(Stigmatization can
cause denial of treatment to disease patients)
September 5, 2001
The Joint United
Nations Program on AIDS (UNAIDS) is focusing increased attention on how
stigmatization and discrimination can be obstacles to effective
treatment and care of people with HIV/AIDS. UNAIDS is leading a
discussion of the issue at the ongoing UN Conference Against Racism,
Racial Discrimination, Xenophobia and Related Intolerance September 5.
UNAIDS released a
fact sheet September 4 on how stigmatization and discrimination can
worsen the suffering of HIV/AIDS patients.
Following is the
text of the UNAIDS fact sheet:
(begin fact
sheet)
JOINT UNITED NATIONS
PROGRAM ON AIDS -- UNAIDS
Fact sheet
An overview of
HIV/AIDS-related stigma and discrimination
All over the
world, the epidemics of HIV and AIDS are having a profound impact,
bringing out the best and the worst in people. They trigger the best
when individuals group together in solidarity to combat government,
community and individual denial, and to offer support and care to people
living with HIV and AIDS. They bring out the worst when individuals are
stigmatized and ostracized by their loved ones, their family and their
communities, and discriminated against individually as well as
institutionally.
The nature of
stigma and discrimination
--The
"undesirable differences" and "spoiled identities" that HIV/AIDS-related
stigma causes do not naturally exist, they are created by individuals
and by communities. Stigmatization describes this process of
devaluation.
--HIV/AIDS-related stigma builds upon, and reinforces, existing
prejudices. It also plays into, and strengthens, existing social
inequalities -- especially those of gender, sexuality and race.
--HIV/AIDS-related stigma and discrimination play a key role in
producing and reproducing relations of power and control. They cause
some groups to be devalued and others to feel that they are superior.
Ultimately, stigma creates and is reinforced by social inequality.
Stigma,
discrimination and human rights
--Prejudiced and
stigmatizing thoughts frequently lead people to do (or not do) something
that denies services or entitlements to another person. For example,
they may prevent health services being used by a person living with
HIV/AIDS, or terminate their employment on the grounds of their HIV
status. This is discrimination.
--Discrimination
occurs when a distinction is made against a person that results in their
being treated unfairly and unjustly on the basis of their belonging, or
being perceived to belong, to a particular group.
--Due to stigma
and HIV/AIDS-related discrimination, the rights of people living with
HIV/AIDS and their families are frequently violated simply because they
are known, or presumed, to have HIV/AIDS. This violation of rights
hinders the response and increases the negative impact of the epidemic.
--Freedom from
discrimination is a fundamental human right founded on principles of
natural justice that are universal and perpetual. The basic
characteristics of human rights are that they inhere in individuals
because they are human, and that they apply to people everywhere.
--The Principle
of Non-discrimination is central to human rights thinking and practice.
All international human rights instruments and the African Charter (1)
prohibit discrimination based race, colour, sex, language, religion,
political or other opinion, national, ethnic or social origin, property,
disability, fortune, birth or other status.
--Recent UN
Commission on Human Rights resolutions (2) have unequivocally stated
that "the term 'or other status' in non-discrimination provisions in
international human rights texts should be interpreted to cover health
status, including HIV/AIDS", and has confirmed that "discrimination on
the basis of HIV/AIDS status, actual or presumed, is prohibited by
existing human rights standards".
--Discrimination
against people living with HIV/AIDS, or those thought to be infected, is
therefore a clear violation of their human rights.
--The forms of
stigma and discrimination faced by people with HIV/AIDS are multiple and
complex. Individuals tend to not only be stigmatized and discriminated
against because of their HIV status, but also because of what this
connotes. Recent UNAIDS-sponsored research in India and Uganda shows
that women with HIV/AIDS may be doubly stigmatized - both as 'women'
and as 'people living with HIV/AIDS' when their seropositivity becomes
known.(3)
--States have
obligations to respect protect and fulfill human rights. In relation to
stigma and discrimination, for example, the obligation to respect
requires States not to directly or indirectly discriminate in law,
policy or practice. The obligation to protect requires States to take
measures that prevent third parties from discriminating,(4) and the
obligation to fulfill requires States to adopt appropriate legislative,
budgetary, judicial, promotional and other measures to ensure that
strategies, policies and programmes are developed that address the
discrimination, and ensure that compensation is paid to those who suffer
discrimination.
Action to address
stigma and discrimination
--The human
rights framework provides access to existing procedural, institutional
and other monitoring mechanisms for enforcing the rights of people
living with HIV and AIDS, and for countering and redressing
discriminatory action.
--Appropriate
reporting and enforcement mechanisms (ranging from legal aid services to
hotlines for reporting acts of discrimination and violence) have
provided powerful and rapid means of mitigating the worst affects of
HIV/AIDS-related stigmatization and discrimination.
--Experience has
shown that two complementary kinds of alleviation strategies are
necessary to address stigma and discrimination: (i) strategies that
prevent stigma or prejudicial thoughts being formed and (ii) strategies
that address or redress the situation when stigma persists and is acted
upon through discriminatory action, leading to negative consequences or
the denial of entitlements or services.
--Ultimately, it
is at the community and national levels that HIV/AIDS-related stigma and
discrimination are most effectively combated. Communities and community
leaders must advocate for inclusiveness and equality irrespective of HIV
status.
(1) The right to
non-discrimination is enshrined in Article 2 of the Universal
Declaration on Human Rights; International Covenant on Civil and
Political Rights; International Covenant on Economic Social and Cultural
Rights; Convention on Elimination of All Forms of Discrimination Against
Women; Convention on the Rights on the Child; the African Charter.
(2) Commission on
Human Rights, Resolutions 1999/49 and 2001/51.
(3) HIV and
AIDS-related stigmatization, discrimination and denial: forms, contexts
and determinants Research studies from Uganda and India.
(4) For example,
adopting of legislation to ensure the equal access to health care and
health related services provided by third parties; to control the
marketing of medicines and medical equipment and to ensure that medical
practitioners and other health professionals meet appropriate standards
of education, skill and ethical codes of conduct.