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Stigma
of mental illness: Changing minds, changing behaviour
http://www.psy.dmu.ac.uk/
BRITISH JOURNAL
OF PSYCHIATRY (1999), 174, 1-2
PETER BYRNE
A
BRIEF HISTORY OF STIGMA
In
his influential essay, Goffman (1968) describes stigma as
referring to 'any bodily sign designed to expose something
unusual or bad about the moral status of the signifier".
On meeting such an individual, we "construct a stigma
theory, an ideology to explain his inferiority and account for
the danger he represents, sometimes rationalising an animosity
based on other differences" (Goffman, 1968). For some
psychiatric patients, the illness itself or its treatment
(i.e. neuroleptics) may signal their outward difference, but
even to be seen attending a psychiatric service marks the
individual as different. Once stigmatised, the person is made
to fit one of a limited number of stereotypes of mental
illness (Byrne, 1997) and is effectively sidelined. Sayce
(1998) has challenged the use of the term stigma, arguing that
"the mark of shame should reside not with the service
user, but with those who behave unjustly towards him or
her". The degree and type of stigmatisation varies
according to prevailing cultural norms (Warner, 1996).
Sometimes psychiatrists can unknowingly contribute to this
process. In this regard, Linton (1945) could have been writing
about psychiatry when he wrote about culture:
"It
has been said that the last thing a dweller in the deep blue
sea would be likely to discover would be water. He would
become conscious of its existence only if some accident
brought him to the surface."
STIGMA:
SO WHAT?
Conferring
a psychiatric diagnosis on an individual or admission to a
psychiatric facility has multiple personal, social, vocational
and financial consequences. Patients who have been labelled
begin to perceive themselves as different, and self-stigmatisation
may occur (Gallo, 1994). A survey by Read & Baker (1996)
of the perceptions of 778 Mindlink members reported that, in
relation to their mental illness:
(a)
47% had been abused or harassed in public, with physical
assault in 14%;
(b)
34% had been sacked or forced to resign from employment;
(c)
26% had moved home because of harassment.
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Wolff
et al (1996) in their community survey (n=215), report that
43% viewed people with mental illnesses as more aggressive,
but recorded equally high 'fear and exclusion' scores in
respondents who did not share this opinion. Penn et al (1994)
also confirm the public's choice of maintaining social
distance, but advocate a package of information about target
individuals (in their study, recently discharged patients with
schizophrenia) in much the same way Wolff et al identify
potential target groups for educational programmes. For
Goffman (1968), stigma is social exclusion, and the literature
confirms widespread discriminatory practices (Read &
Baker, 1996; Byrne, 1997; Sayce, 1998).
STIGMA
AND PSYCHIATRY
Negative
attitudes and stigma have direct effects on the clinical
practice of every psychiatrist. Despite community point
prevalence rates of 14% for mental health problems and 1 : 3
general practitioner attendees describing symptoms, in primary
care these are the dreaded 'heart-sink' patients, untreated or
undertreated (Jenkins, 1998). Dislike of psychiatric patients
by doctors is not a new finding: Sivakumar et al (1986)
reported that 28% of medical students (n=88) believed
psychiatric patients were 'not easy to like', but as doctors
two years later, this rose to 56%. From the other perspective,
in a study of 57 patients referred to a psychiatrist, 82%
refused referral, citing the stigma of psychiatric assessment
and treatment (Ben Noun, 1996). Pang et al (1996) have
confirmed psychiatric outpatient drop-out rates of 50%. All
stages of mental illness -recognition of symptoms,
presentation, treatment adherence and rehabilitation -are
influenced by the stigma of that illness (Byrne, 1997).
The
issues of funding and recruitment represent further challenges
for psychiatry. The speciality remains the Cinderella of
medicine, a perennial soft target for budget cuts. Funding for
psychiatric research is also scarce: Lam & EI-Guebaly
(1994) calculate that psychiatric research receives just 3.7%
of all Canadian biomedical research funding. In their analysis
of factors which attract new recruits to psychiatry, Sierles
& Taylor (1996) identified a successful student clerkship
(especially in students who reject psychiatric stereotypes),
levels of overall resources and research opportunities.
Measures which prioritise reductions in psychiatric stigma
will have profound and enduring benefits in these key areas.
COLLEGE
CAMPAIGN: CHANGING MINDS
Against
this background, the Royal College of Psychiatrists convened a
Working Party under the Chairmanship of Professor Arthur
Crisp, which has evolved into the Changing Minds 'Stigma
Campaign'. Following an extensive process of consultation, the
committee, which includes users and broad psychiatric
representation, has produced a five-year strategy ('Every
family in the land: recommendations for the implementation of
a five-year strategy: 1998-2003'; available upon request from
the External Affairs and Information Services Department of
the Royal College of Psychiatrists, 17 Belgrave Square, London
SW1X 8PG). The campaign is inclusive and seeks to achieve
change through consultation and collaboration with a variety
of key groups: patients, carers, other health care
professionals, employers, schoolchildren, their parents and
teachers, members of the media and the general public. It
recognises a variety of existing successful projects in this
area, and hopes to learn from as well as complement them.
Six
major conditions will provide the focus for initial efforts:
depression, schizophrenia, anxiety, dementia, eating disorders
and alcohol/drug misuse. Specific projects will attempt to
close the knowledge gap between health professionals' and
public opinions about mental disorders and their treatments.
Prior to the Campaign's launch in October 1998, measures of
key public opinions were recorded, and these will serve as a
baseline to measure change and provide measures of efficacy of
individual projects and the campaign as a whole. Specific
projects have been finalised, but many more will be determined
by any of a number of interested parties. It represents the
most ambitious campaign the College has ever attempted. So do
not sit back and watch this one: if you have strong opinions,
or better, ideas on how to effect real change, get involved
and put stigma/discrimination on the agenda in your area.
Success in this campaign will enhance the social dimensions of
patient care and could redefine the practice of psychiatry for
the next millennium.
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REFERENCES
Ben
Noun. L. (1996) Characterisation of patients refusing
professional psychiatric treatment in a primary care clinic.
Israel Journal of psychiatry: 33, 167-174.
Byrne.
P. (1997) Psychiatric stigma: past, passing and to come.
Journal of the Royal Society of Medicine, 90, 618-621.
Gallo,
K. (1994) First person account: self-stigmatisation.
Schizophrenia Bulletin, 20, 407-410.
Goffman,
E. (1968) Stigma - Notes on the Management of Spoiled
Identity, Reprinted 1990. London: Penguin.
Jenkins,
R. (1998) Policy framework and research in England, 1900-1995.
In Preventing Mental Illness. Mental Health Promotion in
Primary Care (eds. R. Jenkins & T. R. Ostun). pp. 81-94.
Chichester. Wiley
Lam,
R. W. & El-Guebaly. N. (1994) Research funding of
psychiatric disorders in Canada' a snapshot 1990-1991,
Canadian Journal of Psychiatry 39,141-146.
Unton,
R. (1945) The Cultural Background of Personality New York:
Appleton.
Pans,
A. H., Lum, F. C., Unslvari, G. S., et al (1996) A prospective
outcome study of patients missing regular outpatient
appointments. Social Psychiatry and Psychiatric Epidemiology,
31, 299-302.
Read,
J., Baker, S. (1996) Not just Sticks and Stones A Survey of
Stigma. Taboos and Discrimination Experienced by People with
Mental Health Problems. London: Mind.
Sayce,
L. (1998) Stigma: discrimination and social exclusion:
What’s in a word? Journal of Mental Health, 7, 331-343.
Sierles,
F. S., Taylor, M. A. (1996) Decline of U.S. medical student
career choice of psychiatry and what to do about it. American
Journal of Psychiatry. 152. 1416-1426.
Sivakumar,
K., Wilkinson, G., Toone, B. K., et al (1986) Attitudes to
psychiatry in doctors at the end of their post-graduate year:
two-year follow-up of a cohort of medical students.
Psychological Medicine. 16. 457-460.
Warner,
R. (1996) The cultural context of mental distress. In Mental
Health Matters: A Reader (eds. T. Heller. J. Reynolds, R. Gomm.
et al), pp. 54-63. London: Macmillan.
Wolff,
G., Pathare, S., Craig, T., et al (1996) Community knowledge
of mental illness and reaction to mentally ill people. British
Journal of Psychiatry. 168. 191-198.
Penn,
D. L., Guynan, K., Daily, T., et al (1994) Dispelling the
stigma of schizophrenia: what sort of information is best?
Schizophrenia Bulletin. 20, 567-574.
PETER
BYRNE, MRCPsych, St Patrick's Hospital, Dublin 8
(First
received 29 May 1998. final revision 1 September 1998.
accepted 8 September 1998)
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