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AGREE
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"HIV exists. It is a real virus. AIDS is just a construct
left over from the homophobic 1980s. "
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"i have increasingly come accross people who view the term
AIDS as the end of existence,HIV can be managed but
clinical AIDS cannot.it is better to have a single term
which will be understood by rural people,especially in
sub-saharan africa which bears the most burden. " [NIGERIA]
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"this will constantly remind the massess of the deadly
disease " [NIGERIA]
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"As people are better informed, HIV will be used more
frequently. "
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"As the focus of the pandemic is rightly on prevention, it is
pertinent that we talk about HIV as a preventible
disease than talk of AIDS as a death sentence and scare
people. " [USA]
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"I often emphasise the need to prevent infection by the HIV
virus to reinforce the fact that we are dealing with an
infection. I also reinforce the fact that AIDS is caused
by the HIV virus "
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"prefer only HIV. But the argument against that is that a new
term like HIV will not be understood by the 'masses' and
so let's just stick to AIDS. " [India]
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"Using "HIV" instead of "AIDS" reduces
the stigma of the infection as a "death
sentence" - increasingly important to convey as
efforts to make HAART available to people living in
developing countries. "
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"let us please use HIV only when we educate/communicate
" [South Africa]
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"HIV is the actual disease, AIDS is a series of end stage
diseases, opportunistic infections, therupon AIDS means
finality, with no hope. "
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"Yes, particularly because the link between HIV and AIDS is
not irrefutable. Also, in preventive work, AIDS is not a
part of the equation when we talk about PMTCT,
transmission, or antiretrovirals. " [U.S.A.]
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"I thought this was already standard practice. "
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"In Tanzania there is so much stigma on AIDS if you say HIV
it is not so impactual as using AIDS. As a journalist I
have also observed that their are too many campigns
reflecting on AIDs so that people no longer take it so
much seriously as it used to be. The ordinary people
feel that from the ongoing campigns it makes people feel
that everybody is unsafe so why not continue with wrong
sexual behaviours? Maybe more effort needs to be placed
on addressing why it is unsafe to continue having
unprotected sex after being infected. This should focus
on the individual's health. People are now aware of the
AIDs but it is still not clear among most Tanzanians
what HIV is. Focus should also be placed on the economic
situation because young girls and women are now even
aware that so and so has AIDs but they still prefer to
have sex with that person because of the money. They
also do not understand HIV so much focus needs to be
placed on addresseing HIV and its relation to the
economy. Finaly I would like to know how easy it is for
people in say a village in Tanzania who are infected to
the diseased to get anti retrovirals what is the
procedure because their is so much misrepresentation and
people imagine one has to have loads of money or be able
to travel to South Africa or abroad to have their blood
changed. I have carried out research on HIV/AIDs
developement in Tanzanian media during my Masters course
at Westminster Unbiversity in London. I like to share my
findings and learn from you as days go by. My telephone
contacts are +255 744 663670 Thank you and let me know
what you get from other people. Stella Swaumu Vuzo
" [Tanzania]
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"more focus has been put on AIDS rather than HIVsuch that
people dont know the difference they fear aids and thats
why we have lots of stigma as people think you get AIDS
then you die they get infected as they always think a
healthy person does not have AIDS they forget about HIV
We need to make it clear that ther is a difference and
what is it Iam HIV positive and healthy and Imust say
Iam tired of being insulted that Iwas bought by
goverment ,Iam seeking attention because its A LONG TIME
SINCE iDECLARED MY STATUS YET STILL HEALTHYwhat they
know iss AIDS AND DEATH NOT hiv " [Swaziland]
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"I agree because the goal is to prevent HIV. Communicating
the prevention of HIV can be more effective to targeted
audience. AIDS and HIV over the years have been made
into one disease to the general public. With the
decrease in the number of cases of AIDS the focus of
communication messages should focus on preventing HIV
and finding out one's HIV status. " [USA]
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"My answer is “yes” to most of the questions, and yes,
using HIV rather than AIDS seems to be more effective
for prevention activities. I think we should analyze the
problem through yet another angle, the international
media. Currently the US based media, which produces most
of the international news, mentions “AIDS” some 12
times more than “HIV” (quick survey using the NY
Times advanced search engine). This ratio has been
consistent for the past five years. The problem is that
the US media increasingly uses “HIV” to refer to
people living with the virus at home. The word
“AIDS” comes to play only when the story covers a
developing country. Not only we have a North-South
“viral load divide”, but this divide is now
underlined by the careful use of either one of the two
words. Can lead to the emotional detachment of the
public opinion of US and other developed countries?
Maybe people will no longer empathize with a concept as
alien to them as “famine”. On the other hand, huge
advocacy efforts were developed under the “AIDS”
flag. What will happen if all of the sudden we speak
only about HIV? Will there be still money for the Global
Fund (for “AIDS”)? This is a complex issue, which
needs to be thoroughly discussed. The same can be asked
about our advocacy efforts in the developing countries.
What will happen to all the ministers and heads of state
we barely brought to the discussion table, once they no
longer hear the word “AIDS”? Whatever are the
answers for those questions, my feeling is that we will
hear a lot more about HIV in the future, so the question
may not be “which” name, but rather “how” should
we conduct a transition that reflects the best interests
of people living with the virus and people vulnerable to
it. " [USA]
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"Because AIDS is synonim of death in Africa " [Congo
Democratic]
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"great idea, I've found myself leaning toward doing this
already but not having any real basis for doing so.
"
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"Estoy de acuerdo en que al avanzar la incidencia de la
ciencia (médica y social) sobre la problemática VIH
debemos ir aggiornando nuestro vocabulario. Pero creo
que los comunicadores difícilmente han incorporado las
"viejas palabras" y se verán en aprietos para
incorporar nuevas. Igualmente, vale la pena hacerlo!
" [Argentina]
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"The change is an important one but will take some time to
realise and its effects will take longer " [Australia]
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"The general public (and many others besides!) don't know the
difference between HIV and AIDS. I think it's an
unecessary complication. " [England]
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"If regular people understand the difference they will be
more aware, they should use their media to give more
education than to critique " [Canada]
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"HIV is a real virus. AIDS is a diagnosis of a collection of
illnesses and can vary. I would prefer we talked of
HIV-related disease. " [UK]
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"AIDS used an a word, brings about so much stigma and the
term has a historical context associated with death. We
have now reached an era where as communicators, we have
to change the way society interprets the word HIV/AIDS.
Rather we should endeavour to normalise the infection
HIV and to let society accept it as a normal life
threathening condition like diabetes instead of loading
the word with prejudice, both external and internal
stigma and using religion to worsen the plight of people
living with HIV. " [UK]
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"HIV/AIDS should be use for communication to remind people
that being HIV infected could lead to AIDS. Furthermore,
the ravages of the disease don't happen until several
years after becoming infected. People still are not
aware that someone could be infected even if they seem
perfectly healthy. " [United States]
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"The word HIV itself is nithelping the camaign but I guess we
do not have much choice. Aids worsens the case. Most
often it is difficult for most people to understand that
living with HIV is not the same as having full blown
AIDS. The distinction will definately not only reduce
stigma but bring clear understanding about the stages of
the disease. " [Ghana]
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""AIDS" tends to provoke a too strong negative
reaction among non-specialist populations. "
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"It does not mean that because you have HIV that you have
AIDS. It may take a while even years before one gets
AIDS, with proper health care and education. So I think
HIV gives hope for a tommorrow to the person (s)
infected. " [Kenya]
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"AIDS has indeed become too associated with stigma and
finality... " [Romania]
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"I think we are past the days when a diagnosis of HIV was
equivalent to a death sentence. People need hope inspite
of their falling victim of this scourge. The truth is
that soon HIV will be managed just as people live up to
their old age with cancer. Spread hope not fear. " [kenya]
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"There is too little recognition that people can have HIV and
still lead healthy, productive lives! " [USA]
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"HIV/AIDS is clinically more correct. " [USA]
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"HIV/AIDS shows both the cause and the symptom - an
integrated name; I thought of reviewing the name since
it is no longer "Acquired" only but in some
cases "Born" or "Inherited" as in
mother-to-child transmission " [Nigeria]
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"Yes. HIV is more positive and more accurate, less awkward
and confusing. "
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"I think it will target the real culprit-hiv and give the
campaign a better focus. " [Nigeria]
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"I would change completely even the word HIV and I would
speak of a cronic disease. HIV should remain only a
scientific word but not used currently like "people
living with HIV". Please do an effort to change
this word completely es. IDVH or HDI, ecc. in my opinion
the name is associated with stigma. Plaese do it during
this current campaign of UNAIDS against stigma and
before the 11th Conference of people living with AIDS
that will be held in Kampala. " [UGANDA]
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"'AIDS' is associated with the end-stage of HIV infection.
With the availability of ARVs, however, people with HIV
can enjoy much longer life expectancy. Let's just talk
about 'HIV infection'. " [UK]
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""AIDS" doesn't have the same technical meaning in
all countries, leading to the curious situation that
someone might have "AIDS" if, for example,
they live in the United States, but they don't have
"AIDS" if they live in Canada, which has a
different technical definition. Similarly, the list of
OIs that define AIDS have changed in prevalence over the
years since the epidemic began, so that "AIDS"
doesn't mean the same thing it meant 20 years ago. Let's
drop this outdated terminology in favour of "HIV
disease", which holds the potential to more
accurately reflect the chronic and progressive nature of
the condition. People don't cross some sort of invisible
line when the diagnosis of "AIDS" is made.
"
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"I think this absolutely the right approach. I have found it
very frustrating for a while now that there is such a
sloppy use of the phrase (which I have begun to HATE!)
HIV/AIDS. It has almost become a word in it's own right.
In many resource poor countries however, AIDS related
symptoms are or course still very apparent (re the
comment that the clinical manifestations of AIDS are
reducing due to ARVs). So there is sometimes cause for
using the two together. However it is important to
distinguiush treatment for AIDS (treatment for OIs,
prophylactics etc as well as ARVS) from treamtent for
HIV (ARVs- nothing else). Or for example talk about an
HIV epidemic- you cannot 'catch' AIDS. AIDS prevention
is very different from HIV prevenion- one focuses on
infection control and the other on maintaining good
health... etc etc I could go on! " [Scotland]
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"it makes sense since one may be infected and yet to manifest
AIDS.We are dealing with an infection mire than a
disease or state. " [nigeria]
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""…metaphors of ill-health …carry with them a range
of symbolic associates that can seriously affect how the
sufferer perceives his own condition, and how other
people behave towards them” (Cecil Helman). While ARV
drugs are provided for those in developed countries, and
hope and life has been restored to a degree, it is still
reported that 80% of those infected with HIV in the
United Kingdom think about suicide. This can only mean
that HIV still holds the metaphors of stigma and
finality for those who have contracted HIV. I think we
should use HIV instead of AIDS or HIV/AIDS, but we also
need to change the biomedical concept of HIV and its
association with the word "infected" which
equates HIV with death. " [United Kingdom]
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"Sorry! " [Senegal]
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"I AGRREE THAT COMMUNICATORS SHOULD MAKE REFERENCE TO
HIV/AIDS IN THEIR WORK, THE QUESTION OF WHETHET IT IS
USE "INCREASINGLY" THOUGH THAT IS NOT IN
DISPUTE. AS ONE OF THOSE THAT US THE ARTS TO ADDRESS THE
ISSUE OF HIV/AIDS ESPECIALLY THE RADIO AND TELEVISION
AMONGH OTHER FORMS ARTS IAM ALWAYS AT A CROSS-ROADS
ESPECIALLY WHEN DEALING WITH THE INFFECTED, WHICH IF
PRIVILEGE TO BE AWARE OF THE STATUS IS ALWAYS HIV, BUT
TO A LARGE EXTEND YOU ARE DEALING WITH SOMEONE WHO HAD
PASSED THE HIV STATUS. NOW BE THAT AS IT MAY TO FIND A
COMMON GROUND WHICH WILL BE REGARDED AS SAFE AND OF
COURSE PROFESSIONALLY IT IS BETTER TO USE HIV/AIDS.
" [NIGERIA]
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"HIv/AIDS are not the same, since the former brings about the
latter. Therefore, it is appropriate that we use both in
the campaign against this contemporary apocalypse.
" [Nigeria]
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"If HIV is emphasised the reaction would be positive " [USA]
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"I feel that the less labels used, when referring to a
person's state of health, the better. " [Australia]
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"People who are working on the HIV/AIDS field should by all
means communicate this words. The are a lot of funny
things peole might say as pecially those who are in
denial about their HIV/AIDS status. Scientific
information should reference ther terms "Clinical
HIV/AIDS" Stages. " [South African]
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"Communicators should increasingly make reference to HIV as
HIV status does not necessarily mean that AIDS is a
definite outcome of an HIV positive condition due to the
ARV treatments available today. " [UK]
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"I feel that the reference to AIDS scares people and it makes
one feel that there is no looking back to a fruitful and
fulfilling life. HIV is less threatening to an
individual and can make one feel that there is a hope
for living longer years before you van develop the
dreaded- AIDS. " [Kenya]
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"I strongly agree and make a point of talking about this in
every training that I do (in Zim). I think that we in
the field are very much responsible for linkign these
two things. I remind people that "HIV is what you
live with and AIDS is what you die from". We need
to keep these two words very very separate. lisa " [Zimbabwe]
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"I agree that health communicators should use the term HIV in
their work as opposed to AIDS or HIV/AIDS. I noticed
that frequently in reports, news articles,and
publications the terms HIV, AIDS and HIV/AIDS are used
interchangably, and as a result they are often used
incorrectly or inconsistently. This adds to the
confusion about the difference between HIV and AIDS. For
example, AIDS test or HIV/AIDS test..using these terms
make it difficult for health educators to dispell the
myth that an HIV positive diagnosis immediately means
AIDS. One may be HIV positive for years without showing
any symptoms or being affected by the opportunistic
infections associated with the syndrome, AIDS. To avoid
confusion, health communicators, jounralists, community
leaders and public figures need to use the terms
correctly and consistently in the information they
disseminate about HIV and AIDS " [Canada]
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"I fully agree, that the use of only HIV will be much better
to give little confidence to live with HIV " [India]
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DISAGREE
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"I agree we should focus more on preventing transmission, but
this would not be helped by an attempt to limit the
descriptor to HIV. HIV does NOT convey images of hope
and possibility: it is rather neutral as a term and
lacks clarity. " [United Kingdom]
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"Please, let's be serious. There is no way you can make one
of the two words (HIV or AIDS) disappear because they
are not the same and communicators cannot approach HIV
the same way they approach AIDS. Communication for HIV
is heavy in prevention, while communication for AIDS
deals with another set of issues such as stigma. The
problem, right now, is just the opposite, the two words
are ALREADY mixed as if they were one only word, and
that is why so many very expensive campaigns have
failed, because they are too general and broad, trying
to cope with two issues at the same time. For example,
communicators are not addressing specifically the fact
that HIV is "invisible", that people don't
really “see” it, particularly in rural areas of
Third World countries where anyone is “healthy”
unless he or she really looks ill.. AIDS, on the other
hand, is so dramatically visible that in many societies
we are dealing with the stigmatisation of AIDS patients
and their families. The complexity of HIV and AIDS
doesn’t call for oversimplifications, on the contrary.
" [Guatemala]
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"The statement "With fewer people developing the
clinical manifestations of AIDS due to the use of ARV
drugs, will the word AIDS still be adequate for care
efforts?" is typical from people living in the
North and not being fully aware of what happens in Third
World countries, particularly in Africa, where full
blown AIDS is not declining but increasing. Besides,
buying some extra time with expensive drugs doesn’t
mean that AIDS is going to disappear. " [Guatemala]
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"There is an enormous difference between having HIV and being
diagnosed with AIDS. It is incumbent upon communicators
to ensure that this important distinction is understood.
My understanding is that the majority of people infected
with HIV and/or diagnosed with AIDS do not have access
to antiretrovirals let alone medications to treat
opportunistic infections or for that matter access to
clean water and adequate nutrition. It is commonly
believed and agreed that prevention and treatment are
part of one continuum. "
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"While in the North American context AIDS is being redefined
by the medical world because of the anti retroviral
therapy and the change it brings in T4 Cell count and
opportunity it affords the immune system to build itself
up and fight off opportunistic infections. The scenerio
remains drasticly different in third-world and
developing countries, where AIDS is still a definable
medical condition and stage of of HIV infection.
Although reference to HIV infection certainly give
people infected a sense of hope, it still would not take
away the stigma associated with AIDS. To be HIV positive
in a third world context is the same as being diagnosed
as AIDS. It has a mortality conotation but is a
necessary medical diagnosis and both terms should be
kept until this situation changes globaly. " [Canada]
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"The common man would not associate HIV with AIDS. The word(s)
"AIDS" is (are)easily recgnised by everyone.
" [Tanzania]
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"The stigmatisation around HIV and AIDS is terrible, but in
my opinion not tied into one word or other. While the
science (the 'reality') underlying the affliction is
what is most important, we will continue to battle to
reduce this stigma, which in my view, is still
associated with homosexuality. I think that getting
across to people that it is monogamous woman and new
born children that demonstrate greatest new infection
rates may be a better emphasis... " [UK]
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"because we need to address HIV and AIDS in the ways that
communities experience it - and for most of those
infected and affected Rx is not yet a possibility. What
people experience is illness, poverty exacerbated, and
children without adequate support systems - all impacts
of AIDS, not HIV. To address only prevention of HIV does
not acknowledge their situation. It is importatn to keep
both. " [Canada]
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"it's rare to see AIDS used alone these days, so the shift
would really be from HIV/AIDS to HIV. HIV/AIDS has 2
advantages: (i) it is more specific about the problem
being dealt with; and (ii) it keeps the link between HIV
and AIDS to the forefront of people's minds, which is no
bad thing. " [australia]
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"the use of the term HIV/AIDS for communications is very
important because a gretaer majority of people aroud the
world still does not have access to arvs.....and AIDS is
still an impending realitry to our daily lives in this
part of the world " [Philippines]
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"The name is not very relevant, and any time somone changes
it in the west for possibly good local reasons we at the
African frotline are left scampering trying to explain
new jargon when the old one has hardly got implanted.
Here in Congo I work in French and Swahili and it is
very important for prevention activities to distinguish
'HAS the VIRUS' (shows no signs of illness but can
infect) from 'HAS AIDS', whichever language we are
using. I encourage people just to say 'has the virus'.
Please think of the receiving end where we may meet our
target group only once. Don't promote tiny changes for
no reason. We are still trying to get over PLWA/HIV or
PVV/SIDA and all its formulations! It ain't broke. Don't
fix it. Barry Sesnan " [Congo DRC]
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"Currently, the confusion that may arise with the use of HIV
and AIDS is neither here nor there. In other words the
issue is not when one used the words wrongly or rightly.
It is either words connotative and denotative meanings
which sometimes give cause for concern. In the early
stages of the epidemic AIDS was equated to death, and
consequently acquisition of HIV was seen as death
sentence. In all these, communication experts in the
media and even programs intending to change behaviors
did not help much. Unfortunately the situation hasn't
changed much in many of our sub-regions. HIV and AIDS
are most often used synonymously. However, as is known
these two words refer to two different conditions. It is
always proper and appropriate to use these two words to
mean what they might refer to, and not what they are not
referring to. Communicators must say what they mean
without leaving doubt otherwise they would always be
misconstrued and then come round later to accuse the
very people they claim they are communicating with to
achieve common understanding. " [Ghana]
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"The virus leads to the disease so one must come before the
other - HIV/AIDS acceptable. "
|
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"It is critical that people understand HIV infection as a
chronic, often episodic health condition that may lead
to AIDS. Currently, the acronym "HIV/AIDS" is
the only way we have to communicate this. Switching to
"HIV" would be oversimplifying, since HIV and
AIDS are not the same thing. It is critical that we
continue to communicate that not everyone with HIV has
AIDS. "
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"HIV word has also have its stigma,to the majority,hiv is
associated with aids,maybe finding a completly new name
will do! " [South Africa]
|
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"While there is certainly a need to continue to focus on
prevention, there are still consequences of HIV/AIDS
that need to be addressed. For example, the increasing
number of orphans that are the result of the disease. At
the present time one third of the AIDS ophans are under
the age of 5. Byt the year 2010 there will be 50 million
children under the age of five who are orphaned as a
result of AIDS. We need to continue to be made aware of
the consequences of the disease as well as to focus on
prevention. " [Canada]
|
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"I disagree for two reasons. First, I think we have to be
careful about thinking about this from a programmer's
perspective. What message might trickle across to
audiences/communities with this 'shift' in emphasis.
Will it suggests that we are no longer concerned with
AIDS? Will they think of HIV as a new disease - bearing
in mind that levels of knowledge are not as
sophisticated as most development planners and even then
I recently met an extension worker in East Africa who
admitted she didn't know the difference between HIV and
AIDS until a year ago. The second concern is the
acknowledged emphasis this places on prevention. The
focus needs equally to be on treatment, given the state
of transmission in Africa at least. And perhaps we
should be focusing more creative energy on using
communication in supporting the continum of care. "
|
|
"The use of two "words" is important because it
gives the full picture. "HIV" alone does not
stress the inherent danger in being infected with the
virus in terms of disease progression. "AIDS"
alone does not show that a person infected with the
virus does not necessarily have AIDS. However, the dual
acronym "HIV/AIDS" gives the impression of
both a real continuum as well as a process which can be
truncated. "
|
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"I feel that communicators should still stick to the use of
HIV/AIDS especially in Africa to meet up with the level
of understanding of their recepients and to drive home
the gravity of contraction of the virus; since, by
implication, AIDS carries more gravity than AIDS. Moreso
that our aim is to help people shapen and correct their
sexual behavor to check the spread of this pandemic.
" [NIGERIA]
|
|
"I do agree that the term AIDS is too closely associated with
stigma and finality. However, I do not agree that the
term HIV should be increasingly used in place of AIDS.
The two terms stand for two totally different things.
The former is the causative agent and the latter is the
condition. Suggesting HIV should be used in place of
AIDS could be compared to encouraging communicators to
call Malaria ‘Plasmodium’ . This creates false
security amongst sufferers and those around them. This
illusion may well lead to complacent attitudes that
could spread our plasmodium, in this case HIV.
Preventing transmission should be the focus, but let us
not lie by ommission. Let us educate each other and be
frank in our efforts. HIV causes AIDS. Let’s
communicate this reality and not sugar-coat it. " [United
Kingdom]
|
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"Each term has its appropriate use, and communicators should
know and use them all accordingly. "
|
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"These are medical terms with specific differences that
should not be obscured by well-meaning but misinformed
groups. "
|
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"Both words are associated with stigma. You may not see AIDS
in your country but where am working I see it everyday.
In my clinic if i dont get a good Samaritan to give me
ARVs I wont have any Of the patients am following in the
next two years. This year alone i have lost six mothers
four fathers and i have more who are walking death. so
to us we cannot really say AIDS is gone. " [Kenya]
|
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"HIV/AIDS is a field filled with confusion. ARV's are not
freely availble yet. What about the millions living with
AIDS, not just HIV? " [South Africa]
|
|
"I think it is better to keep the two-fold expression
HIV-AIDS implying the two aspects of the reality, full
of hope on the one hand but also and still an awesome
menace that cannot be ignored on spite of the existing
drug and its relative success in containing the
evolution of the syndrome. " [Canada]
|
|
"Although AIDS and HIV are two different things and usually
usage of the word AIDS in some regards causes pain to
the people who are HIV positive but are still not AIDS
patients, it is a little late, I think, to discuss
whether to use AIDS or HIV in communication. The large
percentage of illiterates in India and other developing
countries, who are living in Media dark areas will only
get more confused with the new terminology. By the time
the doubts are cleared and a synergy is established in
the minds of the people, a lot of valuable
'communication time' would be lost. Even today not much
is known about AIDS. Many myths have already taken root.
Instead of emphasizing on the terminology at this stage
it would be wise to concentrate on clarifying the
difference between being HIV +ve and having AIDS, as one
aspect of the AIDS communication - which can be dealt
with effectively wherever doctors and PLWA are being
used in communication design. " [India]
|
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"HIV and AIDS are two different entities like Hepatitis B
virus and hepatoma.One is a cause, one is the effect.We
need to be scientific not emotional.We can manage the
stigma. " [NIGERIA]
|
|
"It is important to convey the fact that HIV is a precursor
to AIDs. This as we all know does not mean that an HIV+
person is going to progress into AIDS, but the
likelihood is pretty strong. " [United States]
|
|
"HIV and AIDS are NOT synonymous, so one cannot be used in
place of another. People should therefore be clear of
what we are dealing with , whether we talk about HIV or
AIDS or both. " [Lesotho]
|
|
"In Brasil we use people who live with HIV or AIDS. People
who live with AIDS are supose to have clinical
manifestations of the desease. People who live with HIV
doesn't have sympntons. There is great diference! We
abolished the name "aidético", that means a
person known, identified, just by his(her) desease. When
we say "people who lives with AIDS" we are
trying to avoid stigma and prejudice. In my country,
people have free access of ART. But clinical
manifestations still happen in a brad way. The
sorological status is unknown by majority of the people.
MOre easier access to test still is a chalenge for us.
So, I do desagree. " [Brazil]
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"The name will then change to HIV Positive people. "
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"AIDS is the all encompassing label, designating a global
catastrophe much greater than a medical syndrome whereas
HIV is and will remain only the label for a group of
viruses. " [France]
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"Communicators need to ground their messages in the reality
of what the epidemic means here and now for those
affected by it, not where they would like it to be.
"
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"In certain countries HIV/AIDS is still not feared and though
I agree a fear arousal communication seldom work, it
could do the job of making people think twidce. If we
only say HIV and exclude AIDS then the depth of the
problem is not felt. " [Nepal]
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UNSURE
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"finding out one's hiv+ status is still like receiving a
death sentence-- many people are still finding out they
are HIV+ before developing AIDS, or even if they have
AIDS clinically, the test is for HIV and when it comes
back +, life changes somehow. The issue of stigma is
deep, but it boils down to not respecting that a person
with HIV still could contribute a lot to society in one
way or another. I hope that the provision of ARVs to
many Africans with HIV/AIDS will help them regain
strength so they can fight this battle of reclaiming
self-respect, identity and hope. " [USA]
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"its a new idea for me.i think i wil join the agree group,
given more time "
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"As the person who originally suggested this poll, I am using
this “neutral” space to clarify a point raised in
the discussion. Quoting one of the several questions
that comprised the poll (“With fewer people developing
the clinical manifestations of AIDS due to the use of
ARV drugs, will the word AIDS still be adequate for care
efforts?”), a colleague stated that “this
[assumption] is typical from people living in the North
and not being fully aware of what happens in Third World
countries”. While it is a fact that the vast majority
of people with HIV in the developing world don’t have
access to antiretrovirals, it is also true that this is
changing reality. According to UNAIDS, 50% (yes, 50%!)
of people under criteria for treatment in Latin America
and the Caribbean already have access to these drugs. In
February, we made a concrete step to expand this, as
Central American governments – this colleague lives in
one of them, Guatemala – negotiated with five large
pharmaceutical companies and managed to bring the cost
of treatment in that region to a level similar of South
Saharan Africa for brand name drugs (US 1,100 per year
per patient). Still high, but a fifth of the prices
practiced two years ago. The other good news is that the
Global Fund to Fight AIDS, malaria and TB is granting
substantial resources towards antiretroviral treatment.
Once this money starts coming in, many developing
countries will scale up the number of people under
treatment. Of course that much remains to be done –
including strengthening the capacity of the health
system to handle the expanded treatment. As for me
“not being fully aware of what happens in Third World
countries”, maybe that’s because I was busy in
Panama providing communications support to the
negotiation that brought down the prices for Central
American countries. Some of the ministries of health
present publicly said that there was no reason why they
couldn’t treat 100% of people thereafter. This
commitment was made in front of the media and the
several NGO present. The comment from the colleague was
very fortunate, as it raises an important point. We,
communicators, need to wake up for this changing reality
and engage more actively in the efforts to expand
treatment in the developing world. This is both for
humanitarian reasons and also because the availability
of treatment creates a much more positive environment
for prevention. People are more likely to speak about
sex once intercourse is no longer a Russian roulette.
How long will it take until regions like Africa expand
treatment to a sizable number of people? The answer
partly depends on us. Let’s incorporate this fight in
the HIV Communication agenda. " [USA]
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