For the care giver -- family member, spouse, lover or
partner, friend, or volunteer buddy -- providing informal support and
assistance to a patient throughout the course of the illness can be
particularly stressful. Care giving involves a restructuring of care
givers' personal and social lives, adversely affecting their outside
employment, leading to feelings of fatigue, emotional and physical
exhaustion, and imposing severe financial burdens. When an illness is
long and extended, such as AIDS, care givers are at risk for becoming
over-extended and depleting their physical, emotional, and financial
resources. Consequently, patients may find that when their needs are
greatest, they may have exhausted their informal resources for
assistance, placing themselves at high risk for unmet needs.
Read more
"Hepatitis C (Hepatitis C Virus) is a highly stigmatized disease. Revealing a
diagnosis of Hepatitis C Virus can cause anxiety on a number of levels. The
ramifications of this disclosure can impact medical, marital, family,
insurance and other area of one's life. Common feelings that people
experience when considering disclosing their Hepatitis C Virus status include:
Most of these issues can be helped by telling family, friends or
business acquaintances and seeking either professional or peer support.
However, people have to be careful who and what they tell people because
of potential consequences in their personal and business life.
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Attitudes About Hepatitis C Education Campaign for People Newly
Diagnosed with Hepatitis C |
This report
presents the results of five focus groups conducted by Market Street
Research, Inc. among people recently diagnosed with hepatitis C,
including people in recovery and those who contracted the virus
through a blood transfusion or organ transplant |
226 kb pdf |
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Burden of Infectious Disease among Inmates of and Releasees from US
Correctional Facilities, 1997 |
Although some
figures have been published, comprehensive statistics demonstrating
the burden of infectious disease among inmates have been lacking.
|
119 kb pdf
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Caregivers |
Despite calls for
a shift from hospital to community based care for people with HIV
infection there has been some speculation about whether the
facilities will actually be available. One central element of
community care is informal care. |
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Changing the Stigma of and Levels of Awareness for Hepatitis and
HIV/AIDS |
Many people
believe that there are just a few ways to acquire either of these
diseases and that they occur due to specific life-style behaviors.
This is why, in constructing the survey we attempted to reveal the
possibility of other sources in lieu of basic blood-to-blood or
sexual preferences |
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Conceptualizing Stigma |
We define stigma
as the co-occurrence of its components—labeling, stereotyping,
separation, status loss, and discrimination—and further indicate
that for stigmatization to occur, power must be exercised
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213 kb pdf
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COUPLES' PERCEPTIONS OF WIVES' CFS SYMPTOMS, SYMPTOM CHANGE, AND
IMPACT ON THE MARITAL RELATIONSHIP |
The purpose of
this descriptive correlational study was to describe the differences
in couples' perceptions of wives' Chronic Fatigue Syndrome (CFS)
symptoms and to describe the relationship between changing symptoms
and the marital relationship |
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Cure versus care |
The term 'Quality
of Life' is often heard... and said at the Hospice to remind us of
our main aim and purpose. As most of our patients have been
diagnosed with a terminal disease, further treatment is often
inappropriate and cure is not always an option. |
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Current Practice Patterns of Primary Care Physicians in the
Management of Patients With Hepatitis C |
We administered a
survey to 1,233 primary care physicians in a health
maintenance organization (HMO) in April 1997 to assess
their knowledge of the risk factors for Hepatitis C Virus infection and
approach to the management of 2 hypothetical Hepatitis C Virus
antibody-positive patients |
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Differences in Knowledge of Hepatitis B Among Vietnamese, African-
American, Hispanic, and White Adolescents in Worcester,
Massachusetts |
Adolescent
knowledge about risk of infection was low in this study. Attention
should be directed at providing health education on hepatitis B to
adolescents, particularly to Vietnamese. Health care providers,
community health educators, and others engaged in the effort to
control and eradicate hepatitis B should be sensitive to the unique
educational and cultural needs of high-risk southeast Asian
adolescent populations. |
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DISABILITY AWARENESS AND CHANGING ATTITUDES
|
Finds that
volunteer college students who have had previous contact with
individuals who have a physical disability are more at ease with
their peers who are disabled than those who have had no contact.
Suggests that contact may alter the pattern of thoughts concerning
interaction with people who have a disability. |
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Disclosure |
The ramifications
of this disclosure can impact medical, marital, family, insurance
and other area of one’s life. |
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Epidemic Ravages Caregivers; Thousands die from diseases contracted
through needle sticks |
Over the next 20
years, the epidemic would ravage the nation's medical workers.
Thousands of needle stick victims would die of AIDS, hepatitis and
other blood-borne infections. Tens of thousands more would contract
devastating diseases. Hundreds of millions of dollars would be spent
every year on replacing and treating dying and infected workers.
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Factors Associated with Prevalent Hepatitis C: Differences among
young adult injection drug users in lower and Upper Manhattan, Hew
York City |
This study
examined correlates of prevalent Hepatitis C Virus infection among young adult
injection drug users in 2 neighborhoods in New York City
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107 kb pdf
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Fear of dying and HIV infection vs. hepatitis B Infection |
Fear of certain
death seems to account for the greater concern about exposure to HIV
than to Hepatitis B. |
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Hepatitis B, and prejudice, ravage a nation |
And even though
the virus is impossible to transmit by casual contact and the
government has repeatedly pledged to protect them, the carriers
suffer from rampant discrimination. They are routinely fired from
their jobs or forced out of universities or segregated in separate
dormitories. Even kindergartens have sometimes barred them. |
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Hepatitis C – a relationship with stigma |
PowerPoint
Presentation |
116 kb |
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Hepatitis C…Overcoming the Barriers |
Presentation
concerning HCV |
534 kb pdf |
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Hepatitis C Virus activist seen as Satan |
"You are not of
Christ, but of Satan." That's exactly what they said to me. That was
the declaration recently from a Board of Deacons at a large area
church. |
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Hepatitis C virus-infected patients (41%) report communication
problems with physicians |
"...The current
study demonstrated that more than one-third of patients diagnosed
with HCV infection perceived interaction difficulties with
physicians. Nearly one-half of the patients with conflict reported
being misdiagnosed or inadequately treated and questioned the
competence of their physicians. In addition, patients perceived
negative attitudes and a feeling of disrespect from their
physicians. This led to a feeling of being stigmatized, mistreated,
or abandoned in more than one-fifth of those reporting such
difficult interactions....." |
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Hidden Epidemic Confronting STD's |
The Hidden
Epidemic is the report of a 16 member committee on prevention and
control of sexually transmitted diseases set up by the Institute of
Medicine to assess the current impact of such diseases and to "provide
direction for future public health programmes, policy and research in
STD prevention and control." |
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Illegal Drug Users Need/Deserve Treatment for Hepatitis C
|
University of
California-San Francisco (UCSF) researchers are recommending that
illicit drug users should be eligible to receive treatment for the
hepatitis C virus. |
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Needle-Exchange Program Cut Hepatitis C Transmission Rate
|
According to a
report presented to the American Association for the Study of Liver
Disease, injection drug users who began injecting drugs after the
1993 legalization of a safe needle program in San Francisco had a
much lower risk of contracting hepatitis C virus (Hepatitis C Virus) than those
who started earlier. |
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On Stigma and its Public Health Implications |
In addition to
variability in its definition the stigma concept and research based
on it have been criticized for the narrow and biased vision it has
allowed. Two critical challenges can be identified. The first is
that many social scientists who do not belong to stigmatized groups
and who study stigma, do so from the vantage point of theories that
are uninformed by the lived experience of the people they study
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PHENOMENOLOGY |
Phenomenology is
a movement in philosophy that has been adapted by certain
sociologists to promote an understanding of the relationship between
states of individual consciousness and social life. As an approach
within sociology, phenomenology seeks to reveal how human awareness
is implicated in the production of social action, social situations
and social worlds |
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Prevalence and Duration of Hepatitis C Among Injection Drug Users |
There are an
estimated 1.0 to 1.5 mil- lion injection drug users in the United
States.) To anticipate the future burden of Hepatitis C Virus-related care among
injection drug users, it is important to determine the prevalence
and duration of infection. |
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Prevalence of hepatitis C in prisons
|
We used
cross-sectional willing anonymous salivary hepatitis C (WASH-C)
surveillance linked to self-completed risk-factor questionnaires to
estimate the prevalence of salivary hepatitis C antibodies (HepCAbS)
in five Scottish prisons from 1994 to 1996. |
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Preventing Discrimination and Reducing Stigma and Isolation
|
In order to
provide better access to health services for people with hepatitis
C, it is particularly important that the discrimination common in
health care settings is acknowledged and actively challenged
|
413 kb pdf
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Promoting health, reducing stigma: Closing the inequality gap in
access to primary health care for women living with Hepatitis C |
One of the major
challenges facing women diagnosed with hepatitis C is overcoming the
stigma attached to this illness which frequently acts as a barrier
to appropriate and timely primary health care. |
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Report of the enquiry into hepatitis C related discrimination |
Concepts of health and illness, well-being and disease are cultural
constructs—they vary with time and place, with ideology and belief.
Over the course of history our views about health and illness have
changed
|
465 kb pdf |
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REFRAMING WOMEN'S RISK
|
These women have
been disproportionately poor, African-American, and Latina. Their
neighborhoods have been burdened by poverty, racism, crack cocaine,
heroin, and violence. |
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Stigma and Hepatitis C
|
Millions of
Americans live with the hepatitis C virus (HCV). Although
potentially life threatening, the vast majority of those with HCV
will die with it and not of HCV. In most cases, HCV is
manageable and treatable. However, HCV may test the physical,
emotional and spiritual health of those with it. HCV touches the
homes, workplace and communities of all those within its reach. An
often overlooked and painful component of HCV is stigma. Although
invisible, stigma is a harsh reality. For some, the stigma of HCV
hurts more than HCV itself. This guide discusses the ways in which
HCV is stigmatized and provides tools for confronting and living
with HCV’s senseless labels. Stigmas hurt all of us. We may not all
have HCV, but we all live with it. Living without stigmas and with
compassion is just plain good sense. |
Pdf 197 kb |
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Stigma of Hepatitis C and Lack of Awareness Stops Americans From
Getting Tested and Treated |
Americans'
misunderstanding of the potential dangers of hepatitis C is causing
many with risk factors to forgo testing and treatment, according to
a landmark survey commissioned by the American Gastroenterological
Association (AGA). |
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Striking Lack of Awareness
|
People with
hepatitis C infection deserve the same tools as those with HIV so
that they can become experts about their virus |
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Surveillance, Social Risk, and Symbolism: Framing the Analysis for
Research and Policy |
This essay
proposes a holistic heuristic for practical prevention policy
making. Rather than focusing piecemeal on specific "barriers" to
testing and care, the surveillance debate counsels public health
policy makers to provide the conditions of opportunity, information,
motivation, and confidence that people with HIV need to accept an
effective program of early intervention. |
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THE DENVER POST, EDITORIAL, 1/23/02
|
Most cases of
hepatitis C result from "lifestyle factors," rather than
occupational risks. That's a polite way of saying that most cases
result from intravenous drug use with dirty needles or from multiple
sex partners |
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Through the Looking Glass: The health and socio-economic status of
hepatitis C positive Transfusion Recipients |
This study deals
with the socio and economic impact of transfusion recipients and
what occurs to them over time |
305 kb pdf
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WHEN FAMILY MEMBERS JUST CAN'T UNDERSTAND |
There are probably
few things in life that are more hurtful than being rejected by
family members when we need them most. Unfortunately, many patients
find that a diagnosis of hepatitis C not only causes friends to
scatter, but also contributes to some families literally splitting
apart. |
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Why conduct an enquiry into hepatitis C related discrimination |
In recognition of the seriousness of the issue of hepatitis C related
discrimination, the dearth of research, and the need for improved strategies
to prevent and eliminate such discrimination…the anti-Discrimination Board
of NWS undertake a statewide inquiry into Hepatitis C related discrimination
to examine the nature and extent of hepatitis C related discrimination, and
recommend legal and administrative changes across a wide range of activities.
|
442 kb pdf |
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