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UNDER EMBARGO UNTIL 17.30GMT; 14.30hrs LOCAL
TIME
Brasilia, 25 February 1999
LISTEN, LEARN, LIVE!
1999 World AIDS Campaign with Children and
Young People
Challenges for Latin America and the
Caribbean
Introduction
Worldwide, more than half of all people who become infected
with the human immunodeficiency virus—HIV—acquire the
virus when they are under 25 years old.
It is tragic that HIV should single out a youthful and
otherwise relatively healthy population group. But it is
hardly a coincidence, given the daily circumstances of many
young people’s lives. As we have learnt from two decades of
experience with this epidemic, the path of HIV is eased by
poverty, lack of skills, violence, and harmful social norms
such as machismo and early sexual debut.
This briefing paper takes a look at the young people of
Latin America and the Caribbean in the era of AIDS. How
exposed are they to HIV? In the context of their everyday
lives, what factors tend to make them more vulnerable to the
virus? Finally, how can communication build up the protective
factors in their environment and break down the harmful ones?
LISTEN, LEARN, LIVE!
In 1997 the World AIDS Campaign highlighted
the challenges facing children living in a world with
HIV/AIDS. In 1998 the Campaign focused on young people as a
force for change.
The 1999 World AIDS Campaign aims to build
on the activities and awareness created in preceding years by
turning the world’s attention more broadly to communication:
to children and young people, hear what they
feel is important in their lives, engage in conversation
with them about issues that concern them including sex,
sexuality and HIV/AIDS
learn from one another—children from children,
children from adults, adults from children, adults from
other adults, HIV-negative from HIV-positive—about
respect, participation, support, and protection from HIV
infection and AIDS stigma
- live
in a world where fewer people become infected
with HIV, and where children and young people with HIV or
AIDS can live free from discrimination.
HIV/AIDS, children and young people: the threat is real
In Latin America and the Caribbean, an estimated 1.3
million adults (aged 15–49) and children
(0–14) were living with HIV at the end of 1998. Men who have
sex with other men, and those—often men as well—who inject
drugs are disproportionately affected in many countries of the
region. However, rising infection rates in women show that
heterosexual transmission is gaining in importance. Systematic
surveillance is limited, but HIV prevalence in pregnant women
attending antenatal clinics reportedly reaches 1% in Honduras
and exceeds 3% in Porto Alegre, Brazil. HIV rates in pregnant
women are significantly higher in the Caribbean—by 1993 a
rate of 8% was seen in Haiti and in 1996 a similar rate was
reported from one surveillance site in the Dominican Republic.
Altogether, from the limited surveillance data available,
UNAIDS estimates that more than 65 000 15–24 year olds
became infected during 1998 alone in this region. In addition,
8000 children ranging from infants up to 14–year-olds became
infected in 1998. Most of these infections were in children
who acquired the virus from their HIV-positive mother during
pregnancy or birth or through breastfeeding.
Because HIV surveillance systems generally take age 14 as
the cut-off point for child infections, and because the
overwhelming majority of these occur through mother-to-child
transmission, relatively little is known about the magnitude
of sexual transmission among youngsters aged 10–14.
Data from Brazil suggest that some early spread of this
kind does occur. For example, in 1998 almost 10% of AIDS cases
in youngsters aged 12 or younger were not the result of
mother-to-child transmission. In addition, 13% of Brazil’s
cumulative total of AIDS cases since the start of the epidemic
were in 15–24 year olds, and fully 82% were in people under
44. It is important to bear in mind that AIDS is the severe
end-stage of infection with the human immunodeficiency virus.
In developing countries, people typically develop AIDS 8–10
years on average after initial infection with HIV. This means
that a 30–year-old with AIDS might well have become infected
in his or her early twenties.
The scope for further spread
It would be a mistake to judge the potential seriousness of
the HIV threat to the youth of Latin America and the Caribbean
from the current numbers of infections and AIDS cases. To see
where the real dangers lie and understand how the epidemic
could grow, one needs to look at the magnitude of unsafe
behaviour taking place, both sexual and drug-related, and at
the risk factors that fill the lives of children and young
people.
Sex can start very early. The 1998 Caribbean Adolescent
Health Survey conducted by the Pan American Health
Organization (PAHO) in 100 schools in Antigua, Dominican
Republic, Grenada and Jamaica and with out-of-school youth
showed that, among those who reported being sexually active,
more than 40% said their sexual debut had started before age
10 and another 20% said it had started at age 11 or 12. In
some places, young people in rural areas become sexually
experienced earlier than city-dwellers—in Dominican
Republic, 67.7% as against 47.1%, in Guatemala 71.4% as
against 48.8%.
Early sex is generally unprotected sex, as demonstrated
by the consequences—unwanted pregnancy, HIV infection and
other sexually transmitted diseases (STDs). The Caribbean
survey found that half of all sexually active adolescents said
that they did not use contraception at last intercourse.
According to a Lima study of adolescents and young adults
(aged 19–30), only 11% of those heterosexually active used
condoms consistently, and 22% reported an unplanned pregnancy.
Among self-identified homosexual young men in Peru, 2 out of 5
reported having unprotected anal intercourse in the past four
months.
A report by The Alan Guttmacher Institute estimates that,
in the region as a whole, between a quarter and a half of all
young mothers say that their pregnancy was unplanned. And a
community-based study in Nicaragua discovered that over half
of pregnant adolescents had begun having intercourse between
the ages of 12 and 14; around half the pregnant girls were 16
or younger. Many involuntarily pregnant girls in the region do
not carry their pregnancy to term: of the 20 million annual
unsafe abortions in the world, the World Health Organization
(WHO) estimates that 23% are in Latin America where 8.5% of
the world population lives. In Peru and Nicaragua, 15% of all
pregnancy-related deaths are in adolescents, and most of this
mortality is due to illegal abortion.
Early sex is often forced sex—and dangerous sex. In
Santiago, Chile, nearly 3% of young women report that rape was
their first experience of intercourse. Sexual abuse and rape
are most often perpetrated not by strangers but by a young
woman’s intimates—friends, relatives and partners,
including boyfriends and husbands (although rape in marriage
is seldom punishable by law). Forced sex can injure the
genital tract and make it easier for HIV or the microbes that
cause other sexually transmitted diseases to penetrate the
body and cause infection. According to a Panos report, surveys
in the USA indicate that between 4% and 30% of women who have
been raped acquire an STD as a result.
Sexual abuse and sexual exploitation of children, often
associated with poverty and dysfunctional families, open the
door to major HIV risks in Latin America and the Caribbean.
Girls subjected to sexual abuse in childhood are typically
robbed of self-esteem and a feeling of control over their
lives, which increases their risks of drug-taking and
commercial sex later on. In one country, 80% of children
entering the sex trade had been sexually abused, often by a
relative. Economic pressures in Latin America and the
Caribbean have forced an ever-increasing number of people into
absolute poverty. Even in Costa Rica, often called the
Switzerland of Central America, 10%
of the inhabitants live in absolute poverty, 40% of female
adolescents do not attend school, and more than a quarter of
young people aged 12–19 work for below-subsistence wages in
domestic service. Domestic labourers are open to sexual
exploitation and assault by the males in the employer’s
family. Sex tourism, often perceived as an Asian problem, is
another growing AIDS-related problem in the region. Preferred
destinations for sex tourism with minors are Costa Rica and
the Dominican Republic, but increasingly Brazil, Guatemala,
Haiti, Honduras, Nicaragua and other countries are being
cited.
Drug use increases the HIV risk. Drug use is seen in
many countries throughout the region, and can start very
early—for example, glue-sniffing by youngsters living or
working on the streets. The danger of becoming infected with
HIV by sharing injecting equipment is well known, and real.
For example, a study in Rio de Janeiro among people who
injected cocaine (around one-third of whom were under 25)
showed that 15% were HIV-positive. However, even among the
cocaine users who did not inject the drug, HIV prevalence was
7%—a high figure explained by the frequency
of unsafe sex among drug users. A study of drug-dependent
people in an outpatient health facility in Sao Paulo found
that about 60% systematically engaged in unsafe sexual
practices including having unprotected sex, having multiple
partners, and trading sex for drugs.
Drug use is just one of a constellation of factors –
unemployment, slum housing, family fragility, physical and
sexual abuse—that create a "risk environment" of
violence for many children and young people in the region .
PAHO estimates that violence occurs in 30–35% of Latin
American families. According to a recent UNESCO publication,
of the 10 countries worldwide with the highest murder rate
among young people, 7 are in Latin America. In many places,
violence goes hand
in hand with HIV risk. For example, in a recent study of
13–19 year olds in Brazil, young people brought in for care
to emergency rooms (usually as a result of violence) have HIV
prevalence rates of the same magnitude as the rates seen in
young people seeking care for an STD—who by definition have
put themselves at risk through unprotected sex.
Communication is key
There is no single or simple answer to these interlinked
problems and their links with HIV/AIDS. Fortunately, a great
deal is known about how to create a comprehensive response—a
response that helps reduce vulnerability to HIV (a vulnerable
person is someone who has little or no control over his or her
exposure to the virus), discourage risk behaviour, and build
understanding between those who are HIV-positive and those who
are as yet uninfected.
Whether in the Netherlands, Thailand or Uganda, communities
that have adopted a comprehensive approach have been rewarded
by a lower rate of infection and less stigma and
discrimination directed at those living with HIV or AIDS. On
the basis of this experience, UNAIDS and its cosponsors have
put forward a global strategy featuring seven major sets of
action (see box).
Young people and HIV/AIDS:
Seven steps for moving forward
- Establish or review national policies to reduce the
vulnerability of young people to HIV/AIDS and ensure
that their rights are respected, protected and
fulfilled.
- Promote young people’s genuine participation in
expanding national responses to HIV/AIDS.
- Support peer and youth groups in the community to
contribute to local and national responses to
HIV/AIDS.
- Mobilize parents, policy-makers, media, and
religious organizations to influence public opinions
and policies with regard to HIV/AIDS and young people.
- Improve the quality and coverage of school
programmes that include HIV/AIDS and related issues.
- Expand access to youth-friendly health services
including HIV/STD prevention, testing and counselling,
care and support services.
- Ensure care and support of orphans and young people
living with HIV/AIDS.
None of these actions is conceivable without communication—among
young people, between children and adults, and within
communities as a whole. This is what prompted the choice of LISTEN,
LEARN, LIVE! as the theme for the 1999 World AIDS Campaign
with Children and Young People.
Communication can spark people’s courage in overcoming
harmful traditions and attitudes. Communication can help
create awareness of HIV/AIDS, get across the facts, and build
survival skills. And communication can create bonds between
generations—bonds that have been proven to help children and
young people survive and thrive in a world with AIDS.
Communication: challenging adverse norms
HIV risk does not occur in a vacuum. In Latin America and
the Caribbean, as everywhere else in the world, young
people’s lives are filled with circumstances and
expectations that encourage risk behaviour, amplify
vulnerability, or both.
It is hard to overstate the HIV risk from machismo,
a Spanish-language word that has come into widespread use in
other languages too because it so neatly sums up the
constellation of risk-taking and often predatory behaviours
with which young men are expected to prove their masculinity
in many parts of the world.
Machismo puts lives in danger—not least, the lives of
the young men themselves, as a recent Panos report makes
clear. Young men are expected to demonstrate their virility
with early and frequent sex, and multiple partners. Thus, in
Mexico City 15% of boys as against 4.5% of girls have first
intercourse before age 15; in Guatemala City the figures are
31.6% as against 13.9%. Young men are expected to know about
sex. Yet many probably know little. Among unmarried 15–24
year olds, premarital sex is commoner among males, according
to a series of Young Adult Reproductive Health Surveys in
several Latin American cities and countries showing that
24–73% of the men, as compared with 12–59% of the women,
had had intercourse. Those who are not knowledgeable about sex
cannot afford to let on—and wind up running the consequent
risks. Finally, the tension between machismo and homosexuality
complicates the task of informing men who engage in male-male
sex about HIV prevention. As a result of all these factors, in
Latin America and the Caribbean as a whole HIV infections
among men outnumber those among women.
Fundación SIDA
in San Juan, Puerto Rico, reaches out to 17–23-year-old
gay males with an HIV prevention programme. The young men
attend a 3-hour workshop for
10 weeks and organize a support group with the help of a
prevention case manager who offers counselling and emotional
support.
In a large-scale prevention project
carried out in 1997–98 by the Colombian League for the
Fight against AIDS, information about safer sex and oral
sex was distributed and workshops were held with young gay
men who then «multiplied» the information within their
social circles.
The risks, however, are not confined to men. The other side
of the machismo coin is vulnerability for young women, who are
expected to be ignorant about their bodies and sexual matters,
are expected to defer to male sexual demands and
decision-making even when they know their partner may be
infected through outside relationships, and are often
emotionally and economically dependent on him. While for young
men the major HIV threats arise from drug use and male-male
sex, the threat to young women is mainly from heterosexual
transmission. Among Brazilian 15–17-year olds, for example,
heterosexual intercourse was the route for 7% of male AIDS
cases but close to 48% of females. And infections among young
women are growing. Among 15–24-year-olds, men outnumbered
women by 12:1 in 1982; by 1996–98 the ratio was 1:1.
The Gente Joven project in Mexico
aims to counter the macho image of men as sexual predators.
Through a series of films, materials and peer educators, it
encourages young men to behave responsibly in their sexual
relationships.
In Honduras in 1990 Sports for Life,
a project initially sponsored by UNICEF, worked with
football stars—popular male role models who spoke out
publicly to increase HIV awareness, promote respect for
girls and women, and change the sexual script of young men.
The UNAIDS/UNICEF "Play
Safe" Initiative similarly harnesses the power of
football to communicate important AIDS messages, with
activities already organized in Ghana, South Africa and
Zambia. Heading the Initiative is Ronaldo, Brazil’s
two-time winner of the FIFA World Player of the Year award,
who is Special Representative for the World AIDS Campaign.
Macho attitudes can also help sow the seeds of violence.
While the prime victims of male violence are other men, these
acts rarely amplify the HIV risk directly (exceptions include
rape in all-male settings such as detention centres and
prisons). However, women who are targets of male
violence—often, at the hands of their husband or
partner—are put at risk of HIV. Forced sex transmits the
virus more readily, both because of genital injury and because
condoms are rarely used in such circumstances. Even when the
violence is not sexual, however, the mere threat of it makes
women wary of challenging their partner’s extramarital
relationships or afraid to demand condom use. And when sexual
abuse occurs early in life, evidence is accumulating that this
translates later on into greater sexual risk behaviour.
The scale of male-female violence is horrifying. In Mexico,
7 out of 10 child victims of violence are girls, and 60% of
women dying a violent death were younger than 13. According to
the Caribbean Adolescent Health Survey, by age 16–18 one out
of five young people reported being physically abused and one
in eight report sexual abuse. Females were twice as likely to
be sexually abused as males.
In Brazil, the Coletivo Mulher Vida
(Woman Life Collective) helps 850 adolescent girls living
in high-risk situations. Many have endured sexual abuse at
the hands of stepfathers, other relatives or family
"friends". Through education, psychological
support and help with alternative sources of income, the
collective seeks to change these patterns of submission,
build the girls’ self-esteem, and avert their entry into
prostitution, sex tourism or street gangs.
In Mexico, an NGO called CORIAC is
working with groups of young men who have been violent—or
sense the potential for violence—in their intimate
relationships, and who are interested in heading off future
violence.
While it is crucial for women to stand up to violence and
challenge it through legal and other means, it is equally
crucial to target young men—not by tarring them all with the
same brush as perpetrators or tacit supporters of violence,
but by enlisting them as allies in preventing violence against
young women.
Communication: passing along facts and skills
Without communication, there is little hope of enabling
children and young people to take the measures they need to
protect themselves and others from HIV. HIV prevention cannot
be done to people—it can only be done by and with
people, and only when they have the understanding,
motivation, skills, tools and freedom to avoid unsafe sex and
drug use.
Schools are prime settings for such discussions to take
place—between teachers and students, and among the students
themselves. Sexual health programmes can impart the facts
about sexuality, HIV/STD transmission, pregnancy and drug use,
and help youngsters learn and practise the skills they need in
today’s world. Among the skills are how to understand their
own options about sex and risk, how to avoid unwanted and
unsafe sex and drug use, how to negotiate safer behaviour, and
how to make and stand up for their own decisions in the face
of pressures by peers or older adults.
Talking with children about HIV and sexuality must start
early, in view of the early onset of intercourse and the early
risk of sexual abuse in the family and community. While more
children are attending school for longer these days,
many—particularly girls—have relatively few years of
education, and this precious but brief opportunity must be
seized to ensure that they leave school with the facts and
skills needed for survival.
The CARICOM multi-agency Family Health
and Life Education project aims to reach children and
young people in schools, from pre-primary to teachers’
college level, with an integrated health class that
incorporates sexual health education, drug prevention and
AIDS education. The focus is on decision-making, critical
thinking, self-awareness, communication skills, and coping
with stress. Communication in the CARICOM project is not
limited to discussions between teachers and students. A
major communications goal is to train the teachers who will
implement the project; this is being done using a core
curriculum which young people helped revise.
Health-care staff can also serve as trusted adults with
whom young people can communicate.
In a US study, adolescents were found to be more willing to
disclose sensitive information about their sexuality and
substance abuse, for example, to doctors when these provide
assurances
of confidentiality.
In Colombia, Profamilia offers
young and older adults their own all-male clinic for STD
treatment, urological and other medical care, vasectomy, and
HIV testing and counselling. Clients praise the clinic’s
staff, who were trained to be sensitive to the special needs
of men, including those who have sex with other men.
Communicate to connect
Communication with young people must take place not only in
schools, sports clubs, clinics, workplaces, and wherever they
congregate. It must also take place in the home. Children
and young people want communication and connection with
trusted adults. In Latin America and the Caribbean, as
elsewhere around the world, youngsters report wanting more
discussion about AIDS, sex and sexuality—and wanting that
information to be provided by their parents. According to
studies by the International Center for Research on Women,
young people need and want communication with parents, aunts
and uncles, grandparents, godparents, community leaders.
There are many examples where religious
communities in Latin America and the Caribbean have expressed
solidarity and extended care and counselling to people
affected by HIV/AIDS. In Chile, Dominican Republic, Puerto
Rico and other countries, hospices and «support houses» run
by the Catholic Church provide food, services and
pastoral care to young HIV-affected people who have been
rejected by their family or community. In Argentina, the
church has established a network of care services through the
parishes which support many HIV-infected adolescents and drug
users. In Bolivia, education and counselling seminars are
sponsored by Caritas. In Brazil, the much-publicized
case of Sheila—a 5–year-old HIV-positive
girl—illustrates the contribution that the Church can make
to the fight against AIDS. Sheila was refused admission to
public school, which generated a great deal of debate about
the rights of people with HIV, and wound up studying at a
traditional Catholic school which was the first to offer her
unconditional acceptance.
Children and young people report feeling distressed by the
lack of contact. In the Caribbean Adolescent Health Survey,
between one-third and two-thirds of all respondents said they
were unable to discuss their concerns with either their mother
or their father. Around one-fifth of the youngsters worry
about their parents leaving them. Those with such worries were
up to twice
as apt to have expressed extreme anger.
In the Caribbean survey, the absence of a caring adult was
linked to devastating consequences. In the absence of a
mother’s caring some 25–29% of 10–18-year-olds reported
a suicide attempt, as compared with 8–11% of those who
enjoyed care from a mother. When a father’s caring was
absent, the risk of suicide doubled.
Listening to a child’s concerns, speaking with him or
her, are hallmarks of a caring relationship. These are the
processes that weave the connection between adult and child. Having
a caring adult has been shown to be protective. For
example, in the Caribbean survey, those benefiting from a
father’s care enjoyed more protection from early sexual
debut, extreme anger and poor health. In a study in Alabama,
New York and Puerto Rico, adolescents were three times more
likely to use a condom at first intercourse when they had a
mother who talked to them about sex before they became
sexually active. And in a large-scale study in Minnesota, the
mere fact of having a caring adult available—not necessarily
a parent—was again shown to be an important protective
factor for young people. When health outcome was measured
(e.g. in terms of smoking, age of sexual debut and pregnancy),
feeling connected to a caring adult was associated with better
health. Somewhat surprisingly, other often-cited
factors—among them, race, socio-economic class, parent’s
educational level, and living in a single-parent
household—were not found to be linked to health outcome.
All young parents need to understand how important their
caring is to their children. Young men need special help to
overcome centuries-old traditions which appeared to relegate
them to a less important role vis-à-vis their children. As
one father remarked, "It is not my duty to talk to
children, that is the job of the mother. They know the rules.
If they want something from me, they tell their mother and she
would inform me."
The PAPAI project in Brazil (papai
means "daddy" in Portuguese), in collaboration
with the teaching hospital at the Federal University of
Pernambuco (Recife), assists young fathers and helps combat
the norm of the "absent father". Projeto PAPAI
conducts outreach and media activities promoting positive
images of fathers. It also offers educational activities and
counselling both for groups and for individuals, working in
settings—notably the military and schools—where large
numbers of adolescent males can be found. One accomplishment
is that a programme for teenage mothers now works with
"the expectant adolescent couple".
Similarly, in Jamaica an NGO called Fathers
Incorporated offers workshops to young men on the
importance of fathers getting involved with their families.
Communication breaks down barriers
Communication is also vital for breaking
down the walls that sometimes separate those living with HIV
or AIDS from others in their communities. Children and young
people who are HIV-positive have important things to teach
those who have so far escaped infection. They also have
important needs that deserve respect and attention. Listening
and learning can help all not just to survive but to live
positively.
The countries of Latin America and the Caribbean have
demonstrated a remarkable ability
to evolve, as shown by the revolution in family planning among
adolescents in less than two decades. In Mexico, for example,
only 14% of adolescents used a modern contraceptive in 1976.
By 1995 the figure had grown to 36%.
The challenge now for the region is to bring about a
similar magnitude of behaviour change, including condom use,
to avert an accelerating HIV epidemic among children
and young people.
For more information, please contact Anne
Winter, UNAIDS, Brasilia, mobile (+55 61) 985.5147, Eliane
Izolan, UNAIDS, Brasilia, (+55 61) 315.2544 or 225.0407, Lisa
Jacobs, UNAIDS, Geneva, (+41 22) 791.3387, Karen O'Malley,
UNAIDS, New York, (+1 212) 584.5022 or Michel Aublanc,
Conseils Relations Presse, Paris, (+33 1) 69 286.286. You may
also visit the UNAIDS Home Page on the Internet for more
information about the programme (http://www.unaids.org).
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