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HIV/AIDS
Prevention Research Core
http://www.exporthealth.pitt.edu/core_hiv.htm
The
literature suggests that African American women who are fifty
years old and older are affected by HIV in three important ways.
First, these women are at risk of being infected with HIV and
diagnosed with AIDS. Nationally about 10% of AIDS cases are
among seniors. Second, these women are often the caretakers of
children with HIV infection or grandchildren whose parents can
no longer care for them. Lastly, older African American women
are often community leaders and must deal with HIV as it affects
their local community.
In
Allegheny County, a number of factors slowed the often-called
second wave of the epidemic so that women in our county have not
yet been diagnosed with HIV to the extent that African American
women in other parts of the county have been. However, the risk
of infection is clearly present and effective prevention
interventions need to be supported. It is likely that our
population of women is major caregivers for others infected or
affected by HIV. The literature clearly shows that caregivers
often suffer health consequences such as depression, stress, and
physical problems as a result of the burdens they must bear.
Providers
and affected women from the African American community are
meeting to evaluate the problems facing African American women
over fifty and to make recommendations about needed
interventions and research. Their recommendations will be taken
to the CRAB and the HIV working group for further discussion. At
the end of the process, the Core will have a clear direction and
will work to implement the recommendations of the community with
continued community involvement.
Literature Review Summary
HIV Infected
/ HIV Affected
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Psychosocial |
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Co-existing Medical Conditions
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Stress
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Stigma
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Financial problems
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Parenting
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Low social supports
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Violence
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Risky sexual behavior
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Unstable housing
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Unemployment
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Poor Adherence to HIV medications
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Drug and Alcohol Abuse
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Psychiatric disorders, especially depression
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STDs
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Chronic diseases
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Pregnancy
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Recommendations
Integrate
mental health, substance abuse and medical care, may improve the
adherence and health of HIV+ women, particularly in
multistressed populations with substantial parenting and other
life demands.
Caregiver /
Custodian
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Psychosocial |
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Co-existing Medical Conditions
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Stress
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Stigma
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Parenting (child, grandchild)
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Caregiving
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Low social support
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Financial problems
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Depression
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Chronic diseases, such as diabetes, high blood
pressure, heart disease
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Recommendations
Support
services are needed to address both the psycho-social and
caregiving needs of these individuals (mostly women) -- someone
needs to care for the caregivers - and also their won health
needs.
Community
Leaders
AA women
represent an important intermediate layer of leadership that is
critical to micromobilization for promoting change.
AA
churches have a leadership role to politically empower AA.
However, they are sometimes seen as sexist.
Context
of equality and empowerment, AA churches create on racial issues
might lead to a similar dynamic on gender issues.
Church
attendance is an important correlate of positive health care
practices, especially for most vulnerable sub-groups, the
uninsured and chronically ill.
Selected Bibliography
Whitty,
M. T. (2003). "Coping and defending: age differences in maturity
of defence mechanisms and coping strategies." Aging & Mental
Health 7(2): 123-132.
Theall, K. P., K. W. Elifson, et al. (2003). "Perceived
susceptibility to HIV among women - Differences according to
age." Research on Aging 25(4): 405-432.
Theall, K. P., C. E. Sterk, et al. (2003). "Factors associated
with positive HIV serostatus among women who use drugs:
Continued evidence for expanding factors of influence." Public
Health Reports 118(5): 415-424.
Poindexter, C. C. and T. S. Lane (2003). "Choices and voices:
Participation of people with HIV on Ryan White Title II Consumer
Advisory Boards." Health & Social Work 28(3): 196-205.
Mellins, C. A., E. Kang, et al. (2003). "Longitudinal study of
mental health and psychosocial predictors of medical treatment
adherence in mothers living with HIV disease." Aids Patient Care
and Stds 17(8): 407-416.
Lechner, S. C., M. H. Antoni, et al. (2003).
"Cognitive-behavioral interventions improve quality of life in
women with AIDS." Journal of Psychosomatic Research 54(3):
253-261.
Klein, H., K. W. Elifson, et al. (2003). ""At risk" women who
think that they have no chance of getting HIV: Self-assessed
perceived risks." Women & Health 38(2): 47-63.
Johnson, W. A. and C. E. Sterk (2003). "Late-onset crack users:
An emergent HIV risk group." Jaids-Journal of Acquired Immune
Deficiency Syndromes 33: S229-S232.
Goodkin, K., T. Heckman, et al. (2003). ""Putting a face" on HIV
infection/AIDS in older adults: A psychosocial context."
Jaids-Journal of Acquired Immune Deficiency Syndromes 33:
S171-S184.
Elifson, K. W., H. Klein, et al. (2003). "Religiosity and HIV
risk behavior involvement among "at risk" women." Journal of
Religion & Health 42(1): 47-66.
Clark HJ, L. G., Armistead L, Austin BJ. (2003). "Stigma,
disclosure, and psychological functioning among HIV-infected and
non-infected African-American women." Women Health 38((4):):
57-71.
Somlai
AM, Kelly JA, McAuliffe TL, Ksobiech K, Hackl KL. "Predictors of
HIV sexual risk behaviors in a community sample of injection
drug-using men and women." AIDS Behav. 2003 Dec;7(4):383-93.
Jones DJ,
Beach SR, Forehand R, Foster SE. "Self-reported health in
HIV-positive African American women: the role of family stress
and depressive symptoms" J Behav Med. 2003 Dec;26(6):577-99.
[No authors listed] Community groups push for a greater role in
stemming epidemic. Barriers, including lack of funding, still
exist. Aids Alert. 2003 Nov;18(11):133, 135, 137.
Bogart
LM, Bird ST. Exploring the relationship of conspiracy beliefs
about HIV/AIDS to sexual behaviors and attitudes among
African-American adults. J Natl Med Assoc. 2003
Nov;95(11):1057-65.
Poindexter, C. C., T. S. Lane, et al. (2002). "Teaching and
learning by example: Empowerment principles applied to
development, delivery, and evaluation of community based
training for HIV service providers and supervisors." Aids
Education and Prevention 14(5): 391-400.
Mason, S. and N. Linsk (2002). "Relative foster parents of
HIV-affected children." Child Welfare 81(4): 541-569.
Joslin, D. and R. Harrison (2002). "Self-reported physical
health among older surrogate parents to children orphaned and
affected by HIV disease." Aids Care-Psychological and
Socio-Medical Aspects of Aids/Hiv 14(5): 619-624.
Feaster, D. J. and J. Szapocznik (2002). "Interdependence of
stress processes among African American family members:
Influence of HIV serostatus and a new infant." Psychology &
Health 17(3): 339-363.
Tuck, I., N. L. McCain, et al. (2001). "Spirituality and
psychosocial factors in persons living with HIV." Journal of
Advanced Nursing 33(6): 776-783.
Tolliver, D. E. (2001). "African American female caregivers of
family members living with HIV/AIDS." Families in Society-the
Journal of Contemporary Human Services 82(2): 145-156.
Poindexter, C. (2001). ""I'm still blessed": The assets and
needs of HIV-affected caregivers over 50." Families in
Society-the Journal of Contemporary Human Services 82(5):
525-536.
Hinkin, C. H., S. A. Castellon, et al. (2001). "Neuropsychiatric
aspects of HIV infection among older adults." Journal of
Clinical Epidemiology 54: S44-S52.
Hessol, N. A., M. Schneider, et al. (2001). "Retention of women
enrolled in a prospective study of HIV infection: Impact of
race, unstable housing, and use of HIV therapy." American
Journal of Epidemiology 153(11): S192-S192.
Hessol, N. A., M. Schneider, et al. (2001). "Retention of women
enrolled in a prospective study of human immunodeficiency virus
infection: Impact of race, unstable housing, and use of human
immunodeficiency virus therapy." American Journal of
Epidemiology 154(6): 563-573.
Heckman, T. G., A. Kochman, et al. (2001). "A pilot coping
improvement intervention for late middle-aged and older adults
living with HIV/AIDS in the USA." Aids Care-Psychological and
Socio-Medical Aspects of Aids/Hiv 13(1): 129-139.
Sterk, C. E., K. W. Elifson, et al. (2000). "Women and drug
treatment experiences: A generational comparison of mothers and
daughters." Journal of Drug Issues 30(4): 839-861.
Linsk, N. L. and C. C. Poindexter (2000). "Older caregivers for
family members with HIV or AIDS: Reasons for caring." Journal of
Applied Gerontology 19(2): 181-202.
Klein, K., L. Armistead, et al. (2000). "Socioemotional support
in African American families coping with maternal HIV: An
examination of mothers' and children's psychosocial adjustment."
Behavior Therapy 31(1): 1-26.
Poindexter, C. C. and N. L. Linsk (1999). "HIV-related stigma in
a sample of HIV-affected older female African American
caregivers." Social Work 44(1): 46-61.
Poindexter, C. C., N. L. Linsk, et al. (1999). ""He listens ...
and never gossips": Spiritual coping without church support
among older, predominantly African-American caregivers of
persons with HIV." Review of Religious Research 40(3): 230-243.
Poindexter, C. C. and N. L. Linsk (1999). ""I'm just glad that
I'm here": Stories of seven African-American HIV-affected
grandmothers." Journal of Gerontological Social Work 32(1):
63-81.
Dorsey, S., K. Klein, et al. (1999). "Parenting self-efficacy of
HIV-infected mothers: The role of social support." Journal of
Marriage and the Family 61(2): 295-305.
Poindexter, C. C. and N. L. Linsk (1998). "Sources of support in
a sample of HIV-affected older minority caregivers." Families in
Society-the Journal of Contemporary Human Services 79(5):
491-503.
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