|
HIV/AIDS and its
'Willing Executioners': The Impact of Discrimination
http://www.murdoch.edu.au/
by
Darryl Pereira
Introduction
After the traumas of the Holocaust most
of us would agree that its existence (Anti-Semitism) is not merely a
Jewish problem, that it poses a challenge to everyone because a society
that tolerates such prejudice is that much less a good and a just
society.
The same test, I would argue, can be
applied to the way in which a society deals with a new and lethal
disease even when - especially when - those it strikes come largely from
unpopular and distrusted groups (Denis Altman).
1.
The release of Daniel Goldhagen's book Hitler's Willing
Executioners created a storm in Germany as it presented a serious
challenge to Germany's favourite explanation of the Holocaust. In short,
Goldhagen proposed that far from not wanting to be a part of the mass
annihilation of the Jews, the perpetrators, "ordinary Germans" actually
did not want to say "no" and were in fact "willing executioners" of
millions of Jews.
- This reference
to Goldhagen's book is intended to be a powerful symbolic reminder
that it is necessary for all of us to think about our role in relation
to the HIV/AIDS epidemic. Moreover, in reflecting on this role it will
become apparent that we have all become the "willing executioners" of
a virus, which remains incurable.
- The importance
of such a label cannot be overemphasised, as the advance of AIDS has
not been stopped in any country. Over 33.4 million adults and children
are living with HIV/AIDS, divided relatively equally between males and
females. In 199 alone, 2.5 million children and adults died of AIDS,
adding to a toll which, in the previous year, had already exceeded the
number of victims of World War One.
- Seven thousand
five hundred more people become infected every day - that is, five
people become infected every minute.8 Significantly, in all countries
around the world those populations marginalised before the epidemic
began are the ones most at risk of suffering from HIV/AIDS, as
infection disproportionately affects marginalised groups in society.
- Therefore, this
paper will focus on the relationship between marginalised groups in
society and HIV/AIDS. This relationship will be discussed in terms of
what is the guiding policy criterion in this area, namely minimising
the personal and social impact of HIV infection and the containment
and prevention of the spread of HIV/AIDS.
- It will be
contended that these goals are unattainable as long as discrimination
remains endemic in our society because discrimination adversely
impacts on both these goals. In order to demonstrate this, it is
necessary for this paper to proceed in two parts.
- Part I of this
essay will consider the social context of HIV/AIDS. It is essential to
discuss the social context separately, because the vulnerability of
marginalised individuals towards contracting and suffering the
consequences of HIV/AIDS infection, cannot be divorced from the social
environment in which these individuals live and make decisions about
their lives.
- Accordingly, it
will be demonstrated that societal discrimination in all its forms
magnifies the susceptibility of marginalised populations towards
contracting HIV/AIDS, as well as having a pernicious impact on those
affected. As such, we all have to acknowledge our complicity in this
tragedy.
- Having
established that societal discrimination intensifies the risk of HIV
infection and its impact on those affected, Part II of this paper will
discuss the role of the law in the context of HIV/AIDS. It will be
established that the present legal response to HIV/AIDS is inadequate
and deficient as it does not address the underlying problems that
cause vulnerability to HIV/AIDS.
- However, it
will be submitted that this conclusion does not necessarily entail
dismissing the law as a means of achieving public health goals in the
context of HIV/AIDS. Rather, it will be shown that the legal response
to HIV/AIDS, though limited in what it can do in combating this
epidemic, is nonetheless significant.
- It will be
submitted that in order to maximise its significance in this regard
the law needs to be used proactively by adopting a human rights
approach[13]
in order to address societal forces that enhance vulnerability towards
HIV/AIDS.
- By so doing, it
will be revealed that there is a real potential to use the law to
assist in protecting the rights of those infected and to aid in
creating a supportive social environment conducive to behavioural
change amongst marginalised groups most at risk of HIV/AIDS infection.
Accordingly, this envisaged role for the law would complement and
promote HIV/AIDS strategy objectives and therefore must be exploited.
- It is the
fervent hope of this paper that by analysing the deleterious impact of
discrimination in the context of HIV/AIDS, that we may become more
aware that the struggle against discrimination has high stakes. That,
as such, we all have an obligation not only to refrain from practicing
discrimination, but to also challenge it at every level. Otherwise, we
risk maintaining our current role as "willing executioners."
The
Social Context
The
Relationship between Minority Groups and HIV/AIDS
Within every society, rich or poor, it
is those who are marginalised who are most vulnerable to HIV/AIDS. (A
statement by the Joint United Nations Program on HIV/AIDS).
- Put simply,
HIV/AIDS is associated with and predominantly infects marginal
populations. Across the world, marginalised communities bear the brunt
of the HIV epidemic. Basically, depending on the nature of the
epidemic and the legal, social and economic conditions in each
country, these marginalised populations may include, women, children,
those living in poverty, indigenous people, migrants, refugees,
prisoners, sex workers, gay men, bisexuals and injecting drug users -
that is, groups who already suffer from discrimination.
- Today, about
52% of all Americans living with HIV/AIDS are either African-American
or Hispanic. Moreover, 87% of women with HIV/AIDS and 81% of children
and adolescents with HIV/AIDS in the United States are non-whites. By
contrast, blacks account for only 11.6% of the general population, and
Hispanics constitute just 6.5% of the population.
- In Australia,
more than 80% of people living with HIV/AIDS are gay men, and yet gay
men are said to account for only 10% of the population. Thus, in every
society it is the least powerful who are most at risk of HIV/AIDS
infection.
- This point is
best summed up by Mann and Tarantola when they observe, "The French
have a simple term which says it all: HIV is now becoming a problem
mainly for les exclus - the 'excluded ones' living at the margins of
society." The question, which thus presents itself, is what are the
consequences of the reality that HIV/AIDS is inextricably connected
with minority groups in society in terms of our response towards this
association.
Consequences of the Relationship between Minority Groups and HIV/AIDS
Sometimes it appears as if the various
people with HIV/AIDS have only two things in common: HIV infection and
HIV-related stigma and discrimination (Theodore de Bruyn).
Uniqueness of HIV/AIDS Related Discrimination
- Admittedly,
many, if not all, diseases lend themselves to moral interpretation. In
ancient Greece, the Hippocratic texts include the classic work on "The
Sacred Disease" in which the moral practice associated with epilepsy
was attacked. In fact, HIV/AIDS follows epilepsy, syphilis, leprosy
and mental illness in being heavily laden with powerful negative
connotations. Thus, HIV/AIDS is not alone among illnesses and diseases
that are marked by stigma and discrimination.
- However,
HIV/AIDS differs from other diseases in the past in the sense that it
has a predilection for minorities, men and women who have continually
experienced discrimination in the most fundamental areas of human
life.
- Consequently,
HIV/AIDS related discrimination can be distinguished from other
illnesses and diseases, by its association with behaviours that are
already disapproved of or considered deviant, particularly
homosexuality and intravenous drug use. Cancer, heart disease and
diabetes amongst other medical illnesses have never suffered from such
an association. Herek aptly sums up the peculiarity of HIV/AIDS
related discrimination when he asserts that:
Whereas the characteristics of AIDS as
an illness probably make some degree of stigma inevitable, AIDS has also
been used as a symbol for expressing negative attitudes towards groups
disproportionately affected by the epidemic, especially gay men and
injecting drug users.
- A poignant
reflection of the extensive discrimination which is directed towards
members of minority groups who suffer from HIV/AIDS can be discerned
in the fact that people with HIV infection or AIDS have been
interpreted to belong to one of two categories - the "guilty
majority", which consists of those marginalised populations such as
gay men, who are seen to be deserving of their disease because of
their lifestyle choices, and the "innocent majority" of hemophiliacs
or transfusion cases.
- This is
illustrated in a survey of attitudes towards people who contracted HIV
and AIDS undertaken by the National Centre for Epidemiology and
Population Health at the Australian National University, where it was
found that high levels of sympathy existed for people who contracted
HIV through blood transfusions (97%), but low levels for homosexuals
(24%).
- Therefore, a
consequence of the association of HIV/AIDS and marginalised groups in
society is it serves to amplify the discrimination associated with
this disease to the extent that people infected are blamed for their
disease. Significantly, this uniqueness of HIV/AIDS related
discrimination has a decisive impact on those marginalised people who
are infected with HIV/AIDS.
Discrimination as Considerably Increasing the Personal Costs of
Infection
- In short, those
members of marginalised groups in society who are infected with
HIV/AIDS suffer not only from the burden of having a fatal disease but
also from the additional burden of being an oppressed group in
society.
- For example,
the fact is that the predominantly negative attitudes in society
toward homosexuality has intensified and extended with the onset of
HIV/AIDS. Put simply, this has the consequence of dramatically
increasing the personal cost of infection for gay men living with
HIV/AIDS. This is most aptly summed up by a Gay man living in
Newfoundland who commented:
I have always hidden my homosexual
tendencies from my family and friends. To now come out and say that I am
gay and that I have AIDS, it's a double stigma. Unfortunately, the
stigma is attached to you at the time you need support, you are afraid
of dying, and you are hurting pretty badly.
- Indeed, the
discrimination which accompanies gay men living with HIV/AIDS is also
flagrant and explicit. For instance, many health care workers and
doctors refuse to provide care or avoid patients who are homosexual.
The repercussions of this explicit discrimination is that many gay men
living with HIV/AIDS do not seek (or may not seek early enough) the
treatment they require. This distressing reality is made worse when
one considers that treatments such as protease inhibitors have been
proven to dramatically improve the health status of many people with
HIV.
- Similarly,
discrimination negatively impacts on the ability of women to cope with
HIV/AIDS. Basically, in society, discriminatory assumptions exist in
relation to women with HIV/AIDS, whereby a woman who has HIV infection
is presumed to have been infected as a result of having multiple
partners or having engaged in prostitution. Therefore, to have caught
HIV/AIDS is seen as symbolic of them being "promiscuous" and "dirty."
- In fact, an
Australian study of the experiences of women with HIV/AIDS discovered
that a substantial number of the women interviewed indicated that
their doctors were trying to convince them to "admit" that they had
unprotected sex with men, had worked as a sex worker or shared
needles. It further found that an outcome of this was that many women
with HIV/AIDS felt like "victims", which made them use health services
less and not ask for or demand what they really required, be it
information, referrals, care, or compassion.
- As this outcome
stems from our discriminatory attitudes and assumptions it should be
viewed as what it is, "the deepest violation of another person's
humanity", namely the right to "live - or die - in reasonable comfort
and dignity."
- Therefore, it
is evident that discrimination discourages members of marginalised
groups living with HIV/AIDS from seeking testing and counselling,
makes it extra hard for an infected person to share the news with a
partner and benefit from their support, and keeps people from
accessing care, even where care is available. Thus, those who are
already marginalised and excluded in society are pushed even further
from the support of human society as a result of HIV/AIDS infection.
- Accordingly, it
can be safely asserted that discrimination operates on a variety of
levels to severely hinder the ability of marginalised people who
suffer from HIV/AIDS from coping with their illness. Indeed, the fact
that marginalised groups living with HIV/AIDS as a result of
discrimination are more likely to forego valuable social support and
medical treatments that could increase their longevity and improve
their quality of life, graphically illustrates that we have become
their "willing executioners."
- It is clearly
apparent as such that a major goal of HIV/AIDS strategies, of
minimising the personal and social impact of HIV/AIDS on those
infected has been severely impaired by the impact of discrimination.
This, in turn, raises the question of whether the goal of curbing the
spread of HIV/AIDS transmission is similarly hindered by
discrimination. This will now be examined.
The
Need to Examine HIV/AIDS in Light of Contextual Determinants
- A common
argument presented as to why certain groups disproportionately suffer
from HIV/AIDS is that they engage in certain activities which are
fraught with danger, certain high "risk-activities." This is linked to
the idea commented on before, that HIV/AIDS is a punishment for
life-style choices of those at greatest risk of being infected by it,
such as gay men and intravenous drug users.
- Granted, for
the moment, that the assertion that marginalised groups are most
vulnerable to HIV/AIDS infection as a result of their high risk
behaviour is correct, it would remain that the discrimination they
suffer reduces the means of combating such "risk-taking" activities.
Basically, to change "risk-taking" activities by certain groups
requires changing their
- behavioural
patterns and maintaining such changes, which entails "high-risk"
minority groups coming forward and participating in education. Yet, as
has been shown the discrimination resulting from irrational prejudices
directed at people perceived as members of risk groups acts as a
disincentive for such individuals to cooperate in initiatives aimed at
halting the spread of the virus.
- Therefore, as
Justice Michael Kirby points out:
Those capable of transmitting HIV or
most at risk of acquiring it must be educated without feeling
threatened, and as such a cooperative approach will only be achieved if
those seeking HIV testing, education, treatment or counselling are not
at risk of being treated as criminals, or subject to widespread
discrimination.
- More
importantly, the reality which needs to be acknowledged is that
personal vulnerability to HIV/AIDS infection stems significantly from
societal vulnerability. Social vulnerability refers to contextual
factors that define and constrain personal vulnerability.
- The extreme
individualism of the behaviouralist position outlined above must be
rejected as it ignores the fact that contextual factors contribute to
social vulnerability to HIV/AIDS infection. In fact, the World Health
Organisation now conceptualises health as being a product not only of
individual actions but also of actions, which take place in the social
contexts, and environments in which individual behaviours occur.
- The simple fact
is that implicit in the idea that there are "choices" which
individuals have and make about health is a product of "individual
cognitive or rational decision-making."[53] Yet, "choices" are
influenced by how other individuals think and behave and the social
factors exogenous to individuals themselves which constrain or
encourage the degree of "choice" that individuals can exercise.[54]
- Accordingly,
"factors other than the constituents of personal psychology make-up
are important in our understanding of exposure to HIV infection."[55]
Therefore, to attempt to understand personal vulnerability to HIV/AIDS
infection without addressing the contextual factors related to
societal vulnerability is to misconstrue and depreciate the nature of
the problem.
- Consequently,
this raises the idea that in terms of the spread of HIV/AIDS amongst
minority groups in society it may not be their behaviour which is the
central problem but rather our behaviour and attitudes which needs
urgent modification. Indeed, it is a contention of this paper that the
societal context in which vulnerability to HIV/AIDS is embedded is
significantly shaped by the discrimination which marginalised groups
suffer.
The
Problem in Perspective: Their Behaviour or Ours?
It is high time that humankind became
aware of the danger lying in store before it is too late, that in this
struggle discrimination and prejudice are the allies of death as
represented by AIDS. (Mr. Luis Varela Quiros, Special Rapporteur for the
United Nations).[56]
- In order to
test the assertion that factors which shape a risk environment are
considerably influenced by the discrimination which marginalised
groups suffer, it is desirable to look at whether there is any clear
link between discrimination against gay men and gay youth and their
vulnerability to contracting HIV/AIDS.
Discrimination as Amplifying Gay Men’s [57] Vulnerability towards
HIV/AIDS Infection
- Unlike, many
other countries in the world the overwhelming pool of HIV/AIDS
infection in Australia remains among homosexually active men. In the
Australian HIV Surveillance Report it was found that homosexual men in
the period cumulative to 31 December 1998 constituted 83.3% of all
cases.[58]
- Similarly, most
reported diagnoses of newly acquired HIV infection remains
predominantly in men who have sex with men. The principal mode of
transmission among gay men is "unprotected" anal intercourse as shown
by epidemiological studies.[59] This illustrates that behavioural
change remains the key aspect of the prevention of the spread of
HIV/AIDS amongst gay men.[60]
- However, the
reality is that the social environment in which gay men live, far from
being conducive or supportive to changing and sustaining behavioural
modification amongst gay men, adversely impacts on the ability of gay
men to lead healthy lives.
- To be gay in
our society is to be defined as "sick", "deviant", and "abnormal" as
society assumes heterosexuality to be "normal"[61] and homosexuality
to be an anomaly. This reality is reflected in a recent national
telephone survey of gay and homosexually active men (Project MaleCall
96[62] which found that 40.6% of those men sampled reported
experiencing homophobic or HIV related instances of verbal abuse,
harassment, physical treatment or intimidation.[63] This provides
clear evidence of the intensely homophobic nature of our society where
to be gay means facing extensive and pervasive discrimination.
- In the context
of HIV/AIDS such a hostile environment has devastating consequences in
terms of preventing the spread of HIV/AIDS amongst gay men as it
produces the result that many gay men suffer from low self-esteem. In
the words of one gay man:
If I live in a world that is homophobic
and heterosexist, which does its very best to isolate me from my peers
and keep me from any knowledge or acknowledgment that my gayness is
valid, or even exists outside of my head and heart, then of course I am
going to feel worthless and have low self esteem.[64]
- This outcome is
consequential to say the least, as basically, long-term ongoing
changes in sexual behaviour, such as the introduction and continued
use of condoms, are an adjunct to positive self-esteem.[65] The impact
of low self-esteem in this regard is best reflected in studies showing
that gay men today generally have highly accurate knowledge about
HIV/AIDS transmission, but still engage in risky sexual
activities.[66]
- This seemingly,
contradictory fact can be reconciled when one puts it into a context
in which gay men suffer pervasive discrimination and consequent
feelings of low self-esteem and self-confidence and accordingly do not
have the ability to make and effectuate choices necessary for health
in spite of their knowledge.[67]
- Therefore, the
stark reality is that HIV is transmitted amongst men who have sex with
men not just because of unsafe sex but rather because:
homosexual identity is not
acknowledged, permitted, and supported as a natural development of human
...personality...which inevitably leads to negative self-esteem and lack
of negotiating skills and consequently to a heightened vulnerability to
HIV infection amongst gay men.[68]
Young
Gay Men
- An increasingly
tragic reality in Australia is that new infections of HIV/AIDS are
expanding at a significant level among young gay men.[69] One recent,
cautious study in America makes the horrifying prediction that about a
third of sexually active gay men in America will be HIV-positive or
dead by the time they reach 30.[70]
- Indeed, the
Report of the Evaluation of the National HIV/AIDS Strategy in 1992
found that new infections were occurring amongst young gay men
principally because of their failure to practice and maintain safe sex
habits.[71] Many would argue, however, that this is indicative of the
idiocy and immoral nature of young gay men. However, such a view
essentially misses the point that our discrimination against gay men
creates and sustains social conditions that foster HIV/AIDS
transmission.[72]
- The hostile
environment which gay men encounter is magnified for young gay
men.[73] Indeed, what makes gay youth different from other "minority"
groups is that they do not, for the most part, grow up with people
like themselves.[74] The well-established, grave consequences[75] of
such a negative environment for young gay men include low self-esteem
and feelings of worthlessness, which adversely impacts on their
ability to protect themselves from HIV/AIDS infection.[76]
- Indeed, the
dangerous consequences are also clearly evidenced by the reality that
a disproportionate number of gay youth end up on the street where the
risk of drug abuse, sexual abuse and HIV infection increases
dramatically.[77]
- Furthermore,
many gay youth in growing up in an environment in which they are very
aware of the discrimination and possible violence they will face if
their sexual orientation is discovered,[78] attempt to hide their
sexuality.[79] In the words of a gay 16 year old youth:
We can be invisible, and are assumed to
be part of the heterosexual majority until we blatantly and publicly
declare otherwise. Some of you might think this to be a boon - I can
just pretend to be straight and avoid all this discomfort. I tried for a
while...to try to prove to myself that I could be straight if only I
tried hard enough. But instead of being accepted into the mainstream, I
lost my self-respect...This> instituted a downward spiral of self-hatred
and anger motivated by homophobia. I hated myself for being what seemed
to be everyone's worse nightmare, a homosexual...I'm not telling you
this to make you feel sorry for me...but because I want to give you an
idea of what it is like to be ostracised from society because I don't
conform to its standard of normal. [80]
- In short, the
consequences of concealment can be shattering. For example, it can
result in the homosexual activity of gay youths taking place
anonymously, such as at "beats" or gay and lesbian bars and
nightclubs.[81] Being forced into the adult "scene" in this way
augments the vulnerability of gay youth to HIV/AIDS infection.[82]
- One of the
strongest examples of discrimination on the basis of sexuality as
negatively impacting on the lives of gay youth is the lack of basic
information about gay issues in schools, including a lack of
information about safe sex issues relevant to gay youth.[83]
- This is, in
spite of the fact that it is proven that education on gay issues and
safer sex[84] is the type of knowledge and support required for safe
sex practices to be a viable option for gay youth.[85] One young gay
man was reported as saying, "I was waiting and expecting to hear
something about homosexuality, safe sex and different things in sex
education. Maybe some information that could help me. But I got
nothing."[86]
- Indeed, the
government is especially culpable in this regard. This is most
emphatically highlighted in the banning of a safe sex campaign
directed to young gay men by the Queensland Health Minister, Mike
Horan, because Mr. Horan considered the material to be "promoting"[87]
a homosexual lifestyle.[88]
- In the context,
of HIV/AIDS, this banning only serves to create and maintain the
special vulnerability of gay youth to HIV infection, as it increases
the lack of information and positive education about safe sex for gay
youth.[89] As the Victorian AIDS Council President at the time, Joseph
O'Reilly, stated, "Political decisions are overriding public health
concerns, and in that process, the Minister is putting lives at
risk."[90]
- To sum up,
anyone who believes they can explore the experience of gay men and gay
youth, "being at risk for HIV disease without considering the
experience of being gay is hopelessly mistaken."[91] This is the case
because discrimination against gay men and gay youth serves to
intensify their risk of HIV/AIDS infection.
- However, it
would be wrong to conclude that discrimination only enhances the
vulnerability of gay men and gay youth towards HIV/AIDS infliction as
it produces the same result for other marginalised groups in society.
In order to conclusively establish this point the special
vulnerability of women towards HIV/AIDS will now be examined below.
Women
- In short, the
operation of discrimination that suppresses people's vital health
interests can be based as much on economic and gender inequality as it
can be on homophobic discrimination.
[92] Women are vulnerable to HIV infection because as a class they
suffer systematic discrimination. [93]
- A women's
safety in sexual relations is compromised, by, for example, gender
norms which assert that women should be submissive and passive as this
impedes on their ability to negotiate safe sex with their
partners.[94] For example, a Rhode Island Rape Center study of 1,700
sixth-and ninth-graders found that 65% of boys and 57% of girls
believed it acceptable for a male to force a female to have sex if
they've been dating for six months.[95]
- Furthermore,
women who do attempt to negotiate safer sex with male partners risk
physical abuse. In most societies women continue to be subject to
indiscriminate violence, particularly of a sexual character, which
exposes them to the risk of contracting HIV/AIDS as a consequence of
dangerous behaviour patterns and practices on the part of their
husbands or partners.[96]
- Indeed, studies
have shown that monogamous married women in East Africa are largely
contracting AIDS, not because of the inaccessibility of condoms or
lack of education with respect to HIV but because of their inability
to control their husbands' sexual conduct and to refuse unwanted
intercourse.[97] Thus, exhorting women to "just say no" or to engage
in safer sex practices does not assist women who are often vulnerable
in marital and sexual relationships and consequently do not have the
ability to exercise control over their sexual health.[98]
- Thus, as stated
by Peter Piot, head of the Joint United Nations Program on HIV/AIDS (UNAIDS),
"social, sexual and economic[99]
discrimination experienced by women, though always egregious, now
threatens their lives."[100]
Challenging Discrimination: An Option or an Obligation?
First the Nazis went after the Jews,
but I was not a Jew, so I did not object. Then they went after the
Catholics but I was not a Catholic, so I did not object. Then they went
after the Trade-Unionists, but I was not a Trade-Unionist, so I did not
object. Then they came after me, and there was no one left to object
(Martin Niemoller, a man who lived during Hitler's rule in
Germany).[101]
- It has been
shown that discrimination has a profound impact on how a given
individual can protect him/herself from HIV infection or maintain
his/her health and welfare while living with HIV/AIDS.[102]
Significantly, much of this discrimination is propagated at an
individual and at a community level as a result, for example, of our
homophobic attitudes.
- Accordingly, it
is submitted that in practicing discrimination and in not accepting
our responsibility for removing discrimination then in the context of
HIV/AIDS we have effectively become the "willing executioners" of a
deadly virus.
- However,
critics of the label "willing executioners" may contend that such a
tag may be applicable to those who practice discrimination but is
inappropriate for those that do not. Yet, such a criticism ignores and
essentially misses the point that HIV/AIDS has emphatically
highlighted that we all have a responsibility for removing
discrimination.
- This is the
case because the reality is that silence on issues of discrimination
has a similar effect to blatant forms of discrimination[103] in terms
of accentuating the risk of infection for minority groups and
maintaining the pernicious impact which discrimination has on those
people living with HIV/AIDS.[104] Christopher Kendall, for example,
writes that "silence" in relation to homosexual issues or the mere
failure to raise this issue, is not necessarily homophobic, in that no
hatred or fear of lesbians and gay men is expressly stated, but it
nonetheless reinforces the view that only heterosexuals exist or
matter.[105]
- This point
highlights that although our silence on issues of discrimination may
not be deliberately exclusionary, its effect on those who have been
marginalised is to ensure that they remain marginalised[106] and in
the context of HIV/AIDS therefore sustains the specific vulnerability
of marginalised groups towards infection. The Martin Niemoller quote,
given above, aptly sums up the problem of being silent and not being
responsive to issues of discrimination, as his silence led to an
environment which effectively legitimised and made acceptable the
horrific violence undertaken by the Nazis earlier this century.
- Accordingly,
unless we challenge discrimination we retain and uphold our present
role of being "willing executioners" as the consequential impact of
discrimination in the context of HIV/AIDS makes it an inescapable fact
that we cannot take a dispassionate or indifferent view of
discrimination.
- Indeed,
privileged members of society in this regard have a greater
responsibility to ensure that the voices of those people denied
expression are heard as they are in the best position in which to
combat discrimination.[107]
- To my mind,
anyone who stands by the values of justice and respect for dignity of
all persons must take an active part in the fight against HIV/AIDS by
challenging discrimination, for in the words of Kofi Annan, "AIDS is
everybody's business."[108] This necessity is most eloquently summed
by Martin Luther King who once proclaimed that, "We shall have to
repent in this generation, not so much for the evil deeds of wicked
people, but for the appalling silence of the good people."[109]
- Naturally, the
government also has an obligation to change their response to the
HIV/AIDS epidemic as will now be discussed.
The
Necessity of Changing Government Inaction to Government Action
Was I sleeping, while the others
suffered? Am I sleeping now? Tomorrow, when I wake, or think I do, what
shall I say of today? ...At me too someone is looking, of me too someone
is saying, he is sleeping, he knows nothing, let him sleep on. I can't
go on! (Samuel Beckett's Waiting for Godot).[110]
- Put simply, as
HIV/AIDS has primarily affected marginalised populations, such as gay
men, governments have been less committed to forcefully fighting the
rampant discrimination which is associated with this infection. For
example, President Ronald Reagan made his first public mention of
"AIDS" in a speech delivered on 31 May 1987, nearly seven years after
the illness had first appeared.[111]
- In contrast,
only two days after the outbreak of Legionnaire's Disease had been
announced, the President of the United States had been photographed
holding an emergency meeting in the Oval Office to deal with the
outbreak.[112] More telling, is the reality that governments only
began to devote resources towards HIV/AIDS and take the disease
seriously when it was realised that the general population was also at
risk and not just gay men.
- Indeed, as
HIV/AIDS still primarily affects marginalised populations, governments
remain less committed to fighting the disease or the extensive
discrimination associated with the disease.[113] This is most clearly
portrayed in the denial and even banning of certain gay education
material by the government in recent times[114] in spite of the
established reality that access to education concerning HIV/AIDS
issues is widely recognised as an essential "life-saving" component of
effective prevention and care programs.[115]
- Hence, in
reference to the Samuel Beckett quote, this should be the question
posed to the state: "Are you sleeping? Can you go on doing
nothing?"[116] The more pertinent question as such becomes what the
state should do in relation to the HIV/AIDS epidemic.
- It has been
demonstrated that a person's likelihood of becoming HIV-infected and
receiving adequate care is largely influenced by the environment in
which they live, so a narrow traditional public health approach
focused on the individual and disconnected from a societal context
will be of minimal effectiveness.[117] When, HIV/AIDS is viewed in its
social dimensions, as it must be, it becomes apparent that it is a
phenomenon which is inextricably linked to human rights.[118]
- In short,
violations of human rights, especially systemic discrimination against
marginalised groups in society, "disempowers these groups to avoid
infection and to cope with HIV/AIDS, if affected by it."[119] For
example, the violation of the right to education and information about
HIV for gay youth creates an environment of increased risk for their
health. Thus, as stated by UNAIDS, governments must adopt a human
rights approach in combating this epidemic, otherwise the,
"alternative is the avoidable infection and early deaths of millions
of young people."[120]
- By adopting a
human rights approach the state would foster a supportive and enabling
environment making health choices possible or easier for marginalised
individuals[121] and thereby shed themselves of the label of "willing
executioners."
The
Legal Context
Interdependence of Human and the Law
The institution of basic human rights
may well decide who wins the battle between HIV and humans. If this is a
championship fight, we are in the tenth round already and well behind on
points. Those who trivialise human rights are helping to fuel this
epidemic. (J.M.Dwyer).[122]
- As Peter Piot
stresses, the human rights of marginalised groups have always been
imperfectly realised with tragic consequences.[123] But the presence
of HIV means "failure to protect them becomes even more
life-threatening."[124] Only with such protection will these people
enjoy and have the right to an environment supportive of behaviour
change. Safeguarding human rights is as such, "essentiality, not a
luxury."[125]
- Since laws
regulate the conduct between the State and the individual and between
individuals, they provide an essential framework for the observance of
human rights.[126] In fact, it has been generally accepted, that a
coercive legal response directed at those most likely to suffer from
HIV/AIDS has, by and large, not been adhered to by Australian
governments.
- This response
from the law stems from the fact that it is now being increasingly
acknowledged that coercive laws, far from encouraging conduct that
will reduce the spread of HIV, "may actively impede prevention efforts
by alienating those people who are most at risk of HIV infection and
making it less likely that they will cooperate in prevention
measures."[127]
- It is
imperative as such that the law introduces measures that protect the
rights of people most at risk of infection. One way in which it is
claimed that this has been done in Australia is through the
proliferation of anti-discrimination legislation. The Disability
Discrimination Act 1992 (Cth) makes it illegal to discriminate on the
basis of a person's HIV/AIDS status. Thus, the question which needs to
be addressed, is whether anti-discrimination legislation provides
adequate or effective protection against discrimination associated
with HIV/AIDS.
Anti-Discrimination Legislation
- Although
describing anti-discrimination legislation as tokenistic has become
something of a cliché, "tokenism" does nevertheless most aptly
encapsulate its essence (Margaret Thornton).[128]
- In spite, of
the high levels of discrimination against people living with HIV/AIDS
and the existence of anti-discrimination laws which provide mechanisms
for individuals to seek redress, few complaints of HIV/AIDS
discrimination are lodged. In the period 1997-98 only a paltry 0.5% of
all complaints received by the New South Wales Anti-Discrimination
Board were on the grounds of HIV/AIDS discrimination.[129]
- This was the
lowest recorded figure out of all possible grounds of complaints
received by the NSW Anti-Discrimination Board in this period. In fact,
the low level of complaints is also reflected at Commonwealth level,
illustrated in the fact that only two disability complaints for
HIV/AIDS related discrimination were received by the Human Rights And
Equal Opportunity Commission (HREOC) in 1997-1998.[130]
- Indeed, the
inquiry by the Anti-Discrimination Board in New South Wales into
HIV/AIDS related discrimination reached the conclusion that
considering that HIV/AIDS related discrimination is both extensive and
pervasive, the number of complaints received were, "nowhere near
representative of the extent of discrimination experienced by people
infected with HIV or ill with AIDS."[131]
- Thus, the low
levels of complaints is suggestive, given the high incidence of
HIV/AIDS related discrimination as documented in Part I of this paper,
that anti-discrimination laws are not a useful tool for protecting the
human rights of marginalised groups in society. Hence, it is desirable
now to consider the efficacy of anti-discrimination legislation.
Existing Laws
- The Disability
Discrimination Act 1992 (Cth) prohibits discrimination on the ground
of disability in employment, education, accommodation and the
provision of goods and services. Disability includes the presence of
organisms, causing, or capable of causing disease or illness.[132]
HIV/AIDS clearly falls within this definition.
- All States and
Territories, with the exception of Tasmania, have laws prohibiting
discrimination on the ground of impairment or disability in
employment, education, accommodation and the provision of goods and
services.
- Tasmania's
Anti-Discrimination Bill has been passed, but not proclaimed.
Consequently, at present, the only available anti-discrimination
remedies for people living with HIV in Tasmania are those provided
under the Commonwealth Disability Discrimination Act.[133] However,
HREOC has fundamental problems of its own which acts as a disincentive
to the lodging of a complaint.
Problems with Enforceablity
- In essence, the
major problem with making a complaint under Commonwealth legislation
is that determinants made by the Human Rights and Equal Opportunity
Commission are expressly stated not to be binding on the parties. The
High Court in Brandy v Human Rights and Equal Opportunity Commission
(HREOC)[134] made this clear when it ruled that HREOC does not have
the power to make enforceable decisions in discrimination cases except
where the Commonwealth Government is the alleged discriminator.
- This means in
order to obtain an enforceable decision against a respondent, under
Commonwealth anti-discrimination laws, the case must be heard in the
first instance by HREOC, and then de novo by the Federal Court.[135]
Naturally, this deters many potential applicants from lodging
complaints.
- This is
reflected in a policy paper commissioned by the Legal Working Group of
the Australian National Council on AIDS and Related Diseases (ANCARD).
All Disability Discrimination Law Commissioners interviewed cited the
current situation[136] where complainants have to consider the
prospects of two hearings, as the most significant disincentive to
lodging a complaint under the DDA in the first instance.[137]
- Therefore,
there are significant barriers to the use of remedies under
Commonwealth anti-discrimination laws[138] and this is consequential
as people in the jurisdictions of Tasmania and South Australia depend
on the federal legislation for redress to HIV/AIDS related
discrimination. [139]
- Sadly, problems
of enforceability are not limited to Commonwealth legislation, but it
is also a problem which pervades state anti-discrimination
legislation. In short, Western Australia, New South Wales and Victoria
are the only states where representative complaints can be
lodged.[140] The importance of representative complaints being lodged
cannot be overlooked as the energy and expense required and scope for
publicity may deter individuals suffering from HIV/AIDS, but not
interested organisations from seeking redress for discrimination.[141]
- In addition,
the reality that complainants with HIV/AIDS may be ill or dying before
the case is finalised means that those jurisdictions which do not have
provisions for representative complaints on behalf of an aggrieved
individual effectively allow substantial levels of discrimination to
go unchecked.[142]
- Hence,
anti-discrimination legislation is flawed in the sense that too much
emphasis is placed upon an individual-complaint process and this is
especially problematic in the case of HIV/AIDS.[143]
Impact
of Delays and Limited Range of Remedies
- Exacerbating
the relatively weak enforcement structure of anti-discrimination
legislation is that many people discriminated against do not bring
proceedings under the relevant legislation because of the delays
involved and the limited range of remedies available. Delays occur
allocating complaints to investigating officers, and there are often
extended delays at the assessment and investigation phases.[144]
- If a complaint
is not settled, there are considerable delays associated with referral
and a formal hearing.[145] Yet, the need for speedy and effective
administrative remedies is especially important in the context of
HIV/AIDS because the complainant may be ill or dying and as such will
be deterred by possible delays from pursuing legal action.[146] This
is reflected in a comment by, Paul Garde, a representative of the
HIV/AIDS Legal Centre (NSW) who stated:
I am finding that less clients are
lodging complaints...I have to tell my clients that there will be a nine
month delay before the Anti-Discrimination Board will do anything. So
that's causing people to think twice about even bothering to lodge a
complaint.[147]
- The problem of
delays in anti-discrimination legislation is most graphically
illustrated in the fact that the withdrawal rate of complaints
reported by the New South Wales Anti-Discrimination Board was as high
as 50 per cent in 1997-98.[148]
- Further
limiting anti-discrimination legislation is the relatively modest
remedies that tribunals provide. This is highlighted in the fact that
punitive damages are unavailable under anti-discrimination legislation
in cases of intentional discrimination.[149] Accordingly, many
possible complainants will not pursue relief, as they do not see it as
worth the trouble, given the limited range of remedies available under
anti-discrimination legislation.
Limited Scope of Anti-Discrimination Legislation
- The scope of
anti-discrimination legislation slightly varies from state to state.
Broadly speaking, the areas in which discrimination is made unlawful
by State legislation, are generally, employment, education,
accommodation, the provision of goods and services; qualifying bodies,
and professional, trade, employer or other organisations; sport; trade
unions; and clubs or associations.
- However, what
is common to all jurisdictions is the circumscribed scope of
anti-discrimination legislation in the sense that it only offers
protection in the areas outlined above and as such does not extend to
discrimination that occurs outside these spheres.[150]
- Moreover, the
exceptions within the areas covered by anti-discrimination legislation
considerably limit the ambit of anti-discrimination legislation.[151]
This is clearly portrayed in the fact that of the 72 sections of the
Victorian Equal Opportunity Act which prohibit discrimination, 52
contain exemptions.[152]
- Indeed, the
restricted scope of disability discrimination acts in all states is
best illustrated in the fact that, unlike such factors as race or
gender, an employer is not absolutely barred from taking into account
a person's handicap but is only required to make reasonable
accommodations for the handicap.[153] This means that this exception
can be argued by an employer by way of defence to a complaint under
HIV/AIDS grounds but not in relation to other grounds such as sex or
race.[154]
- The New South
Wales Anti-Discrimination Act further permits employers to
discriminate against individuals who, with reasonable accommodation,
cannot perform or are presumed to be incapable of performing all job
tasks because of physical impairment based on their subjective
assessments.[155] In the case of Jamal v Secretary, Department of
Health[156] Samuels J.A. stated in relation to this exception of the
NSW Act[157] that in ascertaining the perceptions of the employer,
"the reasonableness or otherwise of the employer's view is irrelevant
save as a means of assessing whether the view asserted was honestly
held."[158]
- This view is
contrary to the reality that if occupational health and safety
procedures were properly implemented and followed, then the risk of
becoming infected in the high-risk employment areas would become
negligible.[159] Such an exemption, therefore, enables irrational
views of uninformed members of the public based on fear as to modes of
transmission of HIV to be propagated, and ultimately promoted in the
workplace and other contexts.[160] The effect of this loophole is
amplified in the case of asymptomatic HIV-positive persons who are
only held back by community's stereotyped prejudice and attitudes in
attempting to participate fully in the community.[161]
- Consequently, a
number of different exceptions not only significantly curtail the
scope of the HIV/AIDS grounds in the different statutes but also serve
to justify discrimination in certain circumstances.
Adequacy of Using a Disability Model to Cover HIV/AIDS Related
Discrimination
- In order to
include HIV/AIDS discrimination into existing anti-discrimination
legislation disability discrimination laws were revised to include
HIV/AIDS into their definitions.
- However, the
fundamental problem with using a disability model to cover HIV/AIDS is
that the disability model is essentially based on a medical rather
than a social model of disability.[162] The problem in this regard is
it raises the issue of whether a person, who is HIV positive, but has
not yet progressed to AIDS is covered under disability legislation.
This is an issue because the reality is that asymptomatic infected
individuals[163] appear as healthy and able-bodied as the uninfected,
or develop symptoms no worse than a heavy cold.[164]
- For example,
physical impairment is defined in the NSW Anti-Discrimination Act 1977
as, "any defect or disturbance in the normal structure and functioning
of the person's body."[165] Accordingly, one Australian commentator
has suggested that seropositivity may not be protected under NSW
legislation for the formation of antibodies to a virus is a normal
bodily process and that similarly, a healthy person "who is antibody
positive does not have a bodily malfunction" or a "total or partial
loss of any function of the body."[166]
- However, this
conclusion seems unlikely given the judgment in Kitt v Minister for
Tourism[167] where it was stated that the "concept that the community
attitudes to the person's impairment might be responsible for the
limitation in life activities is expressly imported into the
definition of physically handicapped person." Whilst, the decision in
Kitt's[168] case may go some way towards overcoming the difficulties
of interpretation and definition of impairment in such circumstances,
it remains that these difficulties are not conclusively resolved.[169]
- Indeed, in some
jurisdictions there remains considerable doubt as to whether the
status of being asymptomatic HIV positive is covered by the definition
of physical impairment in disability legislation. The South Australian
Act defines physical impairment as a "partial loss in the body's
functioning" and "a malfunction of a bodily function."[170] The focus
as such seems more clearly on the degradation of the body.[171]
- Hence, there is
some doubt whether the South-Australian anti-discrimination law covers
asymptomatic infection and at present there is no answer to this
issue, as it has not been the subject of any judicial determinations
thus far. The uncertainties about the inclusion of HIV infection
within the definition of handicap in the South Australian Act and, to
a lesser extent, the New South Wales Act, as such problematises the
protection which disability discrimination acts offer infected
individuals.
- Overall, it is
evident that anti-discrimination legislation in Australia is largely
ineffectual to the needs of the people whom the grounds purports to
protect. This highlights that the problems associated with and which
stem from HIV/AIDS related discrimination cannot be adequately
addressed through legislative action only.
- Indeed, the
lack of effectiveness of anti-discrimination legislation raises the
further question as to whether the law has or should have any role in
the HIV/AIDS epidemic. Such a question necessarily entails a
discussion of the application of the law in relation to cases
involving applicants with HIV/AIDS.
Artificiality of Legal Reasoning
Let the shameful walls of exclusion
finally come tumbling down (Thomas Jefferson in a letter to Samuel
Kercheval).[172]
- In IW v The
City of Perth & Ors[173] the High Court held that the Council of the
City of Perth did not discriminate when it refused a planning permit
for a drop-in centre for people with HIV/AIDS. The Council had
justified refusing the planning permit on the basis of assumptions
such as most people who would use this centre would be drug
users.[174]
- The majority in
this case ruled that the Disability Discrimination Act did not apply
to the Council as such legislation is limited to the providing of
services. They held that as wide as the definition of "services" is,
it is not capable of including a refusal to exercise the statutory
discretion to approve the use of premises.[175]
- Yet, as Justice
Kirby argued in his dissenting judgment, this view means that we,
"accept that the Act on the one hand acknowledges the way in which
people discriminate undesirably on the ground of stereotyped
characteristics whilst withholding a remedy where much discrimination
is shown."[176] Thus, far from correcting the misconceptions espoused
by the Council of the City of Perth the majority of High Court judges
merely reinforced such views by dismissing the appeal.
- This decision
as such brings forward the question of whether anti-discrimination
legislation is really there to eradicate discrimination as the Council
in effect were allowed to practice discrimination, and on the basis of
a technicality could not be forced to correct such behaviour.
- What is more
disturbing about this result is that every complainant with the
exception of one, had died by the time litigation of this case reached
the High Court[177] and yet the decision remained unaltered. This
forcefully illustrates that the law rather than assisting in
eradicating discrimination can be plausibly argued to be actually
perpetuating it.
- Indeed, such a
conclusion seems further warranted when one considers the case of In
the marriage of B and C.[178] This case concerned the question of
whether a father who had contracted AIDS could regain[179] access to
his three-year old child. Counsel for the father in this case argued
that the court should play an active role in counteracting the sorts
of unreasonable fears and discriminatory attitudes regarding HIV/AIDS.
- The judge in
this case rejected this argument asserting that, "if there is
unreasonable community superstition and prejudice the Court cannot
change that…it has no role to educate the community in relation to
this matter."[180]
- Accordingly,
the judge ruled that because of the potential detrimental effect on
the child's welfare by social ostracism, which might flow from the
child's association with a person with AIDS, the father's claim for
access must be denied. Thus, the court far from expressing disapproval
of discriminatory attitudes, instead legitimised the irrational fears
of others by according them decisive weight.[181]
- Significantly,
the judge by law had such a legal outcome available to him in framing
his decision, namely that the Family Court's determination be "in the
best interests of the child." Thus, in a technical sense the law
practically enjoined the judge to come to such a conclusion, as the
judge was putting into action a legal consequence available to him.
- This outcome
highlights that the law has become a "willing executioner" as it can
be seen to be reinforcing discrimination by not doing anything[182]
about and not having to do anything about society's misconceptions and
discriminatory attitudes.
-
Anti-discrimination and other laws have not seen the "walls of
exclusion come tumbling down." Consequently, it would appear that the
law has no role to play in the AIDS epidemic. Indeed, some
commentators argue that the laws best response to the HIV/AIDS
epidemic would be an absence of laws, rather then the proliferation of
anti-discrimination legislation.[183]
- However, such a
conclusion is too simplistic as it closes any possibility of engaging
with the law in an effort to end HIV/AIDS related discrimination.[184]
In fact, it will be shown that the law can be a possible site for
social reform and as such can serve a useful purpose in assisting
strategies aimed at mitigating the impact of HIV/AIDS on those
infected and in reducing its spread amongst marginalised populations.
Law as
an Instrument of Social Change
I also value human rights and the
principle of equal treatment. These are precious bulwarks against
vulnerability and oppression, and it is almost axiomatic that the
clearest perception of the need for these rights comes from those who
lack them (His Honour Chief Justice Alastair Nicholson).[185]
- The issue which
needs to be considered is whether the law can be deployed to address
the problem of HIV/AIDS related discrimination and accordingly whether
it has any role in achieving the goals of public health strategies in
relation to HIV/AIDS. Considering that societal discrimination
amplifies the risk of HIV/AIDS infections for marginalised groups and
intensifies the impact of infection for those affected, then such a
question is intimately related to whether the law can be used as an
instrument of social change.
- Whilst the
instrumental value of the law has already been shown to be
ineffective, it remains that there are other implications of a
particular legal intervention which can impact on social
transformation.
Ideological Function of the Law
- Cotterrell
argues that as legal doctrines are seen to elaborate or apply shared
values then it has an important function.[186] The fact is that in a
modern secular democratic society the norms and values are to a large
extent embodied in the legal system.[187] Thus, the assumption that
the law reflects the consensus in society is important not in its
actual sense but in terms of its ideological value.
- The point is
that legal representation carries with it a legitimating of ideas in a
way in which other institutions, such as the media, do not, as it
claims to speak as one of the primary voices of the modern liberal
state.[188] Hence, the law by espousing norms of non-discrimination in
the form of anti-discrimination legislation is significant and indeed
imperative as they can contribute to establishing the legitimacy of
non-discrimination in society. This, in turn, may foster a social
climate more supportive of people living with HIV/AIDS and those most
at risk of contracting it.
Symbolic
Function of the Law
- Indeed, the law
and in particular anti-discrimination laws also have a symbolic or
educative function.[189] Put simply, anti-discrimination laws by their
very existence, are symbolic statements which serve to tell people
that discrimination is not acceptable in our society. In this way, the
law can be an agent of social change by serving to teach people that
discrimination on the basis of HIV/AIDS status or presumed status is
unacceptable.
- In fact,
earlier this year the Victorian Civil and Administrative Tribunal
handed down a landmark decision in, Hall v Victorian Amateur Football
Association[190] when they gave clearance to an HIV positive
footballer to play in the Victorian Amateur Football League.[191]
- Quite apart,
from the significance of the individual victory, the decision is
significant for its wider impact in conveying an important message to
the community about the very low risk of HIV transmission, even in a
contact sport such as Australian Rules Football, where injuries
resulting in blood loss are a real possibility.[192] In so doing, the
decision will serve to dispel many of the misconceptions and
prejudices associated with HIV/AIDS.[193]
- Therefore, even
when it is accepted that the law has severe limitations as a means of
social change it is still the case that the ideological and symbolic
functions of the law are particularly significant in the field of
discrimination. Hence, whilst the consequence of anti-discrimination
legislation may not be the actual eradication of discrimination it can
be a tool to dismantle the discourse of prejudice in society.
- However, the
limited instrumental value of the law does raise the question as to
why the law stops at "half-hearted" symbolic legislation. If it can be
argued that the law can be an instrument of social change but there
are very real limits as to its potential then the next step must be to
examine these limits of law.
Limitations of the Law: Self-Imposed or Inherent?
- Given, the
limitations outlined above in terms of anti-discrimination legislation
and the law in general, it is necessary to ask whether the current
limits to the law in relation to combating discrimination are a
reflection of the limitations of the law or how we choose to implement
it.
- It can be
safely asserted that using the law to eradicate discrimination in
society has definite limits for as Peter Newsam, the former Chairman
of the Commission for Racial Equality states, "you can't legislate for
what people think."[194]
- Furthermore,
in the context of HIV/AIDS the reality is that many people affected by
HIV/AIDS who suffer discrimination will be resistant and unlikely to
use the law as a means of possible redress, due to the public nature
of the law and the consequent fear of further reprisal and
discrimination.
- An individual,
who had suffered a breach of confidentiality in the workplace, voiced
this feeling. When asked whether he had considered legal action, he
replied "Legal Action? That's an even greater breach of
confidentiality, isn't it."[195] In truth, many persons living with
AIDS just do not want the burden of a legal battle in what may be the
final months or years of their lives.[196] Hence, it is apparent that
there are enduring limitations on the ability of the law to prevent
HIV/AIDS related discrimination.
- Yet, in recent
times the state has actually decreased funding to anti-discrimination
bodies and human rights bodies and thereby hindered their ability to
advocate for those who do suffer from HIV/AIDS related
discrimination.[197] Accordingly, this consequence can be read to be a
self-imposed limitation of the law rather than an inherent one.
- Moreover, many
of the weaknesses of anti-discrimination legislation are reflective of
imposed limits rather then real limits due to the cautious approach of
the state when enacting anti-discrimination legislation. For example,
the weak enforcement structure of anti-discrimination legislation and
the broad range of exceptions which it allows are not a necessary
detail of disability discrimination acts.[198]
- In the words of
the Chief Justice of the Family Court of Australia, His Honour Chief
Justice Alastair Nicholson, "all too often anti-discrimination laws
contain unsatisfactory compromise provisions to appease the more
conservative wings of the parties introducing them."[199] Thus, the
conclusion can be drawn that the current extent of the limitations of
the law in relation to combating HIV/AIDS related discrimination is a
reflection of the unwillingness of the law rather than its inability
or capacity to make significant changes in this area.
- To sum up, the
law cannot be relied upon as the only means, given its limitations, by
which to educate, change attitudes, achieve behavioural change or
protect people's rights in the context of HIV/AIDS.[200] However, at
the same time, while there are limitations to the law it has been
shown that the law can be an important site for social change.
- Indeed, it has
been shown that the reality is that much less is being done by the law
than what could be done. Given the consequential impact of
discrimination in the context of HIV/AIDS then the simple fact is that
the law can and should do more.
- Accordingly, as
Hamblin states the law needs to be used as a "sword rather than a mere
shield" by "seeking to change underlying values and patters of social
interaction that create vulnerability to the threat of HIV
infection."[201] This approach entails using the law proactively to
eradicate discrimination. Such a role is necessary, as it would serve
to promote a supportive and enabling environment conducive to positive
behaviour change and therefore complement public health campaigns and
prevention campaigns regarding HIV/AIDS.[202]
- An essential
part of this enabling environment involves the empowerment of gay men,
women and other vulnerable groups by improving their legal status so
as to restore a sense of control over health status to these
groups.[203] In order to prove these assertions it is essential to
discuss the benefits of adopting a proactive approach from the law
using specific examples.
Benefits of Adopting a Proactive Stance
The most effective strategies that we
have so far found to help promote reduction of the spread of HIV involve
the adoption of laws and policies which protect the rights of people
most at risk of infection. This may seem surprising. It is a paradox.
But it is so (Justice Michael Kirby).[204]
- It has been
shown already that anti-discrimination legislation is largely
"tokenistic."[205] The lack of effectiveness of anti-discrimination
legislation in the context of HIV/AIDS indicates that this is a
primary site for legal reform as will now be discussed.[206]
HIV/AIDS as a Separate Ground of Discrimination
- The problems
that arise with placing HIV/AIDS under Disability Discrimination
Legislation, such as definitions of handicap/impairment can only be
definitively resolved by amendments to the Anti-Discrimination Act so
that HIV/AIDS is a separate ground of complaint.[207] That is,
specific legislation should be passed protecting those with HIV.
- Admittedly,
most anti-discrimination legislation would appear to cover
asymptomatic HIV infection as a disability for the purposes of
anti-discrimination law. However, this does not necessarily mean that
there will not be problems with this in the future. Indeed, a narrower
reading of disability discrimination laws in this regard is possible
and even plausible in the future given the medical advancements in the
treatment of HIV/AIDS sufferers.[208] That is, with the advent of
protease inhibitors and combination theories, many but not all, people
with HIV/AIDS are living longer and enjoying better health.
- While these
therapies have produced considerable benefits, the presumption that
people with HIV/AIDS can now lead relatively healthy lives is
dangerous.[209] For example, it has already resulted in a tendency to
become more restrictive in determining whether asymptomatic infected
individuals qualify for disability benefits in Canada.[210]
- In addition, in
America, under the Americans with Disabilities Act in recent times the
Supreme Court in Bragdon v Abbot[211] held that asymptomatic HIV
infection is a "disability" under the ADA because it "substantially
limits" the "life activity of procreation."[212] However, it was also
stated in that case that, "presented with other facts and
circumstances in a future case, perhaps reflecting dramatic
improvements in medical science...we might well reach a different
conclusion than the one we reach today."[213] Hence, the Abbot court
envisioned a future in which the disease would be less threatening,
and therefore, potentially not a protected disability at all.[214]
- Yet, people
with HIV/AIDS are impaired from participating fully in community life
not because of any personal defects or deficiencies but rather because
of people's misconceptions and prejudices surrounding the
disease.[215]
- Thus, in order
to shift the focus back to the alleged discriminator's intent and away
from the alleged victim's physical condition, HIV/AIDS needs to be
legislated in a separate model.[216]
- Furthermore, by
legislating HIV/AIDS as a separate ground of discrimination this would
send an even more powerful message to the community that
discrimination on the basis of HIV/AIDS is unacceptable, as it would
make the rights of those who have suffered HIV/AIDS related
discrimination clear, enforceable and known by all parties.
- Similarly,
there are also considerable benefits to be gained by improving the
legal status of marginalised populations. This will now be
demonstrated by looking at what a proactive response from the law
would entail and accomplish for gay men in the context of HIV/AIDS.
- Previous
arguments in support of homosexual law reform can be broadly described
as having developed around frameworks such as the need for equality
and the respect for privacy.[217] Whilst these arguments are in
themselves ample justification for the law to improve the legal status
of homosexuals, it is the contention of this paper that HIV prevention
requires the consideration of new factors.[218] In other words, the
protection of their health makes such law reform an inescapable
necessity. Some specific areas in which law reform in this regard is
required will now be considered. [219]
Equalising the Age of Consent
- Only three
Australian jurisdictions (Australian Capital Territory, South
Australia and Victoria) currently have the same age of consent for gay
men as for either lesbians or heterosexuals. In New South Wales and
the Northern Territory the age of consent is 16 for heterosexual sex
and 18 for homosexual sex. Whilst, in Western Australia, the age of
consent for sexual relations between males is set at twenty one, three
years higher than for heterosexuals and lesbians.
- Besides the
obvious unfairness of "gay men being arrested for having consensual
sex with someone who could legally have sex with a female", these laws
also have a major impact on the self-esteem and sexual development of
younger gay men, and accordingly greatly hinder public health
policies.[220] Stevie Clayton Co-convenor of the Gay and Lesbian
Rights Lobby notes:
Framing our laws [Western Australia] in
such a way as to require gay men to wait until they are 21 before they
can be sexually active, does not prevent such activity, it simply helps
to create an environment where young men are secretive about their
sexual conduct, are often forced to have anonymous sex such as at beats,
have low self-esteem, and develop a negative attitude to a society which
they see as oppressing them.[221]
- Moreover, age
of consent laws that discriminate against those engaging in consensual
same sex sexual behaviour not only add to the lack of self esteem and
isolation experienced by young gay men, they also discourage those
best positioned to alleviate these feelings from doing anything about
it.[222]
- In short, laws
such as section 78Q(2) of the NSW Crimes Act in effect make it illegal
to counsel young gay men about safe sex and as such impedes the
delivery of HIV information and education for homosexually active
young men.[223] Section 78Q makes it an offence, punishable by up to 2
years imprisonment, to solicit, procure, incite or advise a boy under
18 to commit or be a party to sexual relations with another male.
- Accordingly,
health professionals may be reluctant to provide services to young gay
men, on matters such as condom use and safe-sex guidelines because of
a concern that they may be charged with aiding the commission of a
criminal offence.[224] This is reflected in a Discussion Paper on
HIV/AIDS Prevention Homosexuality and the Law, which found that HIV
educators employed by Health Departments and non-government
organisations reported that age of consent laws in relation to
homosexual behaviour was an impediment to their work.[225]
- In addition,
these laws make it difficult for gay community and/or AIDS
organisations[226] to conduct programs such as peer education which
have been demonstrated to be most effective in persuading homosexual
men to adopt and maintain safer sexual practices.[227]
- Furthermore,
equalising the age of consent would have the added benefit of making
young gay men less wary of using mainstream services and hence would
make them more amenable to seeking advice and support from health
workers and doctors.[228]
- Hence, a
supportive and enabling environment to achieve and reinforce
behavioural change among young gay men and thereby reducing their
vulnerability towards contracting HIV/AIDS makes unequal age of
consent laws indefensible and in need of urgent amendment.
The
Law Reform (Decriminalisation of Sodomy) Act 1989 (Western Australia)
- In 1989 the
Western Australian Government passed the Law Reform (Decriminalisation
of Sodomy) Act, which legislated for consensual same sex activity.
However, the Preamble to this Act condemns homosexuality by making
five statements expressing Parliaments disapproval of
homosexuality.[229] Put simply, such a Preamble replaces criminal
sanctions against homosexual behaviour with social condemnation as it
serves to reinforce the stereotype that homosexuality is an
"unacceptable" lifestyle.[230]
- Consequently,
as Justice Michael Kirby stated when President of the New South Wales
Court of Appeal:
... parliamentary denunciations of
homosexual conduct, as representing the express opinion of the
representatives of the community are not helpful in removal of the
sources of alienation which can contribute to not only personal
unhappiness, but also to activity which is through ignorance or
otherwise likely to cause the spread of the virus."[231]
- More
significant still, in the context of HIV/AIDS, the Law Reform
(Decriminalisation of Sodomy) Act created a new offence prohibiting
the promotion and encouragement of homosexual behaviour. Section 23 of
Part 2 of the Law reform (Decriminalisation of Sodomy) Act, entitled
"Proselytising Unlawful", reads:
It shall be contrary to public policy
to encourage or promote homosexual behaviour and the encouragement or
promotion of homosexual behaviour shall not be capable of being a public
purpose.
- In a similar
vein, Section 24 of the Act provides that it shall be:
unlawful to promote or encourage
homosexual behaviour as part of the teaching in any primary or secondary
educational institutions.
- Given such
legislation, one needs to query whether it is in fact possible to
implement the types of strategies needed to reduce the level of
HIV/AIDS transmission in Western Australia.[232] After all, safe sex
education campaigns and positive images of same sex sexuality aimed at
gay youth, could be seen as contravening the anti-proselytising
element of this section if they are interpreted as "promoting
homosexuality."[233] In addition, this section further dissuades
health workers from providing information to gay men about safe sex as
it may render them guilty of an offence.[234]
- Likewise,
within the school environment, section 24 could intervene to prevent
any same sex educational programs being implemented as again this
might be seen to be promoting homosexuality for the purposes of this
section.[235] In short, these sections of the Decriminalisation of
Sodomy Act makes any frank and open discussion of homosexuality
potentially very difficult.[236] This works contrary to HIV/AIDS
prevention programs which are designed to gain the confidence of gay
youth and promote their self-esteem in order to achieve long-term
sustained behaviour change within this group.
- Therefore, a proactive approach from the law
would require that section 23 and section 24 of the Western Australian
Criminal Code Amendment Act (1989) be repealed and the Preamble
removed from the Act in order to make social and physical environments
"health enhancing."[237]
Recognising Same Sex Relationships
- Family law,
through the Federal Marriage Act or State-based de facto legislation
confers a certain legal status on heterosexual relationships from
which various rights flow. Apart, from the ACT[238] and NSW[239] these
benefits are not made available to gay men or lesbians in a
relationship.
- However, apart
from the material benefits which recognition of same sex relationships
would confer on same sex couples, in the context of HIV/AIDS such
recognition is important for the normative value it would provide for
gay men. In the words, of Stevie Clayton:
Legal recognition of same-sex
relationships will be the most significant change for lesbians and gay
men in recent times, not just because it changes laws which impact on
their daily lives, but because it will change both the way society looks
at homosexuals and the way homosexuals look at themselves.[240]
- Another author
writes, that the knowledge that society and the law condemn their
personal relationships can be very difficult for young gay men who are
coming to grips with their sexuality, as it serves to merely reinforce
the morally blameworthy views which gay men, especially young gay men,
have of themselves.[241] Legalising same sex relationships may as such
spare young gay men the inner turmoil and isolation which often
accompanies the early stages of realising their sexuality.[242]
- It has already
been demonstrated that such inner turmoil can lead to young gay men
partaking in risk-taking activities which augment their vulnerability
towards HIV/AIDS. The point is that legalising same sex relationships
will assist in building the self-confidence of gay men and, gay youth
in particular, which would in turn make them more likely to make
choices conducive to health.
- The failure to
recognise homosexual relationships, on the other hand, promotes
discrimination against gays and lesbians, as well as the perception
that they are "second-class citizens."[243] Hence, legalising same sex
relationships may also serve to promote greater tolerance on behalf of
society towards gay men. This acceptance and support is essential for
young people with same sex attraction to feel good about themselves
and feel connected to their families, their peer groups and to the
community as a whole.[244]
- Hence, the normative role of the law in
establishing the legitimacy of non-discrimination against same sex
relationships would assist in allowing gay men and gay youth to feel
part of society and as such would create a more supportive environment
for them in which to make healthy life choices.
Summary
- Although, the
introduction of law reforms is no solution in itself to prejudice,
discrimination, hostility and violence against gay men a proactive
approach by the law can promote increased societal and self-acceptance
by homosexuals.[245] In so doing, the law can support and complement
public health campaigns aimed to give confidence and positive
self-esteem to gay men and to achieve long-term sustained behaviour
change amongst this group.
- In turn, this
would reduce their risk of HIV/AIDS infection.[246] On the other hand,
to maintain the law in its current discriminatory form is to sustain
and exacerbate the conditions which lead to societal vulnerability to
HIV/AIDS infection among gay men and gay youth.
- Therefore, the advent of HIV/AIDS necessitates
that the law adopts a proactive stance in relation to discrimination,
which entails a human rights approach aimed at improving the status of
marginalised groups in society, as to not do so places lives at risk,
as is evident when one considers the plight of gay men.
Conclusion
AIDS has become a permanent challenge
to human ingenuity and solidarity (Dr. Peter Piot, head of UNAIDS).[247]
- It has been
demonstrated that it is impossible or futile to address the
vulnerability of marginalised populations in relation to the HIV/AIDS
epidemic without addressing the societal context which places
marginalised groups at risk of infection and at risk of suffering
needless consequences if affected. This reality is graphically
illustrated when one considers the impact of discrimination in the
context of HIV/AIDS.
- In short, the
discrimination which is propagated at all levels of society serves to
dramatically increase the personal cost of infection as it adversely
impacts on the care and support those living with HIV/AIDS receive.
Moreover, discrimination also results in magnifying the vulnerability
of marginalised groups in society towards contracting HIV/AIDS and
therefore assists in fueling the spread of HIV/AIDS.
- The fact that
these two unpalatable consequences are intertwined with discrimination
means by practicing and perpetuating discrimination or in not
challenging it, then we have all become the "willing executioners" of
this deadly virus.
- Put simply, the
advent of AIDS means that we can no longer afford not to challenge
discrimination as to not do so threatens the lives of millions of men,
women and children. If we fight now at least we can absolve ourselves
of further responsibility in this tragedy and shed the tag of being
"willing executioners." In this regard, the state and the law have to
adopt a human rights, proactive approach to the AIDS epidemic which
entails strengthening anti-discrimination laws and empowering those
groups marginalised in society.[248]
- Perhaps, as
such, if there is to be a positive consequence of this epidemic it
will be that it has forced us to recognise and remove some of the most
entrenched barriers to the effective protection of the rights to life
and health for marginalised populations.[249] Indeed, if nothing else,
hopefully the HIV/AIDS pandemic may unmask the danger that is
discrimination.
- The views
expressed in this paper, are best summed up by Kofi Annan, the
Secretary-General of the United Nations, when he stated:
In
some parts of Africa, the name for AIDS translates as "shame has fallen
on the Earth." My friends, shame will indeed fall on the Earth if we
turn our backs on those affected by AIDS and cast them into the shadows.
Shame will fall on all of us if we do not wipe out every trace of
prejudice and discrimination surrounding this disease...Is the choice
really so hard?[250]
Bibliography
W.Adler, "A Legal Perspective on
Insurance Industry Reactions to AIDS", Law Society Journal, Vol. 6
(1992), pp. 64-66.
D.Altman, AIDS in the Mind of
America (London: Pluto Press, 1996).
D.Altman and K.Humphrey, "Breaking
Boundaries: AIDS and Social Justice in Australia", Social Justice, Vol.
16 (1989), pp. 158-163.
K.Annan, "The Diana, Princess of
Wales, Memorial Lecture on AIDS", extracted from
http://www.nat.org.uk/kofiannan/lecture.html, pp. 1-10.
A.R.D.A'ugelli and S.L.Hershberger,
"Lesbian, gay and bisexual youth in community settings: personal
challenges and mental health problems", American Journal of Community
Psychology, Vol. 21 (1993), pp. 421-428.
Australian HIV Surveillance Report,
National Centre in HIV Epidemiology and Clinical Research, Sydney,
University of New South Wales, Vol. 15 (1999).
G.Brown, R.Chadwick and A.Goldflam,
"'Here For Life' Youth Sexuality Project", WA AIDS Council in
conjunction with the Gay and Lesbian Counselling Service, Western
Australia, Perth, January 1999.
T.de.Bruyn, "HIV/AIDS and
Discrimination: A Discussion Paper", Canadian HIV/AIDS Legal Network and
Canadian AIDS Society, Montreal,1998, pp. 1-13.
D.Buchanan and J.Goodwin, "AIDS -
The Legal Epidemic", Legal Services Bulletin, Vol. 13 (1998), pp.
111-116.
S.Burris, "Law and the Social Risk
of Health Care: Lessons from HIV Testing", Albany Law Review, Vol. 61
(1998), pp. 831-893.
J.Cabassi, "Out of Reach", Reprinted
from HIV/AIDS Legal Link, Vol. 8 (1997), published by the Australian
Federation of AIDS Organisations, pp. 9-17.
E.Cameron, "Human Rights, Racism and
AIDS: The New Discrimination", South African Journal on Human Rights,
Vol. 9 (1993), pp. 22-29.
M.Carden, "Health, Homophobia and
HIV", Social Alternatives, Vol. 14 (1995), pp. 34-35.
W.G.Carson, "Law Making: Symbolism
and Instrumentality" in C.M.Campbell and P.Wiles (eds), Law and Society
(Martin-Robertson, 1979), pp. 236-246.
D.L.Chambers, "Gay Men, AIDS and the
Code of the Condom", Harvard Civil Rights-Civil Liberties Law Review,
Vol. 29 (1994), pp. 353-385.
S.Clayton,
"Legal Recognition of Same Sex Relationships: Where to from Here?",
E Law - Murdoch University Electronic Journal of Law, Vol. 3 (1996), pp.
1-10.
S.Clayton, "Equal Age of Consent",
Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997), published by the
Australian Federation of AIDS Organisations, pp. 12-13.
M.L.Colsen, "The Decade of Supreme
Court Avoidance of AIDS: Denial of Certiorari in HIV-AIDS Cases and its
Adverse Effects on Human Rights", Albany Law Review, Vol. 61 (1991), pp.
897-907.
R.Cotterrell, The Sociology of Law:
An Introduction (Sydney: Butterworths, 1984).
P.Crane, Gays and the Law (Pluto
Press, 1982).
B.M.Dank, Coming Out in the gay
world. In deviance: the interactionalist perspective, (New York:
Macmillan, 1981).
C.Dobney and M.Jones, "Don't You
Worry About That", Capital Q Weekly, Vol. 3 (1997), pp. 3-6.
B.Doyle, "Disability discrimination
and enforcement in Britain: future prospects" in M.MacEwen (eds),
Anti-Discrimination Law Enforcement: A Comparative Perspective (Suffolk:
Ipswich Book Comp, 1997), ch 4.
J.M.Dwyer, "Legislating AIDS Away:
The Limited Role of Legal Persuasion in Minimizing the Spread of the
Human Immunodeficiency Virus", Journal of Contemporary Health Law and
Policy, Vol. 9 (1993), pp. 167-176.
R.Evans, "Living with AIDS", Law
Institute Journal, Vol. 12 (1994), pp. 8-9.
E.D.Fesl, Conned, (Queensland:
University of Queensland Press, 1993).
K.Fordham, Sexuality and Suicide: An
Investigation of Health Compromising and Suicidal Behaviours among Gay
and Bisexual Male Youth in Tasmania, Division of Community and Rural
Health, Faculty of Medicine, University of Tasmania, September 1998, pp.
1-78.
L.Freedman, "Reflections on Emerging
Frameworks of Health and Human Rights", Health & Human Rights, Vol. 1
(1995), pp. 314-333.
P.Garde, "Discrimination and
Vilification", Reprinted from HIV/AIDS Legal Link, Vol. 9 (1998),
published by the Australian Federation of AIDS Organisations, pp. 12-13.
J.Godwin, "AIDS hysteria - the law
in support", Legal Services Bulletin, Vol. 14 (1989), pp. 168-170.
D.Goldhagen, Hitler's Willing
Executioners (New York: Transnational Publishers, 1995).
S.Gruskin, "Human Rights and Public
Health: An Overview", Speech Presented at the XII International AIDS
Conference, Geneva, Switzerland, June 1998, pp. 1-6.
H.Hahn, "The Politics of Physical
Differences: Disability and Discrimination", Journal of Social Issues,
Vol. 44 (1988), pp. 39-47.
J.Hamblin, "The Role of the Law in
HIV/AIDS Policy", AIDS, Vol. 5 (Suppl 2, 1991), pp. 239-243.
C.Hankins, "Human Rights, Women and
HIV", Canadian HIV/AIDS Legal Network and Canadian AIDS Society,
Montreal, July 1996,
pp. 1-8.
C.A.Hankins and M.A.Handley, "HIV
Disease and Aids in Women. Current Knowledge and a Research Agenda",
Journal of Acquired Immune Deficiency Syndrome, Vol. 5 (1992), pp.
957-971.
G.Hart, "Gay Community Orientated
Approaches to Safer Sex", in T.Rhodes and P.Hartnoll (eds), Aids, Drugs
and Prevention (London: Routledge, 1996), ch 5.
G.M.Herek, "AIDS and Stigma",
American Behavioral Scientist, Vol. 42 (1999), pp. 1102-1112.
M.Heywood, "Thirty Million and
Counting: The Urgent Need to Move Policy to Comprehensive
Interventions", Canadian HIV/AIDS Legal Network and Canadian AIDS
Society, Montreal, 1998, pp.
1-10.
HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, pp. 1-62.
"Homosexuality Gay Men & AIDS",
AVERT Website, Sept 27, 1999, pp. 1-4.
D.R.Hoover et al., "Estimating the
1978-1990 and Future Spread of HIV Type 1 in Subgroups of Homosexual
Men", American Journal of Epidemiology, Vol. 134 (1991), pp. 1190-1192.
K.Jennings, Becoming Visible: A
Reader in Gay and Lesbian History for High School and College Students
(Boston: Alyston Publications, 1994).
R.Jurgens, "HIV/AIDS, Law, and
Ethics", Canadian HIV/AIDS Legal Network and Canadian AIDS Society,
Montreal, 1995, pp. 1-5.
R.Jurgens, "Focus on Gay Issues:
Discrimination Impedes the Fight Against AIDS", Canadian HIV/AIDS Policy
And Law Our Sponsors , Vol. 1 (1995), pp. 1-3.
E.Kallen, "Gay and Lesbian Rights
Issues: A Comparative Analysis of Sydney, Australia and Toronto,
Canada", Human Rights Quarterly, Vol. 18 (1996), pp. 206-223.
C.N.Kendall, "Sexuality: What's the
law got to do with it?", Alternative Law Journal, Vol. 20 (1995), pp.
266-269.
C.N.Kendall, "Discriminatory laws
leave young at risk", Reprinted from HIV/AIDS Legal Link, Vol. 10
(1999), published by the Australian Federation of AIDS Organisations,
pp. 20-21.
C.N.Kendall and S.Walker,
"Combating Lesbian and Gay Youth Suicide and HIV/AIDS Transmission
Rates: An Examination of Possible Education Strategies in Western
Australian High Schools in Light of Prevailing State Statutes", E
Law - Murdoch University Electronic Journal of Law, Vol. 5 (1998), pp.
1-17.
M.Kirby, "Human Rights and the HIV
Paradox", Lancet, Vol. 348 (1996), pp. 1217-1218.
G.Kruks, "Gay and Lesbian
Homeless/Street Youth: Special Issues and Concerns", Journal of
Adolescent Health, Vol. 12 (1991), pp. 515-518.
M.Landolt, "Are AIDS Victims
Handicapped", Saint Louis University Law Journal, Vol. 31 (1987), pp.
729-747.
I.Lauw,
"Victimless Crimes - Decriminalisation of Homosexual Sexual Activity",
E Law - Murdoch University Electronic Journal of Law, Vol. 1 (1994), pp.
1-11.
I.Lauw,
"Recognition of Same-Sex Marriages: Time for Change?", E Law -
Murdoch University Electronic Journal of Law, Vol. 1 (1994), pp. 12-25.
S.Lawless et al, "Dirty and Diseased
and Undeserving: The position of HIV Positive Women", Social Science and
Medicine, Vol. 43 (1996), pp. 1371-1377.
A.Lean, "Queer Justice or Just Plain
queer", Polemic, Vol. 4 (1993), pp. 106-109.
L.Lewis & M.Ross, The Gay Dance
Party Subculture and the HIV/AIDS Pandemic (London: Cassell, 1995).
J.Mann and D.Tarantolo, AIDS in the
World II: Global Dimensions, Social Roots and Responses (New York:
Oxford University Press, 1996).
McCallum, et al., National Centre
for Epidemiology and Population Health, Australian National University,
1990.
W.Morgan, "Queer Law: Identity,
Culture, Diversity, Law", Australasian Gay and Lesbian Law Journal, Vol.
5 (1995), pp. 1-41.
W.Morgan, "Still in the Closet: The
Heterosexism of Equal Opportunity Law", Critical inQueeries, Vol. 2.
(May 1996), pp. 119-146.
New South Wales Anti-Discrimination
Board, Discrimination - The Other Epidemic: Report of the Inquiry into
HIV and AIDS Related Discrimination, (1992).
A.Nicholson, "The Changing Concept
of Family - The Significance of Recognition and Protection", Australian
Journal of Family Law, Vol. 11 (1997), pp. 13-22.
L.A.Nisbet and D.V.McQueen,
"Anti-Permissive To Lifestyles Associated With Aids", Social Science and
Medicine, Vol. 36 (1993), pp. 893-901.
R.O'Brien, "Discrimination: The
Difference With Aids", Journal of Contemporary Health Law and Policy,
Vol. 6 (1990), pp. 90-105.
J.M.Oleske, "Rights of the Child:
Real World Connections between Health and Human Rights", Annual
Conference of the Global Health Council, Arlington, VA, June 20-22 1999, pp. 1-6.
M.Otlowski, "Association's ban on
HIV positive player ruled discriminatory", Australian Health Law
Bulletin, Vol. 7 (1999), pp. 85-90.
W.E.Parmet and D.J.Jackson, "No
Longer Disabled: The Legal Impact of the New Social Construction of
HIV", American Journal of Law and Medicine, Vol. 23 (1997), pp. 7-43.
P.Piot, "Human Rights and HIV/AIDS",
Speech to the UN Human Rights Commission, extracted from,
http://www.unaids.org/whatsnew/press/eng/pressarc96/humanen.html,
April 1996, pp. 1-6.
P.Piot, Speech at the XIth
International Conference on AIDS and STDs in Africa, 12 September, 1999,
Lusaka, Zambia, extracted from
http://www.unaids.org/whatsnew/speeches/eng/lusaka99.html, pp. 1-4.
D.Pratt, "Health Care Policy: What
Lessons Have We Learned From the AIDS Pandemic", Albany Law Review, Vol.
61 (1998), pp. 670-676.
L.V.Quiros, "Discrimination Against
HIV-Infected People or People with AIDS: Conclusions and Recommendations
of the Special Rapporteur of the Sub-Commission", 1997, pp. 1-6.
Report of the Evaluation of the
National HIV/AIDS Strategy, National Evaluation Steering Committee
(Canberra: Commonwealth of Australia, 1992), pp. 1-96.
T.Rhodes, "Individual and Community
Action in HIV prevention" in T.Rhodes and P.Hartnoll (eds), Aids, Drugs
and Prevention (London: Routledge, 1996), ch 1.
G.K.Roussos, "Protections Against
HIV-Based Employment Discrimination in the United States and Australia",
Hastings International & Comparative Law Review, Vol. 13 (1990), pp.
609-678.
R.Sanitioso, "A Social Psychological
Perspective on HIV/AIDS and Gay or Homosexually Active Asian Men",
Journal of Homosexuality, Vol. 36 (1999), pp.
R.C.Savin-Williams and R.E.Lenhart,
"AIDS Prevention among Gay and Lesbian Youth", in D.G.Ostrow (eds),
Behavioural Aspects of AIDS (New York: Plenium Medical Book Co), ch 4.
R.L.Siegel, "AIDS and Human Rights",
Human Rights Quarterly, Vol. 18 (1996), pp. 612-640.
D.Stephens, "Human rights: from
policy to practice", Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997),
published by the Australian Federation of AIDS Organisations, pp. 10-11.
R.Stodhill, "Where'd You Learn
That", Time Magazine, June 20, 1998, pp. 56-64.
D.Tarantola, "A Global View of AIDS
at the Millennium", Keynote address to AIDS in the Millennium: The
Converging Worlds of AIDS; organised by the Massachusetts Medical
Society and Lemuel Shattuck Hospital; John F. Kennedy Library and
Museum; Boston, Massachusetts; November 18, 1998, pp. 1-9.
M.Thornton, "Sex Discrimination
Legislation in Australia", Australian Quarterly, Vol. 54 (1982), pp.
393-403.
N.Toonen, "Homophobia and HIV",
National AIDS Bulletin, December 1992/January 1993, pp. 35-37.
P.Van de Ven, S.Kippax, J.Crawford,
K.Race and P.Rodden, "Homophobic and HIV-related Abuse and
Discrimination Experienced by Gay And Homosexually Active Men in an
Australian National Sample", The Australian and New Zealand Journal of
Criminology, Vol. 31 (1998), pp. 141-159.
C.Ward, "Discrimination Case Lost in
High Court", Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997),
published by the Australian Federation of AIDS Organisations, pp. 13-16.
H.Watchirs, HIV/AIDS and
Anti-Discrimination Legislation, Intergovernmental Committee on AIDS
Legal Working Party (Canberra: Commonwealth of Australia, 1991), pp.
1-40.
P.Waters, "The Coverage of
AIDS-related Discrimination under Handicap Discrimination Laws: The US
and Australia Compared", Sydney Law Review, Vol. 12 (1990), pp. 377-419.
S.Watney, "AIDS: The Second Decade:
'Risk', Research and Modernity", in P.Aggleton, G.Hart and P.Davies
(eds) AIDS Responses, Interventions and Care (Lewes: Falmer Press,
1991), ch 1.
L.Wherrett and W.Talbot, HIV/AIDS
Prevention, Homosexuality and the Law, Intergovernmental Committee on
AIDS Legal Working Party, 1991, pp. 1-41.
T.Wilton and P.Aggleton, "Condoms,
Coercion and Control: Heterosexuality and the Limits to HIV/AIDS
Education", in P.Aggleton, G.Hart and P.Davies (eds), AIDS Responses,
Interventions and Care (Lewes: Falmer Press, 1991), ch 11.
W.Wright, "HIV/AIDS Related
Discrimination", Law Society Journal, Vol. 30 (1992), pp. 61-63.
A.L.Yamin, "Defining Questions:
Situating Issues of Power in the Formulation of a Right to Health under
International Law", Human Rights Quarterly, Vol. 18 (1996), pp. 398-438.
R.Zerner, "German Protestant
Responses to Nazi Persecution of the Jews", in R.L.Braham (eds),
Perspectives on the Holocaust, (London, 1983), ch 4.
Bragdon v Abbot 118 S. Ct. 2196
(1998).
Brandy v Human Rights and Equal
Opportunity Commission (1995) 127 ALR 1.
Hall v Victorian Amateur Football
Association No 1998/153, 23 April 1999.
In the marriage of B and C (1989)
FLC 92-043.
IW v The City of Perth & Ors High
Court of Australia, 31 July 1997 FC97/027, P37/96.
Jamal v Secretary, Department of
Health (1988) EOC 92-234.
Kitt v Minister for Tourism (1987) EOC 92-96.
Notes
[1] D.Altman, AIDS in the Mind of
America (London: Pluto Press, 1996), p. 192.
[2] This label has been taken from
D.Goldhagen's book, Hitler's Willing Executioner (London: Little, Brown
and Company, 1996). It is in no way meant to represent approval with the
views expressed in that book nor is it an endorsement for that book.
Rather, the term "willing executioners" has been used as it most
powerfully conveys the message that we are all reprehensible in the
context of HIV/AIDS as will be demonstrated throughout this essay.
[3] D.Goldhagen, Hitler's Willing
Executioners (New York: Transnational Publishers, 1995), pp. 1-25.
[4] "Us" here refers to "us" in
terms of our role as individuals, as members of communities and as
members of society, as well as "us" in the sense of the dominant
institutions that permeate society, in particular the state and the law.
As this paper develops, there will be separate sections on the role of
the state and the law in relation to the HIV/AIDS epidemic. For the
moment, it is convenient to label all under the one term.
[5] HIV is the name of the virus
which can cause AIDS. HIV stands for Human Immuno-deficieny Virus. AIDS
stands for Acquired Immune Deficiency Syndrome. For a person to become
infected with HIV, the virus has to get from an infected person into the
bloodstream of a non infected person and therefore cannot be contracted
through casual contact as is often assumed by members of the public. The
most common ways to contract HIV/AIDS are by unprotected ("unsafe") sex
or by sharing needles with an infected person.
[6] D.Tarantola, "A Global View of
AIDS at the Millennium", Keynote address to AIDS in the Millennium: The
Converging Worlds of AIDS; organised by the Massachusetts Medical
Society and Lemuel Shattuck Hospital; John F. Kennedy Library and
Museum; Boston, Massachusetts; November 18, 1998, p. 1.
[7] ibid.
[8] P.Piot, "Human Rights and
HIV/AIDS", Speech to the UN Human Rights Commission, extracted from,
http://www.unaids.org/whatsnew/press/eng/pressarc96/humanen.html,
April 1996, p. 1.
[9] This essay will specifically
focus on men who have sex with men, as it is this group, who are
primarily infected by HIV/AIDS in Australia.
[10] These goals were launched in
Australia's Third National Strategy for dealing with HIV/AIDS and other
communicable diseases on 18 December 1996. Naturally, this is the stated
goal of nearly all countries in combating HIV/AIDS and indeed of the
Joint United Nations Program on HIV/AIDS (UNAIDS). See, HIV/AIDS and
Human Rights - International Guidelines, Geneva and New York, 1998, p.
4.
[11] A.L.Yamin, "Defining Questions:
Situating Issues of Power in the Formulation of a Right to Health under
International Law", Human Rights Quarterly, Vol. 18 (1996), pp. 398-438.
[12] T.de.Bruyn, "HIV/AIDS and
Discrimination: A Discussion Paper", Canadian HIV/AIDS Legal Network and
Canadian AIDS Society, Montreal, 1998, pp. 1-13.
[13] R.Jurgens, "HIV/AIDS, Law, and
Ethics", Canadian HIV/AIDS Legal Network and Canadian AIDS Society,
Montreal, 1995, pp. 1-5.
[14] J.Hamblin, "The Role of the Law
in HIV/AIDS Policy", AIDS, Vol. 5 (Suppl 2, 1991), p. 239.
[15] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 5.
[16] For the purposes of this paper,
these groups will at times be generally classified as "marginalised"
groups, although it needs to be acknowledged that the degree and source
of vulnerability of these groups varies widely within countries and
across regions.
[17] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 40.
[18] D.Pratt, "Health Care Policy:
What Lessons Have We Learned From the AIDS Pandemic", Albany Law Review,
Vol. 61 (1998), p. 672.
[19] D.Buchanan and J.Goodwin, "AIDS
- The Legal Epidemic", Legal Services Bulletin, Vol. 13 (1998), p. 111.
[20] ibid.
[21] R.Evans, "Living with AIDS",
Law Institute Journal, Vol. 12 (1994), p. 9.
[22] J.Mann and D.Tarantolo, AIDS in
the World II: Global Dimensions, Social Roots and Responses (New York:
Oxford University Press, 1996), p 441.
[23] T.de.Bruyn, op.cit., p. 1.
[24] L.A.Nisbet and D.V.McQueen,
"Anti-Permissive To Lifestyles Associated With Aids", Social Science and
Medicine, Vol. 36 (1993), p. 893.
[25] ibid.
[26] R.O'Brien, "Discrimination: The
Difference With Aids", Journal of Contemporary Health Law and Policy,
Vol. 6 (1990), p. 95.
[27] M.L.Colsen, "The Decade of
Supreme Court Avoidance of AIDS: Denial of Certiorari in HIV-AIDS Cases
and its Adverse Effects on Human Rights", Albany Law Review, Vol. 61
(1991), p. 912.
[28] ibid.
[29] The fact that HIV/AIDS is
transmissible in addition to the reality that the effects of HIV/AIDS
are irreversible, as it is incurable, make some sort of stigma attached
to HIV/AIDS inevitable.
[30] G.M.Herek, "AIDS and Stigma",
American Behavioral Scientist, Vol. 42 (1999), p. 1102.
[31] D.Altman and K.Humphrey,
"Breaking Boundaries: AIDS and Social Justice in Australia", Social
Justice, Vol. 16 (1989), p. 163.
[32] McCallum, et al., National
Centre for Epidemiology and Population Health, Australian National
University, 1990.
[33] R.O'Brien, op.cit., p. 93.
[34] Reflected in the fact that
since the beginning of the epidemic HIV/AIDS was associated with gay
men; AIDS was often given titles such as the "gay plague", "gay cancer"
and "Gay Related Immune Deficiency (GRID)."
[35] T.de.Bruyn, op.cit., p. 5.
[36] I.Lauw, "Victimless Crimes -
Decriminalisation of Homosexual Sexual Activity", E Law - Murdoch
University Electronic Journal of Law, Vol. 1 (1994), p. 4. This journal
is available from the internet at:
http://www.murdoch.edu.au/elaw
[37] T.de.Bruyn, op.cit., p. 5.
[38] ibid., p. 7.
[39] C.A.Hankins and M.A.Handley,
"HIV Disease and Aids in Women. Current Knowledge and a Research
Agenda", Journal of Acquired Immune Deficiency Syndrome, Vol. 5 (1992),
p. 957.
[40] S.Lawless et al, "Dirty and
Diseased and Undeserving: The position of HIV Positive Women", Social
Science and Medicine, Vol. 43 (1996), p. 1373.
[41] ibid..
[42] ibid, pp. 1371-1377.
[43] E.Cameron, "Human Rights,
Racism and AIDS: The New Discrimination", South African Journal on Human
Rights, Vol. 9 (1993), p. 26.
[44] P.Piot, Speech at the XIth
International Conference on AIDS and STDs in Africa, 12 September, 1999,
Lusaka, Zambia, extracted from
http://www.unaids.org/whatsnew/speeches/eng/lusaka99.html, p. 2.
[45] T.de.Bruyn, op.cit., p. 1.
[46] R.L.Siegel, "AIDS and Human
Rights", Human Rights Quarterly, Vol. 18 (1996), pp. 612-615.
[47] M.Kirby, "Human Rights and the
HIV Paradox", Lancet, Vol. 348 (1996), p. 1217.
[48] W.Adler, "A Legal Perspective
on Insurance Industry Reactions to AIDS", Law Society Journal, Vol. 6
(1992), p. 64.
[49] M.Kirby, op.cit., pp.
1217-1218.
[50] T.de.Bruyn, op.cit., p. 8.
[51] A.E.Yamin, op.cit., p. 406.
[52] T.Rhodes, "Individual and
Community Action in HIV prevention" in T.Rhodes and P.Hartnoll (eds),
Aids, Drugs and Prevention (London: Routledge, 1996), p. 8.
[53] ibid.
[54] ibid.
[55] G.Hart, "Gay Community
Orientated Approaches to Safer Sex", in T.Rhodes and P.Hartnoll (eds),
Aids, Drugs and Prevention (London: Routledge, 1996), p. 98.
[56] L.V.Quiros, "Discrimination
Against HIV-Infected People or People with AIDS: Conclusions and
Recommendations of the Special Rapporteur of the Sub-Commission", 1997,
p. 3.
[57] It is important to note that
the category gay men comprises a diversity of identities, cultures and
behaviours. Thus, it must be kept in mind that the degrees to which men
considered under these categories may have appropriated the
discrimination and stigma associated with homosexual activity or
identity will vary.
[58] Australian HIV Surveillance
Report, National Centre in HIV Epidemiology and Clinical Research,
Sydney, University of New South Wales, Vol. 15 (1999).
[59] D.L.Chambers, "Gay Men, AIDS
and the Code of the Condom", Harvard Civil Rights-Civil Liberties Law
Review, Vol. 29 (1994), p. 356.
[60] L.Wherrett and W.Talbot,
HIV/AIDS Prevention, Homosexuality and the Law, Intergovernmental
Committee on AIDS Legal Working Party, 1991, p. 3.
[61] A.Lean, "Queer Justice or Just
Plain queer", Polemic, Vol. 4 (1993), p. 107.
[62] Men were included in the Male
Call '96 survey according to the criterion that they had had sex with at
least one other man during the last five years prior to the interview.
See, P.Van de Ven et al, "Homophobic and HIV-related Abuse and
Discrimination Experienced by Gay and Homosexually Active Men in an
Australian National Sample", The Australian and New Zealand Journal of
Criminology, Vol. 31 (1998), pp. 149-159.
[63] P.Van de Ven, S.Kippax,
J.Crawford, K.Race and P.Rodden, "Homophobic and HIV-related Abuse and
Discrimination Experienced by Gay And Homosexually Active Men in an
Australian National Sample", The Australian and New Zealand Journal of
Criminology, Vol. 31 (1998), p. 141.
[64] R.Jurgens, "Focus on Gay
Issues: Discrimination Impedes the Fight Against AIDS", Canadian
HIV/AIDS Policy And Law Our Sponsors , Vol. 1 (1995), p. 2.
[65] L.Wherrett and W.Talbot,
op.cit., p. 6.
[66] Report of the Evaluation of the
National HIV/AIDS Strategy, National Evaluation Steering Committee
(Canberra: Commonwealth of Australia, 1992), p. 17.
[67] R.Sanitioso, "A Social
Psychological Perspective on HIV/AIDS and Gay or Homosexually Active
Asian Men", Journal of Homosexuality, Vol. 36 (1999), pp. 76-78.
[68] T.de.Bruyn, op.cit., p. 12.
[69] It must be noted that gauging
how much new infection is occurring among young gay men is difficult as
many young gay men are unwilling to be interviewed and tested. However,
studies show general agreement on the fact that new infections are
occurring at a significant level amongst this group.
[70] D.R.Hoover et al., "Estimating
the 1978-1990 and Future Spread of HIV Type 1 in Subgroups of Homosexual
Men", American Journal of Epidemiology, Vol. 134 (1991), pp. 1190-1192.
See also, L.Lewis & M.Ross, The Gay Dance Party Subculture and the
HIV/AIDS Pandemic (London: Cassell, 1995).
[71] Report of the Evaluation of the
National HIV/AIDS Strategy, National Evaluation Steering Committee
(Canberra: Commonwealth of Australia, 1992), p. 58.
[72] See, HIV/AIDS and Human Rights
- International Guidelines, Geneva and New York, 1998, pp. 34-44.
[73] The Project Male Call survey
found that younger gay men were approximately four times more likely to
have been bashed as a consequence of HIV-related prejudice then older
gay men. See, P.Van de Ven et al, "Homophobic and HIV-related Abuse and
Discrimination Experienced by Gay And Homosexually Active Men in an
Australian National Sample", The Australian and New Zealand Journal of
Criminology, Vol. 31 (1998), pp. 141-159.
[74] C.N.Kendall and S.Walker,
"Combating Lesbian and Gay Youth Suicide and HIV/AIDS Transmission
Rates: An Examination of Possible Education Strategies in Western
Australian High Schools in Light of Prevailing State Statutes", E Law -
Murdoch University Electronic Journal of Law, Vol. 5 (1998), pp. 2-3.
[75] A number of authors have shown
that gay, lesbian and bisexual youth are at an increased risk for
engaging in behaviour which jeopardises their health, including suicide
attempts. The fact is that homosexuality is the leading cause of suicide
amongst gay teenagers. However, for the purposes of this essay the
vulnerability of gay youth will be discussed in terms of HIV/AIDS
infection although it is important to recognise the extreme
vulnerability of gay youth in society. For further reference to the
topic of gay youth and the increased risks to which they are exposed to
in society, including suicide see: K.Fordham, Sexuality and Suicide: An
Investigation of Health Compromising and Suicidal Behaviours among Gay
and Bisexual Male Youth in Tasmania, Division of Community and Rural
Health, Faculty of Medicine, University of Tasmania, September 1998, pp.
1-78. Also see, A.R.D.A'ugelli and S.L.Hershberger, "Lesbian, gay and
bisexual youth in community settings: personal challenges and mental
health problems", American Journal of Community Psychology, Vol. 21
(1993), pp. 421-428.
[76] As alluded to earlier positive
self-esteem is a necessary prerequisite for gay men and gay youth
especially to be able to adopt and maintain safe sex practices.
Increased self-esteem serves to enhance people's ability to negotiate
safe sex and recognise risky situations, which may expose them to
HIV/AIDS infection.
[77] G.Kruks, "Gay and Lesbian
Homeless/Street Youth: Special Issues and Concerns", Journal of
Adolescent Health, Vol. 12 (1991), pp. 515-518.
[78] See, G.Brown, R.Chadwick and
A.Goldflam, "'Here For Life' Youth Sexuality Project", WA AIDS Council
in conjunction with the Gay and Lesbian Counselling Service, Western
Australia, Perth, January 1999.
[79] R.C.Savin-Williams and
R.E.Lenhart, "AIDS Prevention among Gay and Lesbian Youth", in
D.G.Ostrow (eds), Behavioural Aspects of AIDS (New York: Plenium Medical
Book Co), pp. 80-83.
[80] Quoted in K.Jennings, Becoming
Visible: A Reader in Gay and Lesbian History for High School and College
Students (Boston: Alyston Publications, 1994), p. 271.
[81] R.C.Savin-Williams and
R.E.Lenhart, op.cit., pp. 85-86.
[82] C.N.Kendall and S.Walker,
op.cit., p. 3.
[83] N.Toonen, "Homophobia and HIV",
National AIDS Bulletin, December 1992/January 1993, pp. 35-37.
[84] In spite of the popular belief
that teaching kids about sex will lead to promiscuity, the opposite is
true. The World Health Organisation review of studies on the effect of
sexual health education found that education on sexuality and/or HIV
does not encourage increased sexual activity but rather allows
responsible and safe behaviour to be learned. Yet, despite this
knowledge gay youths continue to receive the minimal amount of education
in relation to their needs.
[85] E.Kallen, "Gay and Lesbian
Rights Issues: A Comparative Analysis of Sydney, Australia and Toronto,
Canada", Human Rights Quarterly, Vol. 18 (1996), p. 219.
[86] Quoted in "Homosexuality Gay
Men & AIDS", AVERT Website, extracted from
http://www.avert.org/hsexu3.htm, Sept 27, 1999, p. 3.
[87] The fact is that such attitudes
are not only plainly discriminatory but incorrect as they ignore the
reality that gay youth often identify themselves as gay at an early age.
Therefore, it is essential that education be focused at gay youth. For a
discussion of this topic see: B.M.Dank, Coming Out in the gay world. In
deviance: the interactionalist perspective, (New York: Macmillan, 1981).
[88] Indeed, the government has
constantly espoused similar views. For example, in August of 1997, the
Federal Minister for Family Services, Judy Moylan, publicly rejected a
poster aimed at building self-esteem among same-sex attracted youth,
branding it a "recruitment aid for homosexuality."
[89] S.Watney, "AIDS: The Second
Decade: 'Risk', Research and Modernity", in P.Aggleton, G.Hart and
P.Davies (eds) AIDS Responses, Interventions and Care (Lewes: Falmer
Press, 1991), p. 13.
[90] C.Dobney and M.Jones, "Don't
You Worry About That", Capital Q Weekly, Vol. 3 (1997), p. 4.
[91] T.de.Bruyn, op.cit., p. 13.
[92] C.Hankins, "Human Rights, Women
and HIV", Canadian HIV/AIDS Legal Network and Canadian AIDS Society,
Montreal, July 1996,
pp. 1-8.
[93] Today, put simply, women are at
the centre of concern of the HIV/AIDS epidemic as they are one of the
fastest growing populations being infected with HIV. Indeed, WHO
estimates that almost half of all newly infected adults in the world are
women.
[94] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, pp. 44-46.
[95] R.Stodhill, "Where'd You Learn
That", Time Magazine, June 20, 1998, p. 57.
[96] T.Wilton and P.Aggleton,
"Condoms, Coercion and Control: Heterosexuality and the Limits to
HIV/AIDS Education", in P.Aggleton, G.Hart and P.Davies (eds), AIDS
Responses, Interventions and Care (Lewes: Falmer Press, 1991), p. 155.
[97] A.E.Yamin, op.cit., p. 429.
[98] L.Freedman, "Reflections on
Emerging Frameworks of Health and Human Rights", Health & Human Rights,
Vol. 1 (1995), p. 314.
[99] Gender discrimination is also
manifested in the low economic status of women in most societies. This
can impact on the ability of women to negotiate safe sex as they may be
economically dependent on their partner.
[100] P.Piot, op.cit., (1996), p. 4.
[101] Quoted from R.Zerner, "German
Protestant Responses to Nazi Persecution of the Jews" in R.L.Braham
(eds), Perspectives on the Holocaust, (London, 1983), p. 66.
[102] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 4.
[103] E.D.Fesl, Conned, (Queensland:
University of Queensland Press, 1993) pp. 1-7, 72-75.
[104] T.de.Bruyn, op.cit., p. 12.
[105] C.N.Kendall, "Sexuality:
What's the law got to do with it ?", Alternative Law Journal, Vol. 20
(1995), p. 267.
[106] ibid.
[107] Also because their privileged
position comes as a result of others non-privileges. For a further
explanation as to these points see, E.D.Fesl, Conned, (Queensland:
University of Queensland Press, 1993) pp. 1-7, 72-75.
[108] K.Annan, "The Diana, Princess
of Wales, Memorial Lecture on AIDS", extracted from
http://www.nat.org.uk/kofiannan/lecture.html, p. 5.
[109] Quoted in, J.M.Oleske, "Rights
of the Child: Real World Connections between Health and Human Rights",
Annual Conference of the Global Health Council, Arlington, VA, June
20-22 1999, extracted from
http://www.fxb.org/kids/oleske_plea.html, p. 4.
[110] Quoted in, M.Heywood, "Thirty
Million and Counting : The Urgent Need to Move Policy to Comprehensive
Interventions", Canadian HIV/AIDS Legal Network and Canadian AIDS
Society, Montreal, extracted from
http://www.aidslaw.ca/Our Sponsors /spring99/geneva98-2.htm, 1998, p.
9.
[111] A Special Report by Public
Medical Center. San Francisco: The Center, 1995; cited in Canadian
HIV/AIDS Legal Network and Canadian AIDS Society, Montreal, extracted
from
http://www.aidslaw.ca/
[112] ibid.
[113] M.Carden, "Health, Homophobia
and HIV", Social Alternatives, Vol. 14 (1995), pp. 34-35.
[114] See the section of this paper
entitled, "The Problem in Perspective: Their Behaviour or Ours" under
the sub-heading of "The Impact of Discrimination on Young Gay Men."
[115] C.N.Kendall and S.Walker,
op.cit., p. 5.
[116] M.Heywood, op.cit., p. 10.
[117] S.Gruskin, "Human Rights and
Public Health: An Overview", Speech Presented at the XII International
AIDS Conference, Geneva, Switzerland, June 1998, extracted from
http://www.hri.ca/, p. 4.
[118] This is most clearly evidenced
in the reality that HIV/AIDS disproportionately affects marginalised
groups who lack human rights protection.
[119] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 40.
[120] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 10.
[121] D.Stephens, "Human rights:
from policy to practice", Reprinted from HIV/AIDS Legal Link, Vol. 8
(1997), published by the Australian Federation of AIDS Organisations,
pp. 10-11.
[122] J.M.Dwyer, "Legislating AIDS
Away: The Limited Role of Legal Persuasion in Minimizing the Spread of
the Human Immunodeficiency Virus", Journal of Contemporary Health Law
and Policy, Vol. 9 (1993), p. 169.
[123] P.Piot, op.cit., (1996), p. 2.
[124] ibid.
[125] ibid.
[126] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 24.
[127] M.Kirby, op.cit., p. 1217.
[128] M.Thornton, "Sex
Discrimination Legislation in Australia", Australian Quarterly, Vol. 54
(1982), p. 401.
[129] Data provided by the
Anti-Discrimination Board of New South Wales from its Annual Reports
1997-98.
[130] J.Cabassi, "Out of Reach",
Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997), published by the
Australian Federation of AIDS Organisations, p. 9.
[131] New South Wales Anti-Discrimination Board, Discrimination -
The Other Epidemic: Report of the Inquiry into HIV and AIDS Related
Discrimination (1992).
[132] J.Cabassi, op.cit., p. 9.
[133] ibid.
[134] (1995) 127 ALR 1.
[135] W.Wright, "HIV/AIDS Related
Discrimination", Law Society Journal, Vol. 30 (1992), p. 63.
[136] Note that there have been
proposals to try and overcome the lack of enforcement power of HREOC.
One current proposal, which at the time of writing was in its second
reading in the Senate, is The Human Rights Legislation Amendment Bill
(No.1) 1996. The Bill proposes to remedy the current enforcement problem
by transferring HREOC's hearing function to the Federal Court to
overcome the need for two hearings. Yet, in no way does the bill
satisfactorily overcome the prospect of two hearings. This is because it
will enable judges to delegate decision-making power to judicial
registrars in discrimination matters - and decisions by judicial
registrars are not enforceable. Moreover, this in itself, creates many
disincentives to using the system, including massive financial
disincentives such as filing fees. See, J.Cabassi, "Out of Reach",
Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997), published by the
Australian Federation of AIDS Organisations, pp. 9-17.
[137] J.Cabassi, op.cit., p. 11.
[138] Adding to the fundamental
inadequacies associated with HREOC is the fact that in its first budget,
the current Federal Coalition Government announced significant funding
cuts to HREOC, amounting to 40% over three years. A loss in funding as
such has seen the capacity of the Commission's complaints handling
functions diminished. See, R.Banks, "Human Rights & discrimination body
facing erosion of powers", Reprinted from HIV/AIDS Legal Link, Vol. 9
(1998), published by the Australian Federation of AIDS Organisations, p
10.
[139] Tasmanian law does not
prohibit discrimination on the grounds of HIV/AIDS. In South Australia,
the Equal Opportunity Act prohibits discrimination where a person has
symptomatic HIV infection such that it is not clear whether this covers
asymptomatic HIV/AIDS infection.
[140] ss. 83(1) and (3), WA EO ACT;
s. 103, NSW A-D Act; s. 44(4) VIC. EO Act.
[141] G.K.Roussos, "Protections
Against HIV-Based Employment Discrimination in the United States and
Australia", Hastings International & Comparative Law Review, Vol. 13
(1990), p. 666.
[142] H.Watchirs, HIV/AIDS and
Anti-Discrimination Legislation, Intergovernmental Committee on AIDS
Legal Working Party (Canberra: Commonwealth of Australia, 1991), p. 31.
[143] B.Doyle, "Disability
discrimination and enforcement in Britain: future prospects" in
M.MacEwen (eds), Anti-Discrimination Law Enforcement: A Comparative
Perspective (Suffolk: Ipswich Book Comp, 1997), p. 78.
[144] J.Cabassi, op.cit., p. 14.
[145] ibid.
[146] M.Landolt, "Are AIDS Victims
Handicapped", Saint Louis University Law Journal, Vol. 31 (1987), p.
730.
[147] P.Garde, "Discrimination and
Vilification", Reprinted from HIV/AIDS Legal Link, Vol. 9 (1998),
published by the Australian Federation of AIDS Organisations, p. 12.
[148] J.Cabassi, op.cit., p. 14.
[149] G.K.Roussos, op.cit., p. 673.
[150] P.Van de Ven, S.Kippax,
J.Crawford, K.Race and P.Rodden, op.cit., p. 141.
[151] In each jurisdiction there are
complex range of exceptions to the legislation both generally, and
particularly in relation to impairment or handicap. Exceptions include
in employment in a private household, in a business employing less than
six people or in a private educational authority. Section 49B(3)(b), NSW
A-D Act; s21(4)(g) and (j), VIC EO Act; 71(1) - last ground only.
[152] W.Morgan, "Still in the
Closet: The Heterosexism of Equal Opportunity Law", Critical inQueeries,
Vol. 2. (May 1996), p. 121.
[153] H.Watchirs, op.cit., p. 26.
[154] P.Waters, "The Coverage of
AIDS-related Discrimination under Handicap Discrimination Laws: The US
and Australia Compared", Sydney Law Review, Vol. 12 (1990), p. 377.
[155] H.Watchirs, op.cit., p. 26.
[156] (1988) EOC 92-234
[157] S. 49 (I) New South Wales
Anti-Discrimination Act (1977).
[158] Jamal v Secretary, Department
of Health (1988) EOC 92-234 at 77,200 per Samuels J.A.
[159] G.K.Roussos, op.cit., p. 667.
[160] H.Watchirs, op.cit., p. 26.
[161] ibid, p. 27.
[162] B.Doyle, op.cit., p. 70.
[163] The nature of HIV is that the
course of infection is characterised by periods of health interspersed
with periods of illness. The asymptomatic stages of infection may last
from any period between months and years before a person reaches the
final stage of infection in which he or she is said to have AIDS.
[164] P.Waters, op.cit., p. 377.
[165] S. 4(1)
[166] P.Waters, op.cit., p. 399.
[167] (1987) EOC 92-96.
[168] Kitt v Minister for Tourism
(1987) EOC 92-96
[169] W.Wright, op.cit., p. 62.
[170] P.Waters, op.cit., p. 383.
[171] ibid.
[172] This was quoted by President
Bush upon signing into law the Americans with Disabilities Act.
[173] High Court of Australia, 31
July 1997 FC97/027, P37/96.
[174] C.Ward, "Discrimination Case
Lost in High Court", Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997),
published by the Australian Federation of AIDS Organisations, p. 15.
[175] ibid, p. 17.
[176] ibid.
[177] Initially, the complainants
had won their case at the Equal Opportunity Commission and then lost at
the Supreme Court to which one member, being the only one still alive,
appealed to the High Court.
[178] (1989) FLC 92-043.
[179] Initially, the father did have
restricted access to his child but after suffering depression as a
result of his infection he informed his ex wife that he no longer wanted
access to his child. However, after returning to stable health he
informed his ex wife that he now wished to regain access. She refused to
grant this and so litigation by the father commenced.
[180] In the marriage of B and C
(1989) FLC 92-043 per Smithers J.
[181] J.Godwin, "AIDS hysteria -
the law in support", Legal Services Bulletin, Vol. 14 (1989), p. 170.
[182] For reasoning as to why
staying silent or not working to eradicate discrimination entails the
label "willing executioners", see section in Part I of this paper
entitled, "Challenging Discrimination: An Option or an Obligation?"
[183] J.M.Dwyer, op.cit., p. 177.
[184] S.Burris, "Law and the Social
Risk of Health Care: Lessons from HIV Testing", Albany Law Review, Vol.
61 (1998), pp. 831-893.
[185] A.Nicholson, "The Changing
Concept of Family - The Significance of Recognition and Protection",
Australian Journal of Family Law, Vol. 11 (1997), p. 15.
[186] R.Cotterrell, The Sociology of
Law: An Introduction (Sydney: Butterworths, 1984), pp. 74-76, 104-125.
[187] A.Nicholson, op.cit., p. 13.
[188] W.Morgan, "Queer Law:
Identity, Culture, Diversity, Law", Australasian Gay and Lesbian Law
Journal, Vol. 5 (1995), p. 8.
[189] W.G.Carson, "Law Making: Symbolism and Instrumentality" in
C.M.Campbell and P.Wiles (eds), Law and Society (Martin-Robertson,
1979), pp. 236-246.
[190] No 1998/153, 23 April 1999.
[191] This case concerned The
Victorian Amateur Football Association refusal of Mr. Hall's application
for registration on the basis that such refusal was reasonably necessary
to protect the health and safety of other registered players engaged in
the competition, considering Mr. Hall's HIV positive status.
[192] M.Otlowski, "Association's ban
on HIV positive player ruled discriminatory", Australian Health Law
Bulletin, Vol. 7 (1999), p. 89.
[193] ibid.
[194] Quoted in P.Crane, Gays and
the Law (Pluto Press, 1982), p. 175.
[195] T.de.Bruyn, op.cit., p. 13.
[196] G.K.Roussos, op.cit., p. 1057.
[197] See, J.Cabassi, "Out of
Reach", Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997), published by
the Australian Federation of AIDS Organisations, pp. 9-17.
[198] H.Watchirs, op.cit., p. 35.
[199] A.Nicholson, op.cit., p. 13.
[200] See generally, HIV/AIDS and
Human Rights - International Guidelines, Geneva and New York, 1998, pp.
1-62.
[201] J.Hamblin, op.cit., p. 239.
[202] ibid.
[203] See generally, HIV/AIDS and
Human Rights - International Guidelines, Geneva and New York, 1998, pp.
1-62.
[204] M.Kirby, op.cit., p. 1217.
[205] M.Thornton, op.cit., p. 393.
[206] Specific reforms, which are
needed, is legislative amendment to ensure HREOC determinations in
disability discrimination matters are enforceable. Representative and
organisation complaints and advocacy services should be permitted in
jurisdictions which it is not allowable. Punitive damages should be able
to be awarded. Moreover, legislative amendment is clearly required to
remove the exceptions, which currently pervade anti-discrimination
legislation as the only relevant exception should be discrimination
which is reasonably necessary to protect public health. These reforms
would serve to strengthen anti-discrimination legislation and therefore
would increase its use and also its deterrent function.
[207] W.Wright, op.cit., p. 62.
[208] C.M.Ajat, "Is HIV Really a
'Disability'?: The Scope of the Americans With Disabilities Act After
Bragdon v Abbot", Harvard Journal of Law & Public Policy, Vol. 22
(1998), pp. 751-770.
[209] T.de.Bruyn, op.cit., p. 13.
[210] ibid.
[211] 118 S. Ct. 2196 (1998).
[212] W.E.Parmet and D.J.Jackson,
"No Longer Disabled: The Legal Impact of the New Social Construction of
HIV", American Journal of Law and Medicine, Vol. 23 (1997), p. 36.
[213] ibid.
[214] ibid.
[215] H.Hahn, "The Politics of
Physical Differences: Disability and Discrimination", Journal of Social
Issues, Vol. 44 (1988), pp. 39-47.
[216] P.Waters, op.cit., p. 383.
[217] L.Wherrett and W.Talbot,
op.cit., p. 5.
[218] ibid, p. 13.
[219] It should not, be implied that
the areas covered in this part of the paper are the only areas in which
law reform is needed to improve the legal position of men who have sex
with men, as only those laws which most decisively have an impact on,
and can assist with HIV/AIDS prevention strategies, will be discussed.
[220] S.Clayton, "Equal Age of
Consent", Reprinted from HIV/AIDS Legal Link, Vol. 8 (1997), published
by the Australian Federation of AIDS Organisations, p. 12.
[221] ibid.
[222] C.N.Kendall and S.Walker,
op.cit., p. 9.
[223] ibid.
[224] I.Lauw, op.cit., p. 4.
[225] H.Watchirs, op.cit., p. 8.
[226] Moreover, in Western Australia
setting the age of consent at 21 also adversely impacts on the way that
schools and youth agencies can support people with same sex attractions
who are less than 21 years old.
[227] L.Wherrett and W.Talbot,
op.cit., p. 8.
[228] C.N.Kendall and S.Walker,
op.cit., p. 2.
[229] Specifically, the preamble
states: WHEREAS, the Parliament does not believe that sexual acts
between consenting adults in private ought to be regulated by the
criminal law: AND WHEREAS, the Parliament disapproves of sexual
relations between persons of the same sex; AND WHEREAS, the Parliament
disapproves of the promotion or encouragement of homosexual behaviour;
AND WHEREAS, the Parliament does not by its action in removing any
penalty for sexual acts in private between persons of the same sex wish
to create a change in community attitude to homosexual behaviour; AND
WHEREAS, in particular the Parliament disapproves of persons with care
supervision or authority over young persons urging them to adopt
homosexuality as a lifestyle and disapproves of instrumentalities of the
state so doing.
[230] C.N.Kendall, "Discriminatory
laws leave young at risk", Reprinted from HIV/AIDS Legal Link, Vol. 10
(1999), published by the Australian Federation of AIDS Organisations, p
20.
[231] Quoted from, L.Wherrett and
W.Talbot, HIV/AIDS Prevention, Homosexuality and the Law,
Intergovernmental Committee on AIDS Legal Working Party, 1991, p. 11.
[232] C.N.Kendall and S.Walker,
op.cit., p. 7.
[233] ibid, p. 7.
[234] L.Wherrett and W.Talbot, p. 8.
[235] C.N.Kendall and S.Walker,
op.cit., p. 7.
[236] ibid.
[237] See, G.Brown, R.Chadwick and
A.Goldflam, "'Here For Life' Youth Sexuality Project", WA AIDS Council
in conjunction with the Gay and Lesbian Counselling Service, Western
Australia, Perth, January 1999.
[238] ACT in 1994 passed a Domestic
Relationship Act, which deals with property and financial distribution
on the breakdown of a relationship, and was the first piece of
legislation in Australia to give equal standing to gay and lesbian
relationships.
[239] On the 28 June 1999 the
Property (Relationships) Legislation Amendment Act 1999 (NSW) was
proclaimed which gave same sex couples the same rights as heterosexual
de facto couples.
[240] S.Clayton, "Legal Recognition
of Same Sex Relationships: Where to from Here?", E Law - Murdoch
University Electronic Journal of Law, Vol. 3 (1996), p. 10.
[241] I.Lauw, "Recognition of
Same-Sex Marriages: Time for Change ?", E Law - Murdoch University
Electronic Journal of Law, Vol. 1 (1994), p. 23.
[242] ibid, p. 16.
[243] ibid, p. 18.
[244] A.Nicholson, op.cit., pp.
18-21.
[245] ibid, p. 14.
[246] L.Wherrett and W.Talbot,
op.cit., p. 13.
[247] P.Piot, op.cit., (1996), p. 6.
[248] HIV/AIDS and Human Rights -
International Guidelines, Geneva and New York, 1998, p. 27.
[249] ibid, p. 4.
[250] K.Annan, op.cit., p. 10.
Email:

|