the centrality of sexuality in our context, in our
experiences, in our lives, in our thought, in our creativity, if we
trivialize it, then we will be more acceptable.
Erotophobia, The
fear of the power of the erotic, is rooted in hatred of the body and
anything that reminds us of it. So, since this society fears and hates
women, it depicts them as temptress, as the very incarnation of the
BODY, as the very incarnation of the libido, sex, the dirty. So, you
cannot separate erotophobia from the fear and hatred of women.
Erotophobia and
racism intersect in the investment of people of color as THE
exotic/erotic Other, people who are seen as the very incarnations of the
erotic (all women of color considered to be "available") and the libido
(and therefore, of evil) and who need, like women, to be dominated
because of being dangerous, disease-filled, but inferior.
Erotophobia keeps
shame around rape to silence women who are believed to just be asking
for "it". Poor people of all colors, are to stay controlled because they
are too erotic. Anti-Muslim, anti-Jewish and anti-earth-based religions
propaganda spread images of Muslims, Jews and practitioners of
earth-based religions as being too erotic and therefore to be
annihilated. Just as desire is to be policed and women's bodies are to
be controlled for profit by men, and people of color controlled by white
people (who are pure and virtuous by definition), so is the environment
to be controlled.
Instead of
acknowledging the ways in which women in the sex industry have taken
leadership in teaching and practicing safer sex in the context of
commercial sex work, erotophobia perpetuates images of them as carriers
and spreaders of disease. Erotophobia keeps us from talking about safer
sex in terms that are unmistakably clear, keeps us from distributing
dental dams, needles, or condoms; leads us to exclusively advocate
abstinence, yet at the same time, the marketing industry makes fortunes
using sex and pleasure, or at least the illusion of it, to sell
everything from underwear to whiskey. This has greatly impeded us from
talking about all that goes into our sexualities, the expression of our
desires. It has led to a desexualizing of AIDS that sends a double, and
definitely extremely negative, message, especially to those of us who
are lesbian/gaylbisexualitransgenderedlintersexed/queer/questioning
people. The work of creating and fostering the conditions for safer sex
goes back much further than just telling people to use condoms. What are
the psycho-spiritual conditions of people who have been told that they
can only have sex involving latex barriers for the rest of their lives?
What about those who after 15 years or more of being HIV-positive decide
to have latex-free sex with other HIV-positive persons? How are HIV
Theo/ologies present to them?
Erotophobia keeps
us from talking about sexualities of young people because they are not
supposed to have sex; nor are older people. We never say that we have
another way of viewing sexualities and bodies and health and illness
because we know that OUR BODIES blur the personal/political split When
your body is always on the line, you know that you are transgressing the
public/private split by your very existence. When you can be arrested
because of your body (skin/colour/height/hair/lack thereof/what's on
your skin/perceived health condition/clothes/lack thereof, etc.)then you
know that your body is political and that it does matter. When the power
apparatus of this country expends incredible amounts of time, money, and
energy to legislate on controlling and policing
our bodies and
the ways in which we decide to use them, (but does not spend equal
amounts of money on housing, feeding, educating, healing, nurturing,,
etc. those bodies), then you know that your body is political and that
it really does matter. And this brings us back to the primacy of the
body and the centrality of our sexualities.
Bodies matter; in
the ways in which the dominating culture has organized its meaning and
conferred and confirmed identities, we have been led to believe that
just rich, white, male, heterosexual, temporarily able-bodied bodies
matter (or those that resemble them the most closely); that these are
the PERFECT BODIES that really matter. But all bodies matter; not
numbers, not statistics. BODIES MATTER: not ball gowned and tuxedoed and
academically-attired bodies matter, but just plain old bodies matter.
Dead bodies matter, dying bodies matter, infected bodies matter,
disabled bodies matter, decolonizing bodies matter, decolonized bodies
matter, poor bodies matter, injectable drug-using bodies matter,
commercial sex-workers bodies matter; ghetto bodies matter; projects
bodies matter; lesbian/gay/bisexual/Transgendered/intersexed/queer/questioning
bodies matter; coloured bodies matter; working-class bodies matter;
children's bodies matter; women's bodies matter; public assistance
bodies matter- immigrants' bodies matter; prisoners' bodies matter; HIV
bodies matter; cervical cancer bodies matter; breast cancer bodies
matter; hypertension bodies matter; sickle-cell bodies matter; diabetes
bodies matter; prostate cancer bodies matter; homeless bodies matter;
lesbian/ gay/ bisexual/ Transgendered/ intersexed/ queer/ questioning
bodies matter; Earth's body matters; BODIES MATTER.
For us,
HIV-in-intersection is about recognizing the intersectionalities of our
very own bodies and minds. We should be able to take cognizance of a
rich , variety of possibilities of existence, of wholeness, of life.
HIV-in-intersection challenges us to understand that disability does not
mean incomplete, that the tendency to equate disability with tragedy
keeps us from struggling together for justice and access for people
living with disabilities. Disability makes us confront issues of access
and accessibility which are issues for all of us, in many differing
contexts, disability makes us address its social aspects such as
poverty, class, isolation, alienation,, social erasure, marginilisation;
it makes us understand that bodies are not just flesh-and-bones bodies,
but that they are also bones-and-b races bodies, bones and-wheelchair
bodies, deaf bodies, blind bodies. The refusal to address concerns of
people living with disabilities is to reinscribe oppressive notions of
the PERFECT BODY (read: white/temporarily able-bodied/heterosexual/male
body) and to perpetuate marginilisation and discrimination.
HIV-in-intersection also forces us to acknowledge the issues of youth
with HIV, but also those of elders with HIV. These people, as well as
all others living with HIV, must be allowed to advocate for themselves.
In the years to
come, the struggle against HIV must be continually rooted in a war
against all those structures that do not facilitate this process of
liberation of the whole woman, of the whole man, of the whole child. The
HIV-in-intersection perspective of our HIV thea/ologies leads us to
acknowledge the following fact: We are fighting for all of our lives.
Our bodies do matter.
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