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HEALTH AND HEALTH CARE OF
SOUTHEAST ASIAN AMERICAN ELDERS:
Vietnamese, Cambodian, Hmong and Laotian Elders
Barbara W.K. Yee, PhD
Department of Health Promotion and Gerontology,
University of Texas Medical Branch, Galveston
Texas Consortium of Geriatric Education Centers
http://www.stanford.edu/group/ethnoger/southeastasian.html
DESCRIPTION
This module introduces
the learner to issues in geriatric care for elders from Vietnamese,
Cambodian, Hmong, and Laotian backgrounds living in the United States.
Available information on demographics and health risks are presented
with emphasis on the effect of immigration and refugee experiences and
traditional cultures on elders’ health. Suggestions for assessment and
treatment are included, along with information on barriers to care. The
module is designed to be used in conjunction with the Core Curriculum in
Ethnogeriatrics.
LEARNING OBJECTIVES
After completion of the
module, learners should be able to:
- Describe major
differences in the four Southeast Asian populations and their
traditional health beliefs.
- List at least three
health risks facing elders from the respective Southeast Asian
populations.
- Evaluate the major
options for communicating with an older Southeast Asian patient who
speaks a language not spoken by the provider.
- Develop a strategy for
providing culturally appropriate health screening and education for
Southeast Asian elders for the conditions for which they are at high
risk.
- Describe the important
issues health care providers should consider in working with elders
and their families in end-of-life care.
CONTENT
I. Introduction and
Overview
A. Demographics and
Background of Southeast Asians in the United States
From 1975 to 1995,
approximately 3 million people left Vietnam, Laos, and Cambodia,
including 1.75 million Vietnamese. The U.S. has resettled over 1.4
million of these Indochinese refugees, and the majority of 900,000 were
from Vietnam.
In order to avoid the
social service burden experienced by Miami, Florida, during the Cuban
refugee crisis, the federal government embarked upon a plan to widely
disperse Southeast Asian refugees throughout the 50 states. This
solution was temporary for the large numbers of refugees seeking asylum
after the fall of Saigon in 1975, but was a failed social experiment.
There followed a great secondary migration of refugees from place of
first resettlement in the U.S. toward geographic locations that became
magnets for Southeast Asian refugees. These included locations
characterized by: presence of Southeast Asian community leaders and
sponsoring relatives, tropical climates, strong socioeconomic conditions
for work by non-English speaking refugees, and established social
infrastructure (e.g. Asian grocery stores) by established Asian-American
populations. (For more information on the immigration and refugee
experience, see section III.)
While Southeast Asian
refugees and immigrants have the Vietnam War, refugee experiences and
acculturation issues in common, there is wide diversity within and
across the ethnic groups that comprise the Southeast Asian population.
These include: degree of Westernization and acculturation, education and
literacy in the home country; migration history; social class and social
backgrounds; English and other linguistic skills; social supports; age
at immigration, and years in the United States.
In the 1990 census, a
total of 955,264 individuals residing in the U.S. identified themselves
as Vietnamese; the states in which the largest Vietnamese populations
resided (from largest to smaller) were California, Texas, Massachusetts,
Florida, Illinois, Virginia, Washington, Minnesota, Maryland, New York
and Connecticut. The Hmong (195,119 in the U.S.) were settled in:
California, Minnesota, Wisconsin, North Carolina, Michigan, and
Colorado. The largest Cambodian American populations (176,148 in the
U.S.) are located in: California, Massachusetts, Pennsylvania,
Washington, Minnesota, Texas, and New York. The Laotians (135,423 in the
U.S.) have settled primarily in: California, Wisconsin, Minnesota,
Maryland, Virginia and Texas. The Southeast Asians were concentrated
primarily in urban centers.
For numbers and
characteristics of elders from each of the Southeast Asian ancestry
populations, see the chart in the Introductory section of the
Asian/Pacific Islander modules. In general, Southeast Asian elders are
more likely to be in poverty, much more likely to be foreign born, and
much more likely to be classified as “linguistically isolated” than any
other ethnic minority population.
Buddhism is a common
religion in Laos, Cambodia, and Vietnam. However, a large proportion of
Vietnamese who immigrated to the U.S. are Catholic.
II. Patterns of
Health Risk
A. Southeast Asian
Elders in General
There are many
cross-cutting health risks in the Southeast Asian communities. The
largest amount of empirical research deals with mental health issues and
acute or infectious health conditions. More recently, concerns have
shifted to a discussion of chronic health concerns and risk factors for
cancer, cardiovascular, cerebrovascular, and diabetes conditions. There
are no national data on health status of Vietnamese, Cambodian, Hmong
and Laotians in the U.S. Most of what we currently know about health
status in these Asian groups comes from smaller studies, state or local
statistics.
A large number of
Southeast Asian refugees suffered from mental health concerns during the
refugee experience, sudden and involuntary cultural transplantation to a
foreign culture, spending many years in squalid refugee camps or being
held in political detainee prisons in Vietnam for a decade or more
(Mollica, McInnes, Pham, et al., 1998). In addition to the trials and
tribulations of acculturation and adaptation to Western life, there were
numerous stressors prior, during, and after refugee migration, and
horrific life events during the Vietnam War and its aftermath that may
lead to depression, loss, and trauma expressed as post-traumatic stress
syndrome. The Southeast Asian elderly appear to be at higher risk of
psychological distress than younger Southeast Asians because they have
fewer buffers and coping strategies to deal with their distress
(Shapiro, et al., 1999; Yee, 1997; Yee & Thu, 1987). Acculturation
stress, depression and mental health issues are not often incorporated
into physical health research designs for Asian and Pacific Island (API)
populations. Acculturation stressors, as measured by high cortisol
levels, may be risk factors for cardiovascular and cerebrovascular
diseases, and cancer. (Peeke & Chrousos, 1995; Schneiderman, Antoni,
Saab & Ironson, 2001). Opium or backache remedies containing opium may
continued to be used by Southeast Asian elders in the U.S. to cope with
acculturation stress (Smith & Nelson, 1991).
Lauderdale, Salant, Han
and Tran (2001) found that Southeast Asian women may be at very high
risk for osteoporosis. These authors conducted a cross-sectional study
of women born in Southeast Asia and found that the reference values for
post-menopausal Southeast Asian women were lower than that of White
women. Several predictors of high bone mineral density were: more years
of education, earlier age of menarche, lower height, and coastal birth
(seafood consumption) among premenopausal women.
Southeast Asians are at
excess risk of high blood pressure, high total cholesterol, cigarette
smoking, and obesity (Bates, Hill, & Barrett-Conner, 1989). Overall 61%
were at moderate to high risk in at least one category.
B. Vietnamese
1. Life Expectancy.
It appears that the life expectancy has improved for Vietnamese living
in the U.S. In 1979-1989, Merli (1998) found that the life expectancy at
birth was 61.4 years for males and 63.2 for females. Hoyert and Kung
(1997) report 1992 life expectancy in seven high Asian and Pacific
Islander reporting states to be 78.8 at birth and 18.8 additional years
if a Vietnamese American lived to 65 years of age. The authors caution
that these estimates were based upon small sample sizes, therefore may
limit their generalizability.
2. Cancer.
Cancer is the leading cause of death for Vietnamese of both genders in
the United States. (Hoyert & Kung, 1997; Shinagawa, et al., 1999). High
smoking rates and exposure through passive smoking among Southeast Asian
families contributes to excess cancer rates among this ethnic group. The
SEER data (Miller et al., 1996) report excess cancer rates for
Vietnamese males in nasopharynx, liver, and stomach cancers. The same
authors report excess cancer deaths for Vietnamese women in cervical,
stomach and thyroid cancers. Vietnamese women have the highest incidence
of cervical cancer in the U.S. It appears that much of this can be
explained by lack of Pap screening, however, other factors such as high
stress levels may also contribute to the Vietnamese women’s higher
incidence of this cancer.
3. Heart Diseas.
Stroke Hypertension, and Diabetes. The second leading cause of mortality
for both Vietnamese men and women in the seven U.S. states was diseases
of the heart, and another leading cause was cerebrovascular diseases
(Hoyert & Kung, 1997). Among Vietnamese hypertensives over 40 years of
age, essential hypertension was associated with significant increase in
body mass index (BMI). However, this figure was far lower than the
defined threshold of Occidental obesity. Insulin resistance was found
despite very slight or no excess weight among Vietnamese hypertensives
(Van Minh et al., 1997). This study suggested that thresholds
established in Caucasian populations may be an inexact predictor for the
Vietnamese. Related to the risk of cardiac and hypertension problems may
be the high rates (35%- 42%) of smoking among Vietnamese men.
4. Other Conditions.
Other leading causes of mortality for Vietnamese men included accidents
and adverse effects, homicide and legal interventions; for women they
included accidents and adverse effects, and pneumonia and influenza
(Hoyert & Kung, 1997).
A small community study
of recent Vietnamese immigrants in Boston found the following: 32%
smoked (54% males, 9% females); 24% used alcohol; 17% were depressed on
the Vietnamese Depression Scale, with those older than 40 having more
depression; ova parasites were found in 51%, (63% of them required
treatment); 70% tested positive on the TB test (39% required treatment);
83% had been exposed to hepatitis B and 14% were chronic hepatitis B
carriers (Nelson, Bui, & Samet, 1997).
Environmental exposures
and developmental timing (i.e., in utero, infancy, childhood,
adolescence, young, middle and elderly adulthood) of such exposure need
to be examined to determine how toxicity and carcinogenic substances
influence health of Southeast Asian elderly, for example, dioxin levels
in adipose tissue and exposure to Agent Orange in South Vietnamese
(Verger, et al., 1994).
C. Cambodians
1. Life Expectancy.
Life expectancy in Cambodia is around 47 years for men and 49 years for
females (Heng, 1995). There is no life expectancy data for Cambodians in
the United States. While the major killers in Cambodia are malaria,
tuberculosis, severe anemia, undernutrition, and diarrhea, these
conditions become less health compromising with acculturation and as
chronic conditions take more prominence.
2. Mental Health.
The Cambodians are at very high mental health risk and suffer from
post-traumatic stress syndrome and depression that is exacerbated by
financial stress (Blair, 2000). The majority of Cambodians in the United
States have been touched by the genocide under Pol Pot and the Khmer
Rouge. Up to two million Cambodians died in the killing fields from
violence, starvation, and disease. Mollica, McInnes, Poole and Tor
(1998) found a dose-effect relationship of trauma to symptoms of
depression and post-traumatic stress disorder among Cambodian survivors
of mass violence.
Handelman and Yeo (1996)
found that sadness from obsessive thinking about the loss of family
members or traumatic events in the killing fields were the root of the
most common illnesses among 76 Cambodian elders in San Jose, California.
This condition (pruit chiit/ kiit chraen) produces severe headaches with
dizziness. Similarly, in a study of emotional distress and violence
among Cambodians in Long Beach, California, and Lowell, Massachusetts,
respondents experienced headaches from "thinking too much" about the
horrors of Pol Pot regime. Family violence may be the outcome of
thinking too much, and the woman's solution would be to talk softly to
the violent male. Only half of these Cambodian women would call the
police if necessary. Greater use of alcohol, prescription drugs,
especially sleeping pills, were used to deal with the "thinking too
much".
Drinnan and Marmor
(1991) found that Cambodians presenting with functional visual loss may
have conversion hysteria from wartime experiences and cultural issues.
This explanation for the emotional causes of physical illnesses
illustrates the strong holistic concept of health among Cambodians
Americans. There may be a reactivation of post-traumatic stress disorder
symptoms, behavioral indicators, self-reports of distress, and increases
in heart rate by seeing traumatic videos one to two decades after the
event (Kinzie, et al., 1998).
3.Physical Health.
Cambodians have high rates of hypertension, diabetes, heart disease,
stroke and seizures accompanied by a variety of somatic complaints such
as headaches, stomach aches, dizziness and fatigue (Baughan,
White-Baughan, Pickwell, Bartlome & Wong, 1990). According to Palinkas
and Pickwell (1995), the influence of acculturation on chronic disease
risk needs to be examined, such as preference for and consumption of
traditional foods and changes in food preparation style. While cultural
preferences may remain quite traditional, use of American food
substitutes, alteration of healthy food preparation styles, and lack of
availability of traditional foods products may change nutrition patterns
that may be damaging to the health of Southeast Asian elders.
Many older Cambodian
women, primarily those over 50 years of age, chew betel nut quid, a
stimulant and narcotic substance that is quite addictive, with tobacco,
and red limestone paste. Chewing betel nut or its leaves puts one at
possible risk for oral squamous cell cancer that is prevalent throughout
Southeast Asia (Reichart, Schmidtberg & Scheifele, 1996). This is a
female rite of passage into adulthood, and Cambodian older women do not
view this addiction as harmful. It appears that with acculturation,
younger Cambodians have not adopted this addictive and health damaging
health habit.
Cambodian refugees often
do not associate liver disease with Hepatitus B virus, only heavy
alcohol use, according to Jackson, Rhodes, Inui, and Buchwald (1997).
These authors found that about 10-15% of Asian refugees are chronic
carriers of Hepatitis B virus. Liver cancer may be a possible negative
outcome from this chronic infection.
D. Hmong
1. Cancer.
According to Mills and Yang (1997), the Hmong have elevated rates of
cancer for the following sites: nasopharynx, stomach, liver, pancreas,
leukemia and non-Hodgkin’s lymphoma. Cervical cancer incidence overall
was elevated, and invasive cervix cancer rates were higher than
expected. Hmong also experienced advanced stage and grade of disease at
diagnosis for many cancer sites in addition to cervical cancer. Cultural
factors are implicated such as avoidance of Western medical care, thus
leading to low rates of participation in screening programs.
2. Other Conditions
In one study Hmong were found to have significantly lower mean
cholesterol level than other Southeast Asian populations (Bates, et al.,
1989).
E. Laotian.
No data are available of
the specific health risks of elders in the U.S identified as Laotian.
III. Culturally
Appropriate Geriatric Care: Fund of Knowledge
Two issues that are
important background knowledge for effective care of elders from
Southeast Asia are the traditional health beliefs and practices they may
have, and the historical experiences of their cohort.
A. Health Beliefs and
Practices
The belief and practices
of Buddhism are widespread in Southeast Asia. Many Buddhists believe
that human suffering and hardships provide the catalysts for change and
development (Young-Eisendrath, 1998). During difficult periods of life,
people will become enlightened and focus on how their suffering and
hardships are brought about by their own attitudes and intentions,
actions and relationships. Buddhism teaches believers that suffering is
necessary to develop personal responsibility for subjective lives and
awaken thoughtful compassion about human limitations. Illness as
suffering has value as a catalyst for change and development. Therefore,
the illness and disability journey, through pain and suffering, can
provide valuable lessons in life (Miles, 1995). Delays in obtaining
relief from illness may be a Buddhist stoic response to religious
awakening.
Some traditional
remedies practiced by many groups throughout Southeast Asia include
herbal medicines, coin rubbing, cupping, therapeutic burning
(moxibustion), and acupuncture (Jenkins, et al., 1996). Because coin
rubbing to relieve “wind illness” produces superficial abrasions,
Western providers can misinterpret them as elder abuse.
1. Vietnamese.
Traditional Vietnamese believe in one or a combination of three models
of health (Tung, 1980). First, the Am-Duong model is based largely upon
Chinese traditional medicine and a belief that illnesses are caused by
imbalances in the yin (am) and yang (duong) (Sheikh & Sheikh, 1989).
Physiological imbalances can be caused by high emotional state, external
influences such as sudden climatic or seasonal changes that block the
circulation of vital energy (chi) or blood. Acupuncture can clear
obstructions.
A second organic model
sees illnesses as a function of the nervous system. For instance,
neuroses are weakness of the nerves (than kinh suy nhuoc) and psychoses
are turmoil of the nerves (than kinh thac loan). Verbal expressions such
as weak nerves may signal minor mental disorders from anxiety,
depression and mental deterioration. A nerve tonic or tranquilizer is
usually prescribed to treat such conditions.
In the third model, a
supernatural intervention is the most persistently held cause of mental
illnesses. Tien dieties have the power to protect, and errant spirits
are ancestors who have not been properly venerated by their descendants
with ancestor worship ceremonies and offerings. The Vietnamese have
spirit mediums, and sorcerers deal with the spirits. Buddhist priests
and lay monks can provide amulets and medicines for physical ailments,
as well as exorcism for spiritual ailments (Hickey, 1964).
2. Cambodian.
The Cambodian people or Khmer culture is a combination of indigenous
folk traditions, Indian, and French influences (Zadrozny, 1955). The
majority of Cambodians adhere to Theravada Buddhism. The folk religion
centers on spirits in the natural habitats such as mountains, ancestral
spirits, and dangerous spirits or ghosts. Some spirits are benevolent,
while others are malevolent. Western medical practices were introduced
in Cambodia around 1860, however, indigenous practitioners were the
first line of defense. Western doctors were seen only when the illness
persisted. There were indigenous practitioners who dealt with sorcery
and exorcised the evil spirits from the patient. Buddhist monks provided
medical services from spiritual to Western therapy. The causes of
illness were typically attributable to supernatural causes or natural
causes such as humoral imbalances. Spirits cause illnesses by entering
the body through the patient's food. Practitioners of black magic can
prevent or cause harm to people.
Illnesses from humoral
imbalance come from Ayurvedic medicine in India and Southeast Asia and
its use of five basic elements -- ether, wind, water, earth and fire to
regulate bodily functions. According to Ayurvedic thought, illness
occurs when the homeostatic condition of the humors is upset (Sheikh &
Sheikh, 1989).
Treatments consist of
ritual ceremonies to deal with the nefarious spirits and pay homage to
the benevolent spirits, moxibustion, and herbal medicines.
3. Hmong.
The Hmong are a very traditional people without a written language prior
to coming to the United States. The Hmong formed nomadic clans who
wandered in the remote and sparsely populated mountains of Laos, used
shamans, and were animistic in their folk healing beliefs. The Hmong
combine Chinese medicine and Protestant Christian beliefs, but spirit
illness and soul loss beliefs still persist in this country (Fadiman,
1997). Temporary soul loss or soul separation is considered a factor in
the majority of illnesses (Geddes, 1976). Souls can be separated by
accident or by a frightening event, or may be taken by an angered or
offended spirit. A shaman is an important leader and healer who is the
only person who can communicate directly with the supernatural spirits;
he has clairvoyant powers in traditional Hmong culture.
Sudden Unexpected
Nocturnal Death Syndrome among healthy Hmong refugees has been
attributed to nightmare or attack by evil spirit that threatens to press
the life out of its terrified victim (Adler, 1995).
Hmong may not make
direct compliments or show great admiration for loved ones since this
may attract the attention of evil spirits and arouse their envy. As a
result of this envy, the evil spirits may take away the loved ones.
The Hmong perceive
dementia as a natural part of aging and the lifecycle, rather than a
devastating disease that robs individuals of their identity and autonomy
(Olson, 1999). Wandering and combativeness are rare or non-existent in
the Hmong community, in spite of the fact that demented relatives are
cared for in their sons’ homes. Nursing home placement is made for
advanced dementia only when sanctioned by the entire extended family.
4. Laotians.
Laotians are mostly literate and Buddhist. Many of the population of
Laotians in the U.S. are from Lao Mien background. Like the Hmong,
traditional Lao Mien believe that the spirit world can exert influence
over the world including, health and well being of humans. The
supernatural world consists of ancestral spirits and spirits of animals
and plants. They can be protective; however, they can also be a major
source of human affliction such as illness or accidents. The Mien have
been strongly influenced by the Chinese Taoist, and healing practices of
Lao-tsu and his priests. An individual's spirit status in the spiritual
world is dependent upon whether the person accumulated merits during
their life. The Mien believe that health is dependent upon the status of
the 12 souls that make up a person's life force (Hwen) (Miles, 1973).
These 12 souls correspond to 12 parts of the body (i.e.,eyes, ears,
mouth and nose, neck, arms, chest and upper back, abdomen and lower
back, legs, left side of the head, right side of the head, feet and
hands). Illness may be produced when malevolent ancestors express their
anger by creating a loss of hwen. Illness is created in that part of the
body associated with that lost soul.
The Mien have two major
ways of dealing with sickness. "Dia " medicine is called upon in cases
of illnesses due to hereditary factors. "Tsiang" ceremonies are carried
out to address illnesses attributed to supernatural causes. In this
latter case, Taoist grand master priests or other priests and spirit
mediums are called to deal with these illnesses.
The Mien living in
Richmond California integrated traditional healing beliefs and practices
with the use of Western health services (Gilman, Justice, Saepharn &
Charles, 1992).
B. Historical
Experiences of the Cohort of Southeast Asian Elders
Until April 30, 1975,
there were very few Vietnamese, Cambodian, Hmong or Laotians residing in
the U.S. The fall of Saigon dramatically changed the landscape of the
Asian American population forever. It is important for health providers
to know something of the events the cohort of elders they care for are
likely to have experienced.
1. Vietnamese.
Over 130,000 Vietnamese left the country in 1975 in the final days of
the war, half of whom were evacuated by the U.S. military. These
Vietnamese military, government officials, and U.S. employees were
considered high risk for imprisonment. Starting in 1977, large waves of
Vietnamese refugees were created by policies pursued by the Communist
revolutionary government. In late 1978, Malaysia started preventing
Vietnamese boat people from landing, or if they landed were towed back
out to sea. Refugee drownings and horror stories of pirate attacks
created an international outcry that set the United Nation’s refugee
policy for the next decade. By the end of 1978, about 62,000 boat people
were in refugee camps across nine countries in Southeast and East Asia.
In July 1979, the United Nations established a multilateral program to
help Indochinese refugees and displaced persons around the world.
Vietnam cracked down on illegal departures starting in July of 1979 that
reduced fleeing of boat people from 54,941 to 9,734 two months later.
The U.S. the Refugee Act
of 1980 (i.e., Immigration and Nationality Act, section 207) dealt with
the ongoing problems of Vietnamese boat people and other Indochinese in
need of resettlement. More than 80,000 Amerasian children and
accompanying family members were admitted to the U.S. through the
Amerasian Homecoming Act of 1987. By late 1980s, most of the
resettlement countries resettled top priority applicants. The U.S.
resettled some 4,600 former U.S. government employees and another
165,000 former reeducation camp detainees and their immediate family
members. After the Southeast Asian refugees of the 1970’s became
naturalized citizens, many petitioned for immigration of their eligible
family members, including many older parents who continue to come to the
U.S. as “followers of children.”
Many people leaving
Vietnam in the late 1980s came to the U.S. under approved immigrant
petitions for admittance to this country. The United Nations sponsored a
conference to establish agreements among 70 countries, known as the
Comprehensive Plan of Action for Indochinese Refugees in June of 1989 to
deal with the 100,000 Vietnamese boat people in camps throughout
Southeast Asian and Hong Kong. In 1989, 70,000 Vietnamese boat people
left Vietnam. This international policy reduced the number of disorderly
refugee flights from Southeast Asia. When the Comprehensive Plan of
Action for Indochinese Refugees ended in June, 1996, the Vietnamese in
refugee camps throughout Southeast Asia were either approved for
resettlement or given incentives to return voluntarily to Vietnam. By
1999, about 1.75 million Vietnamese had left Vietnam and been resettled.
In 2000, the U.S. included East Asian refugees in its annual refugee
resettlement ceilings of 8,000 each year.
The Welfare Reform Act
of 1996 created a lot of confusion and stress among the elderly
Southeast Asian immigrants who were caught in this reform frenzy. Many
of these Southeast Asian elders were already in poverty and had no
resources with which to support themselves when welfare funds were
withheld. [See Asian and Pacific Islander Health Forum (www.apiahf.org)
and other websites for more information.] Several congressional remedies
were enacted to address elimination of welfare and SSI support for some
elderly immigrants and refugees groups. (See Social Security
Administration site or
www.apiahf.org/new_featured/ssi.html for more details.)
C. Hmong
The Hmong tribes had
lived in the mountainous areas of China and then Laos for centuries
before the outbreak of the Vietnam War. Hmong men were recruited to
fight for the U.S. and became a dependable and important part of the
fight against North Vietnam, incurring massive casualties. When Laos and
Vietnam fell to the communists, a few Hmong officers and their families
were flown to Thailand to safety, but an estimated 150,00 were forced to
make the trek by foot pursued by communist soldiers. Many children and
adults died or were killed before reaching the refugee campus. Some were
captured and imprisoned and sent to “reeducation” camps. After sometimes
years in overcrowded refugee campus in Thailand, thousands of Hmong were
given refugee status and transported to the U.S. and other countries
such as France, Canada, Australia, and Argentina in the late 1970s and
1980s . Because they had maintained a relatively isolated and very
self-sufficient lifestyle based primarily on agriculture in rural
mountainous areas, most knew nothing about urban living such as indoor
toilets, kitchen appliances, or supermarkets. Their transition to the
U.S. urban culture was very abrupt and traumatic. Families were
traditionally very large, and some had been polygamous, so the
resettlement meant that family members were often separated from loved
ones. Because their language had been primarily oral rather than
written, the transition to a culture based on written words made the
acculturation even more difficult. For an excellent description of
experiences of this population, see Fadiman, (1997).
The Hmong Veterans’
Naturalization Act of 2000 eased naturalization requirements for
eligible former spouses of deceased Hmong veterans who supported U.S.
military during the Southeast Asian conflict.
IV. Culturally
Appropriate Geriatric Care: Assessment
A. Use of
Interpreters
A key component of cultural competence is linguistic competence. It is
defined by the Office for Civil Rights in the U.S. Department of Health
and Human Services (1999) as the " skills to communicate effectively in
the native language, or dialect of the targeted population, taking into
account general educational level, literacy and language preferences".
The director of the Office of Civil Rights, Tom Perez, issued a guidance
memorandum entitled "Title VI Prohibition against national origin
discrimination--persons with limited-English proficiency" (www.hhs.gov/ocr/lep/).
Poor practices include: use of family or friends as
interpreters-especially children; use of untrained bilingual staff like
janitors or secretaries or community volunteers; telephone
interpretation; non-certified/untrained contracted interpreters; limited
or low quality written materials in relevant languages or inappropriate
literacy levels of translated materials. More details can be found at
the web sites
www.healthlaw.org and
www.diversityrx.org. Jackson (1998) argues that the long term
savings in financial and human costs are enormous in spite of short term
costs since adequately trained interpreters can lessen common issues
that arise during bilingual clinical encounters such as bad
paraphrasing, impatience, lack of linguistic equivalence, interpreter
beliefs, ethnocentrism and role conflicts. Medical interpretation is a
civil rights issue and can be economically justified by improvement of
long term health outcomes. See
www.diversityrx.org for medical interpretation resources. It is very
important to provide cultural and linguistic competence in aging
services because more Southeast Asian elders are non-English or limited
English speaking in comparison to younger Southeast Asians.
(See Section on use of
interpreters in Module IV of the Core Curriculum in Ethnogeriatrics for
a comparison of different modes of providing medical interpretation).
B. Standardized
Measures
Research to ensure that
assessment and measurement tools are culturally competent for the
Southeast Asian population is just beginning. There are, however,
several well established and validated translated instruments for
depression:
·
Vietnamese Depression Scale
(Buchwald, Manson, Dinges, Keane, & Kinzie, 1993);
·
Hmong Adaptation of Beck
Depression Inventory (Mouanoutoua, Brown, Capelletty & Levine, 1991);
and
·
Hopkins Symptom
Checklist-25-Hmong version (Mouanoutoua & Brown, 1995).
An acculturation scale
for Southeast Asians was developed by Anderson, et al., (1993). This 13
item acculturation scale included two subscales: proficiency in
languages; and language, social and food preferences. Marino, Stuart, &
Minas (2000) argued that there was a degree of independence between
psychological acculturation such as self identity, (the majority of
acculturation instruments fall into this category) versus behavioral
acculturation. In addition, most acculturation measures are heavily
weighted towards English language acculturation.
C. Translation of
Assessment Instruments
The science of
cross-cultural equivalence of assessment tools has just begun to examine
cross-cultural equivalence in translated psychological instruments among
college and young adult samples. Unfortunately, very little of this
preliminary research has been conducted with non-English speaking
elderly. For example, Devins, Beiser, Dion, Pelletier, and Edwards
(1997) examined the psychometric equivalence of Cantonese, Vietnamese
and Laotian translations of the Affect Balance Scale. They found that
confirmatory factor analyses indicated a good fit between the
hypothesized positive and negative affect factor model. However, there
was small percentage of people over 56 years of age in the sample [i.e.,
1% (4) Vietnamese individuals, 3.6% (7) Laotians, and 8.5% (64)
Cantonese speaking subjects].
A certain translation
protocol is suggested by cross-cultural researchers (Brislin, Lonner &
Thorndike, 1973). This process includes translating the instrument from
English to the target language, then a new group of translators would
translate the document back into English. Discrepancies between the
original English version and the back-translations are resolved by
consensus and clarification to produce conceptual equivalence. The
caveat is that even under ideal circumstances, a translated/back
translated instrument may be unable to assess concepts that have no
conceptual equivalence or are culturally bound concepts (Dunnigan,
McNall, Mortimer, 1993).
D. Other Issues in
Assessment
For information on
eliciting elders’ perception of their conditions, sometimes called
“explanatory models of illness” and issues in the domains of clinical
assessment, see Module IV of the Core Curriculum in Ethnogeriatrics.
Because the use of
herbal remedies is widespread among traditional Southeast Asian elders,
one issue that could be kept in mind is the possibility that a few of
herbal remedies may contain strychnine or other harmful substances
(Katz, Prescott & Woolf, 1996).
V. Culturally
Appropriate Geriatric Care: Treatment Issues
Culturally competent
primary health care goes beyond mere medical interpretation to hiring
bilingual/bicultural outreach staff to provide case management,
follow-up care and education of health professionals (Jackson-Carrol,
Graham & Jackson, 1996).
A. Health Promotion
Significant increases in
maintaining or adopting healthy behaviors (physical activity, nutrition,
elimination of smoking, stress management), with regular preventive
physician visits and screening could substantially improve the health of
Southeast Asians. Smoking cessation campaigns for Southeast Asian males
(i.e., 72% Laotians, 35% to 42% Vietnamese, and 29% Hmong smoke) can
lessen the burden of lung and other cancers, asthma, and other
respiratory conditions among all Southeast Asian family members through
exposure by passive smoking, and eliminate smoking role models for
younger members. It appears that acculturation and adoption of unhealthy
American lifestyle habits and rejection of healthy traditional habits
may be damaging the health of Southeast Asian elderly (Yee, 1999b).
A particularly important
emphasis for screening needs to be Pap smears for cervical cancer, given
the high risk for Southeast Asian women. Based on findings on
utilization (see Section VI below), recommendations include having a
female provider, spending time to establish rapport prior to health
education, support groups to discuss women's health issues, and
explaining the rationale for importance of screenings and procedures and
equipment involved. It seems important that female physicians/health
professionals carry out exams and explain the results.
Authors have suggested
that incorporation of Buddhist values and concepts into health promotion
and intervention programs might increase the acceptability and impact of
those programs (Barrett, 1997; Loue, Lane, Lloyd & Loh, 1999).
B. Medication
Pham, Rosenthal &
Diamond (1999) found that Vietnamese believed Western medicine to be
“stronger, faster, and curative” while folk medicine is “weaker, slower,
but preventive”. These beliefs have major implications for adherence to
medical regimens by Southeast Asian elders. Decreasing drug doses is a
cultural response to their perceptions about these Western medications.
To the degree that this is systematically done by older Vietnamese and
other Southeast Asian patients, some medications may not be effective.
Rationales provided by
Cambodian patients for not adhering to the medical schedule and dosing
requirements as prescribed by their physicians were: misunderstandings
about what the medication was for; its side effects; concerns about the
powerful effects of Western medicines; and Cambodian beliefs about
pharmacokinetics (e.g., the belief that strong stomach reactions would
be produced when two medicines are taken simultaneously (Shimada,
Jackson, Goldstein, & Buchwald, 1995).
The issue of Southeast
Asian ethnicity and pharmacology needs to be explored (Lin, Poland &
Nagasaki, 1993). Cross-ethnic differences in response to therapeutic
agents have been found, but specific differences among Southeast Asian
populations were not explored.
C. Working with
Families
Gender and age roles are
important in adaptation to aging by Southeast Asian immigrants. The
Southeast Asian gender and age roles expressed in families and in the
larger community vary by acculturation levels (Yee, 1999a). These age
and gender roles may influence family decision making.
Medical decision making
and intergenerational relationships vary greatly across the Southeast
Asian communities. (Yee, Huang, & Lew, 1998). Providing orientation to
the health care system and elder care services (e.g., Alzheimer's
respite, SSI, Medicare, Medicaid), health education, and health
promotion to the entire Southeast Asian family would enhance utilization
of these services for the elderly. More acculturated members of the
Southeast Asian families can traverse the complicated health care system
and be very effective advocates for their elderly relatives. The
Southeast Asian elders are paid great deference because they are titular
heads of families. However more acculturated family members will be the
conduit to utilization of services by elderly family members. Family
interventions enhance the effectiveness of individually targeted
interventions.
D. End-of-life Issues
with Southeast Asian Families
Cultural issues abound
in health care and end-of-life decision making. Typically elders are
more traditional. Braun, Pietsch & Blanchette (2000) argued that culture
influences a wide variety of death and dying attitudes and medical
decisions. Southeast Asian families have been influenced by their
religious and cultural philosophies, such as Buddhist beliefs
surrounding karma and reincarnation with concern for ancestral spirits.
These beliefs may lead to an avoidance of hospitals where souls of
people who died may not have a place to rest and can create havoc upon
the living. Delayed medical attention may be the result of this
avoidance of hospitals where lost souls may gather.
Organ donation would be
less likely because donors would be reborn incompletely without all
their vital organs in the next life. Decisions to donate organs of dying
elders by family members may be viewed as a sign of disrespect and as
lacking in filial piety towards the family elder/ancestor (Nakasone,
2000). This unfilial behavior may anger the family ancestor who may
create mischief for the living. However, the willingness to be a live or
after-death donor of organs and tissues may be increasing, especially
for close relatives or friends, with the approval by other family
members (Hai, et al., 1999). These authors also found that Vietnamese
would be more willing to donate organs and tissue if medical care was
provided to the donor's family or if there were monetary rewards for
such donations.
Heroic medical
interventions, such as organ transplants or cardiac resuscitation, with
hospital strangers surrounding the dying person, may be regarded as
disturbing the natural ebb of life and a sign of a "Bad death" with a
great deal of negative emotions. Withdrawal of life supports may be
viewed by Southeast Asians as causing or speeding the demise of their
family elder. Palliative care with its comforting, peaceful, and family
supportive dimensions may be more acceptable for Buddhists and other
Southeast Asians. Many Vietnamese have been influenced by Catholic,
Taoist and Buddhist beliefs regarding life and death (Ta and Chung,
1990). For instance, Vietnamese women may not want the dying person to
be told that he/she was dying (Calhoun, 1985). There are cultural
differences in death and dying truth telling (Crow, Matheson & Steed,
2000; Muller & Desmond, 1992). Many Southeast Asian families do not want
or allow the physician to inform dying family members of their terminal
prognosis because it would cause them to lose hope. Some do not want to
upset the loved one, others don't want to because this may bring death
sooner, or truth telling about dying may show a lack of respect for the
soon-to-be ancestor.
The issue of advanced
directives among Southeast Asian elders needs to be examined. Vaughn,
Kiyasu & McCormick (2000) found that the majority of Chinese, Japanese,
Korean, Filipino and Southeast Asian nursing home residents were listed
as “no code” on their resident charts. Age and higher comorbidity was
related to having no code indicated on their resident charts.
VI. Access and
Utilization
Southeast Asians appear
to access health care services to a lesser degree than their Caucausian
or English speaking counterparts. For instance, Kuo and Porter (1997)
found in the 1992-1994 Health Interview Survey that, in spite of fair or
poor health self reports, the Vietnamese respondents did not see a
physician as often as Caucasians. There were a greater number of
Vietnamese who knew nothing or very little about diseases such as AIDs (Kuo
and Porter, 1997) or cervical cancer (Schulmeister & Lifsey, 1999; Yee,
1997) and preventive behaviors/tests such as Pap smears. For instance,
Jenkins, McPhee, Bird, and Bonilla (1990) found that health knowledge
regarding cancer risks, unhealthy lifestyle behaviors, and cancer
prevention practices need to be improved among the Vietnamese. The
Association of Asian Pacific Community Health Organizations (1996)
spelled out recommendations for providing health services in API
communities. The most common reason for lack of health care access is
the lack of linguistically and culturally competent health services.
According to Cox (1986) a unique predictor of physician use among
Vietnamese elderly was satisfaction with their medical care, a finding
that was not found among Portuguese or Hispanic elders.
Health beliefs and misconceptions of disease and illness may impede
recognition of early warning signs and delay access to medical
treatment. For instance, newly arrived Vietnamese felt that tuberculosis
was an infectious lung disease with cough, weakness and weight loss as
symptoms (Carey, et al., 1997). Hard manual labor, smoking, alcohol
consumptions and poor nutrition were believed to be risk factors. Many
Vietnamese respondents incorrectly believed that asymptomatic latent TB
infection was not possible and that TB infection always leads to
disease. Nearly all respondents in this study felt that having TB would
adversely impact their work, family and relationships, and community
activities. Focus groups conducted in Vietnam found that four types of
tuberculosis were identified (Long, Johansson, Diwan & Winkvist, 1999):
1)Lao truyen or inherited TB that was handed down from older generations
to younger through family blood; 2) Lao luc or physical TB caused by
hard work with more of the men affected; 3)Lao tam or mental TB that is
caused by too much worrying with more women being affected by this type;
and 4) Lao phoi or lung TB that is dangerous and caused by the TB germs
by transmission through the respiratory system with men more affected by
this TB. These traditional TB beliefs contribute to long delays in TB
diagnosis, increased social stigma, and social isolation due to
erroneous beliefs in transmission routes.
The Commonwealth Fund
(1995) conducted a national survey comparing the health experiences of
1,048 African Americans, 1,001 Hispanic, 205 Chinese, 201 Korean, 201
Vietnamese and 1,114 white adults in the U.S. This study found that
Hispanic and Chinese, Korean and Vietnamese adults said lack of
insurance, health care costs, not having a regular doctor, and less
satisfaction with health care services were associated with less care.
Compared to 25% of white adults, 47% of the Vietnamese group who had
visited the doctor in the last year did not receive preventive care
services such as blood pressure tests, Pap smears or cholesterol. Lack
and lapse of insurance were bigger problems for minority Americans and
was associated with consequences, such as not taking expensive
medicines, or not taking or delaying needed medical tests. Southeast
Asians feared using medical services during welfare reform because of
potential threat of being deported. Minority adults also had little or
no choices in where they obtained health care, a condition particularly
acute among Asian and Hispanic Americans. Barriers to care were high
costs of health care, long waits, poor access to specialty care with
language and cultural barriers. Ethnic minorities were less likely to be
satisfied with their care. Vietnamese, Mexican and Puerto Rican adults
received less preventive care such as blood pressure tests, Pap smears,
or cholesterol readings, compared to their white counterparts.
Southeast Asian women
participate in health screening less than their American counterparts
(Phipps, Cohen, Sorn and Braitman (1999). The Vietnamese and Cambodian
women had poor cancer knowledge and were unable to identify cancer
prevention strategies. Greater knowledge was associated with employment
outside the home, more years of education, and age, but not with length
of time in the United States. This study implies that limited
English-speaking and traditional Southeast Asian women are not exposed
to cancer information that appears in the English media and society.
Lesjack, Hua and Ward (1999) found that female practitioners, free
screening, and more health information improved recruitment of
Vietnamese women for cervical cancer screening.
Schulmeister and Lifsey
(1999) found that Vietnamese women believed that their risk of cervical
cancer was low. Barriers to screening were not having a gynecologist,
cost and fear of the test. Other studies found the significant barriers
for breast and cervical cancer screening among Southeast Asian women
were: embarrassment and shyness during the physical examination in a
well woman's checkup; cultural barriers concerning being touched by a
stranger and a male physician; a belief that cancer cannot be treated;
and a fear of large medical facilities and the equipment such as used in
mammography (Kelley, et al., 1996; Mahlock, et al., 1999; Tu, et al.,
2000; ;Yi, & Prows, 1996). It appears that successful programs that
serve the needs of Southeast Asian elders include the following
characteristics: 1) use of cultural lay health worker/interpreters, peer
health educators, and family/community interventions to bridge language
and cultural gaps; 2) decrease of cultural health barriers such fear of
surgery and preference for female physicians to conduct health
examination or improvement of health knowledge for chronic disease
conditions and preventive health strategies by ethnic specific videos or
health fairs; 3) use of after hours access, community based and “one
stop” integrated services (e.g., medical, mental health, social
services); 4) decrease of financial and medical coverage barriers and
logistical barriers such as transportation; 5) significant improvements
in health education targeted at Southeast Asian consumers (Cory, 1995;
Free, White, Shipman & Dale, 1999; Lesjak, Hua & Ward, 1999; Mahlock, et
al., 1999; Nelson, Bui & Samet, 1997; Pham, Rosenthal & Diamond, 1999;
Siganga & Huynh, 1997; Stuer, 1998).
INSTRUCTIONAL STRATEGIES
Case Studies
Case of Mr. N.
Mr. N. is a 71 year old Vietnamese former lieutenant colonel who was
imprisoned for 12 years by the Socialist Republic of Vietnam. He was
physically and emotionally tortured with stories of family members being
killed or imprisoned in other re-education camps. Mr. N. felt lucky to
be alive since 165,000 people died in Vietnam’s re-education camps since
1975. He came to U.S. in 1989 and had nightmares every night for the
first couple of years. He feels estranged from his family since he was
imprisoned for 12 years and his family became American strangers to him.
His doctor said that he suffered from Post-Traumatic Stress Syndrome
from his long imprisonment and torture. Now he has nightmares only when
he feels stressed out. He deals with this stress by smoking 4 packs of
cigarettes a day and drinking beer. He has a hoarse cough and sometimes
coughs up blood. His family brought him to see a physician because his
herbal medicines did not work on his cough anymore and he cannot get to
sleep at night.
Case of Mrs. K.
Mrs. K. is a 76 year old Cambodian woman who has seen a physician twice
since coming to the United States in 1978. She had tuberculosis in 1978
and was successfully treated for TB at the County Health Clinic. Mrs. K.
has not seen a physician since 1979. She is brought in to see a male
physician at the County Health Clinics with complaints of severe
headaches with dizziness, accompanied by her English speaking son who
provides the English translation during the medical visit. The physician
notes that its difficult to figure out what the problems may be. Notes
indicate that she talks about “thinking too much” about how many
relatives she lost under Pol Pot and the Khmer Rouge. Her medical
records are incomplete and include only a history of her TB treatment.
Mrs. K. is embarrassed to tell the male doctors, via her son, about some
vaginal blood she noticed over the last 6 months. She believes that she
is now “polluted again”. She stopped menstruating about 20 years ago.
She has never had a well woman check up. In her physical exam, the
physician noted that Mrs. K. had dark stained teeth and appears to have
oral lesions in her mouth.
Case of Mrs. V.
Mrs. V is 62 year old wife of a Hmong war veteran who helped the CIA
during the Vietnam war. They have been on welfare since coming to the
United States, but were dropped from the welfare rolls during welfare
reform. Mr. V. was a chain smoker and recently died from lung cancer. He
provided the only financial source of support for Mrs. V. While Mr. V.
was being treated for his cancer in the hospital, the nurses wanted Mrs.
V. to sign some Advanced Directives papers she couldn’t read. Mrs. V.
did not come to see her husband everyday. Her children claim that she
didn’t want to because there are many lost souls at the hospital, and
they might create problems for her. After a week, Mrs. V. brought
someone from the Hmong mutual aid society to help with the translations.
The translator provided the translation to Mrs. V. about the advanced
directive. She still didn’t understand, but signed anyway. One day, Mrs.
V. came to visit her husband, and the doctors and nurses were pounding
upon Mr. Vang chest to resuscitate him. Mr. V. died, and Mrs. V.
considered this to be a “bad death”. Mrs. V. said that Mr. V. may be
angry with her because he died in a violent way. Mrs. V. complains to
her children that she has terrible headaches and backaches since this
happened. The physicians advise her to make ibuprofen to relieve pains.
Mrs. V. says that these medicines have not worked because the ancestor
spirit of Mr. V. was creating an illness in her head and back by
removing these two body souls. She sees a spiritual medium to do the
ceremonies to appease Mr. V.’s angered ancestor spirit.
Questions for
Discussion or Written Assignment
For one or all of the
cases above, consider the following questions.
1. What would a health
provider’s problem list include for the cases above?
2. How could an
understanding of the cultural health beliefs and/or cohort experiences
assist the health care provider in giving effective care?
3. What kind of
treatment, management, or referrals might the health care provider
consider?
STUDENT EVALUATION
Essay Questions:
1. The large majority of
Southeast Asian elders were refugees fleeing Southeast Asia after the
Fall of Saigon in 1975. How would the refugee experience influence their
adaptation and aging in the U.S.?
2. While the majority of
Southeast Asians share the refugee experience, what differences should
be noted between Vietnamese, Cambodian, Hmong and Laotian populations
that may lead to varying degrees of adaptive aging?
3. What are the major
health threats for Southeast Asian elders? 4. What are some cultural
health beliefs and lifestyle practices of Southeast Asian elders? How
would they influence access and utilization of health services?
5. What are some
strategies to improve the cultural competence of our geriatric services
for Southeast Asian elders?
6. What are some best
practice guidelines for use of language translators?
7. What are some key
issues to consider when using assessment tools to evaluate Southeast
Asian elders?
8. What are some
end-of-life issues for Southeast Asian elders and their families?
9. What are some
important issues to consider in developing a screening program for
cervical cancer for older Southeast Asian women?
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INTERNET RESOURCES
- Asian and Pacific
Islander Health Forum: (www.apiahf.org;
http://www.apiahf.org/new featured/ssi.html).
-
http://www.diversityrx.org
-
http://www.hhs.gov/ocr/lep/ (Tom Perez)
-
http://www.healthlaw.org
- Immigration and
Naturalization Service:
http://www.ins.usdoj.gov
- Immigration and
Naturalization Service. This month in immigration history-July 1979:
http://www.ins.usdoj.gov/graphics/aboutins/history/july79.htm
- National Alliance for
Multicultural Mental Health, The.: A program of immigration and
refugee services of America. Lessons from the field: Issues and
resources in refugee mental health:
http://www.refugeeusa.org
- Southeast Asia Resource
Action Center. 1628 16th St. NW, 3rd Floor, Washington, DC 20009,
(202) 662-4690:
http://www.searac.org
- Southeast Asia Resource
Action Center. (2000). Southeast Asian American Mutual Assistance
Association Directory 2000:
http://www.searac.org/maadirec.html
- Yang, K. Y. (2000,
February 23. The status of Southeast Asian Americans (http//www.searac.org/kayingtest.html).
Paper presented to InterAgency Working Group White House Initiative
on Asian Americans and Pacific Islanders, Southeast Asia Resource
Action Center, 1628 16th St. NW, 3rd Floor, Washington, DC 20009,
(202) 662-4690,
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