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“The only thing necessary for these diseases to the triumph is for good people and governments to do nothing.” |
Nationalism, Sexuality, and the HIV/AIDS
Epidemic in Modern Greece
by:
Cora Best
University of Missouri-Columbia, 2003
© Cora Best, 2004, All
Rights Reserved
Abstract: This paper
summarizes an investigation into the socialized medical system of Greece at
a local, national, regional level, and as a working member of the European
Union, focusing primarily on the policy of the Greek state concerning the
HIV/AIDS epidemic. The intent is to draw attention to the impact ideology
can, consciously and unconsciously, have on the development of public health
policy. First, a brief outline of the history of the HIV/AIDS epidemic in
Greece and how the government has reacted and organized to combat it is
necessary. I then apply an anthropological lens, utilizing explanations of
nationalistic and sexual ideologies as appropriate to Greek culture to
elucidate their impact upon public education and outreach/intervention
efforts.
I. Introduction
This examination of the HIV/AIDS situation in Greece focuses on the
administrative policy of the state and its relationship to the public
conception of the disease. This paper incorporates a holistic perspective
that considers the country’s unique geographical, political, and cultural
position and extends beyond health statistics to consider how conceptions of
sexuality and nationality have influenced and been influenced by the
relatively recent epidemic. In this analysis the United States is sometimes
used as a comparative reference, not as a model of superiority, but because
it is the industrialized country that I can most accurately draw comparisons
to. As a visiting student of Anthropology, the recognition of differences
in the overall public concern for HIV and STDs, contraceptive practices, and
sex education efforts in Greece is what originally sparked my interest in
the topic. The explanation for these differences is complex and concerns
population size, perceived religious and ethnic homogeneity, medical
infrastructure, and other factors. This paper addresses such issues and
utilizes previous anthropological research on gender and nationalistic
ideologies in modern Greece to expand upon how these relate to and explain
the HIV/AIDS situation there today.
II. History of HIV/AIDS in Greece
The HIV/AIDS epidemic in Greece is monitored and managed by the Hellenic
Centre for Infectious Diseases Control under the Ministry of Health and
Welfare. The Ministry maintains testing and reference centers along with
outpatient and hospital clinics, which provide services to HIV/AIDS
patients. AIDS case reporting became mandatory by law in 1984, and the
process of building this system was soon well under way. Four years later
the reporting of HIV cases was mandated as well. The Ministry of Health and
Welfare aims to work in accordance with the European Union and to use
similar case definitions and treatment procedures.
KEEL (another name for the HCIDC) released a full epidemiological report
on all HIV and AIDS statistics in 2002 that provides all cases and
fatalities from 1984-2001, and the following statistics are from this
document. The total number of HIV cases including AIDS cases since 1984
through the year 2001 was 5,859. The overwhelming majority of which are
male patients - 80.9 percent male and 18.4 percent female (gender unreported
for some cases). Throughout the early 1990’s the rate of HIV infection was
steadily and significantly increasing. This trend eventually commanded the
attention of the state, and by the end of the decade, more focused
intervention and public education were implemented. Since the beginning of
the new millennium though (2000 and 2001 statistics), the rate of infection
has returned to less dramatic levels, possibly signifying the effectiveness
of these administrative efforts.
The AIDS statistics follow a similar pattern. The cumulative number of
cases reported through 2001 is 2,254, again predominantly male patients (86
percent). When viewing the AIDS statistics, there are certain large shifts
in the data, and it should be noted that these are not representative of
actual fluctuation in disease prevalence. For example, there was a large
jump in new cases from the years 1993-1996, one that was alarming even in
the context of an already significant increase similar to that of HIV
infection. Yet this is more accurately attributed to the simultaneous
adoption of expanded diagnostic definition, i.e. broadening the category of
symptoms classified as AIDS related resulted in more diagnoses. And soon to
follow was a significant drop in AIDS cases because of new access to highly
effective antiretroviral drugs, which delay the onset of the disease.
Finally, and most importantly, the primary mode of transmission of the HIV
virus for all recorded cases has been and continues to be sexual contact,
homosexual males accounting for the largest proportion each year. The
primary mode of transmission in the female subcategory continues to be
heterosexual contact (KEEL 2002).
III. Sexuality and Sex Education
In comparison to other European countries, Greece has fortunately maintained
a low incidence of HIV/AIDS since the discovery of the disease. There have
only been 1,299 total deaths reported since 1984, and very few pediatric
cases as well. The exact explanation is difficult to pinpoint. According
to the condom producer Durex’s worldwide report in 2001, Greeks are some of
the most active lovers, second only to Americans (Greece Now 2001). Yet one
must question the reliability of this information and whether or not Greeks
are primarily monogamous. Interestingly, there have been few cases reported
which identify blood transfusion as the mode of transmission, thus it
appears that the medical infrastructure has been impressively successful in
monitoring the blood supply. But the causal relationship between the
monitoring system and the incidence of HIV infection remains ambiguous since
the incidence of HIV cases was relatively low to begin with.
It has been well documented that Greece is only recently becoming more
progressive on issues of sex education and contraception, and the fear of
HIV/AIDS precipitates much of this change. Until the late 1990’s
contraceptive use was not widespread. A Metron Analysis study sponsored by
Greece’s Institute of Social and Preventative Medicine reveals, “Accidental
pregnancy results in over 200,000 abortions per year (vs. 100,000 live
births)” (Greece Now 2001). A continually declining birthrate and the
widespread prevalence of abortion is a high-ranking concern on the national
agenda and has been coined the dhimografiko within public discourse (Halkias
1998:112). It is also of interest that most Greek women do not take the
initiative in contraceptive decisions and leave this up to their male
partner (Greece Now 2001). This is not surprising and a review of feminist
anthropology pertaining to modern Greece will easily reveal that the sexual
and social subordination of women is still prevalent. Dubisch poignantly
phrases that “Because it threatens family reputation, female sexuality is
viewed as a danger to society, and it must be kept under strict control by
male guardianship, both before and after marriage as well as by the women’s
own sense of modesty and shame (dropi)” (Dubisch 1986:196).
This concept of dropi is central to gender discourse in Greek
ethnography, which often depicts the perception of female sexuality as
threatening to the family and social structure due to its vulnerability to
pollution. Dubisch explains that “A woman’s body thus becomes the symbol of
family integrity and purity and, more generally, of society as a whole” (Dubisch
1986:211). So it is ironic that as mothers, Greek women are the primary
educators of their children regarding sexual education in the home
(Attitudes 2000: 3), leaving it to question how openly sexual matters are
discussed there.
This has been a heated topic of debate in the last decade, especially
since the increased incidence of HIV in Greece and worldwide. Only since
2001 has sexual education been included in the public education curriculum
(Greece Now 2001). In response to a group of concerned Athenians, a private
NGO, SEXTANT, conducted a pilot survey in the Athens area. The survey,
funded by the Ministry of Health, aimed to assess parental attitudes towards
sexual education. They found that although parents agree that sex education
is important to protect their children against STDs and AIDS, there was
significant resistance to this education beginning before high school and
also hesitation surrounding the inclusion of anything other than
contraception and STD information. Other sexual matters such as
masturbation, and ironically enough, homosexuality and abortion, which were
deemed less worthy of attention, are the same subjects that most parents
admitted remained unaddressed in the home. The general concern was that
such information and early education would foster an interest in sexual
activity at a much younger age (Attitudes 2000).
Such reservations demonstrate that the open discussion of sexuality
still retains an element of taboo in the public and private spheres, and
this directly relates to the public conception of HIV/AIDS and the
conception of personal risk involved. Dr. Imvassilis Kioses MD/PhD heads
the Center for HIV/AIDS in Thessaloniki, and reveals that 70 percent of the
new patients each year who utilize the voluntary testing centers and are
diagnosed as HIV-positive are already at full-blown AIDS status. Roughly 40
percent of these individuals die within 21 days. Thus, these individuals
are waiting until they are highly symptomatic to confront their illness,
which means they lived for several years infected with HIV and able to
transmit the virus. Since HIV and AIDS treatment is “technically” free to
everyone who seeks it, and since the system maintains a high level of
anonymity and confidentiality through the use of personal identification
codes, certain assumptions are validated: Most patients are unaware or
uneducated of their HIV status, are possibly unaware if they are highly at
risk for infection, or are unaware/uneducated of the diagnostic and
treatment services available.
IV. Nationalism and Sexual Pollution
The emphasis on the phrase “technically” free in the previous section is
meant to address the inconsistency between theory and practice, legislative
policy versus what actually transpires. It is neither surprising nor
dramatic that, even in a socialized system, disparity exists amongst levels
of care, especially in the circumstance of non-nationals (refugees and
immigrants). Complex and controversial matters pertaining to migrant
populations and nationalistic ideologies become relevant when seeking to
understand the government’s response to HIV-positive non-nationals and the
perceived level of risk within these populations. Greece is a common
destination of economic and political refugees and other migrants from the
Balkan and former Soviet regions. There is also a reported influx of other
nationalities such as African, South Asian, and Turkish from the western
border with Turkey. The Greek state has been under fire from human rights
organizations in recent years for the mistreatment of migrants in general.
Even more central to this discussion is the issue of migrant sex workers
predominantly from the Balkans and eastern Europe - the largest proportion
being of Albanian and Ukrainian origins - which has received major attention
from the media and the Greek government. To comprehend the complex
relationship between these issues and the HIV/AIDS situation, one must be
aware of certain ethnic and nationalistic ideologies in the sensitive area
of the Balkans and Greece.
Much scholarship has been devoted to what Pietro Vereni terms “border
anthropology” and the socially constructed notion of “ethnic purity” in
modern Greece (Vereni 1996:79). He explains that in the volatile struggle
to define geographical and ideological borders, nations and national
identity must be forged. He discusses the implications of developing a
hypothetical national identity that in areas such as the Balkans usually
consists of a prescribed ideal language, culture, and/or religion. He
distinguishes between ethnic boundaries, frontiers, and administrative
borders to accurately describe the typical process of nation-building in
areas where nationality is so indelibly tied to notions of ethnicity. The
ethnic boundary is an ill-defined boundary area, which a certain ethnicity
occupies, yet the definitive characteristics of that ethnicity - language,
religion, etcetera – remain ill-defined as well. In contrast, a frontier,
while still ideological in essence, is geographically defined by the two
self-acribed national groups on each side of it. It is this frontier that
must be legitimised by administrative borders. Vietri describes the
evolution of this process,
The shift from ethnic boundary to frontier, and the attempt (an
essentially successful one in the case of Greece) to make the administrative
border coincide with this frontier imposes severe and inescapable decisions
on the impure. Flexibility is reduced to a minimum, the manipulation of
identity in accordance with context becomes virtually impossible. (Vereni
1996:86)
This perceived ethnic homogeneity of the nation thus must be protected from
outside (foreign) threats and is fundamental to the discourse of pollution
and sexuality and the abortion situation in Greece (the dhimografiko)
discussed previously.
In the Greek society there can be definite categories of within and
without, and the category of stranger varies contextually. But
traditionally the home and family is the integral unit, then the community,
and then the nation. Thus, if we consider the female as assigned to the
primary maintenance of family integrity and purity, we can easily recognize
how her “vulnerability ” to contamination is dangerous. Dubisch, among
others, refers to the distinction Greeks make between us and them,
explaining, “Within the house is order…without is the “wild” (competition
and “strangers”) (Dubisch 1986:210). We can extend the dichotomy of the
home versus all that is outside to contrast the ethnically “pure” nation
versus the foreign. Sexuality, especially female sexuality, becomes a
symbol of the larger body politic and is something that must be protected
from the contamination of outsiders. Halkias identifies such concerns as
the root of the dhimografiko, “ The dhimografiko operates as a powerful
reproductive technology that contributes to the ongoing state-building
project of policing particular configurations of race, religion, gender, and
sexuality as properly “Greek”, while excluding others” (Halkias 1996:112).
The ultimate issue is the fear that the dwindling population of “pure
Greeks” will be overrun, since in this construct ethnicity and nationality –
culture, religion, and language – are interdependent.
V. Current Controversies
These anthropological accounts are not to be interpreted as evidence that
all Greek citizens are sexists or xenophobes. These are generalizations
that reflect the traditional culture, remnants of which are highly prevalent
in the modern society. Yet such ideologies exist at the foundation of a
larger social reality and cannot, should not, be disregarded as irrelevant.
One can now return to the HIV/AIDS discussion and examine it through this
anthropological lens. There are multiple reasons, though not always fair or
warranted, for negative attitudes toward migrant populations. Initially all
migrants, or those seeking refuge and coming from impoverished nations, are
a financial and administrative burden upon the state. For strictly
epidemiological purposes, the monitoring of all infectious diseases must
strive to include migrant populations in order to effectively track disease
spread. Within the last few years, there has been a major epidemic of HIV
infection in the eastern European countries of the former Soviet bloc due to
infrastructure collapse and lack of education, and this has received major
attention from the World Health Organization and the European Union.
Illegal immigrants, such as migrant sex workers, pose a tremendous problem
for the Greek government’s attempts to monitor the HIV/AIDS epidemic. Thus,
it is not difficult to ascertain that this situation fosters concern about
the risk to public health.
The Greek administration can be commended in some aspects on their
approach to assisting these migrant populations and controlling the spread
of HIV/AIDS. The relevant legislation and Greek government reports state
that all migrants, regardless of legal status, are afforded equal testing
and health care measures. According to Dr. Kioses, the government provides a
stipend of 714 euros every two months to any who request it. Such a policy
is not a universal of every European nation (nor the US), for it is possible
that migrants may be deported or sanctioned if their HIV status is
revealed. A report on the National Focal meeting in Athens, which concerned
mobile populations and HIV/AIDS concludes with,
It should be stressed that in Greece all people, including migrants
regardless of whether they have legal or illegal residence status, have free
access to all state hospitals, health care centres and other health care
services. Moreover, all people living with HIV/AIDS are entitled to receive
treatment with all of the new therapeutic agents free of charge (Ballas
2000:82).
This is a grand and virtuous policy in theory since these measures serve
the interests of both the migrants and the Greek state. If someone infected
with HIV (aware of their status or not) migrates to a country and is either
denied access to treatment or fears deportation and legal sanctions, then
their condition will worsen, and they will be more likely to spread the
disease.
But it appears that beneath this noble pledge lies the red tape of
bureaucracy and that the actual implementation of these policies is not so
cut and dry. In the last few years, KEEL has made tremendous outreach
efforts towards mobile populations and is the National Focal Point of AIDS &
Mobility in Greece (Zacharouli 2003:61). KEEL networks extensively with
other European agencies and with NGOs within Greece and also has funded a
program called the Umbrella Network, which aims to assist migrant sex
workers in receiving full treatment and to educate them about HIV/AIDS and
their rights.
Yet, even reports made by KEEL administration depict a reality that
contrasts the intent of the legislation. A report by KEEL’s Zacharouli and
Mavraki states, “Even immigrants who reside in Greece illegally have access
to services. They are not reported to the authorities” (Zacharouli
2003:63). And the grievances of multiple NGOs resound a cry of
inconsistency, one NGO appropriately denoting a “legislative gap” in regards
to organization and funding (Zacharouli 2003: 65). Migrants must be
officially recognized as refugees or asylum recipients/applicants and have
the according paperwork to receive full benefits. So, while praising Greece
for making notable progress in improving health care for mobile populations,
most NGOs still characterize the official process as lengthy and inefficient
(Zacharouli 2003:64-68)
But an imperative question that remains unaddressed is whether the
administration devotes a disproportionate amount of attention to this small
sector of individuals. In the mid-1990’s, the state, in concordance with
the EU, began the first massive public health campaign devoted to the
HIV/AIDS epidemic. There was focus on educating migrant populations, and
pamphlets were produced in English, Albanian, and Bulgarian (Ballas
1998:83). This is a noteworthy fact because in relation to the HIV/AIDS
epidemic in Greece and the rest of western and eastern Europe, Albania and
Bulgaria have extremely low HIV incidence rates. (But one must also
question the effectiveness of the epidemiological surveillance and reporting
in these less developed countries).
Furthermore, KEEL’s comprehensive report highlights the proportion of
heterosexual patients originating from countries where HIV infection is
prevalent, along with the proportion of patients infected within Greece by
people from such countries. This is not unusual for the division and
documentation of heterosexual subcategories is reported by the majority of
European countries. But, interestingly, the reporting is highly variable.
For example, Belgium distinctly divides citizens and migrants with
heterosexual categories such as Belgian nationals and non-nationals.
Britain presents heterosexual subcategory classification identically to the
Greek report but provides homosexual subcategories as well. Yet, the
British report distinctly defines a country where heterosexual transmission
is prevalent as one where more than five percent of the adult population or
more than one percent of pregnant females is diagnosed as HIV-positive. The
report identifies the majority of these countries as sub-Saharan African
countries, not the Balkan countries of Albania or Bulgaria. A newly updated
report by Zacharouli and Mavraki of KEEL does recognize that the majority of
HIV- positive immigrants in Greece originate from sub-Saharan Africa and
eastern Europe (Zacharouli 2003:62). Yet, the lack of clarity and
uniformity in the epidemiological reporting makes it difficult to discern
which migrant populations face the largest risk and need more focused
intervention efforts. And in light of this information, it seems surprising
that due either to lack of monetary or linguistic resources or just plain
misallocation there has been no outreach focused towards the Sub-Saharan
migrant population. Another curious fact is that the KEEL report presents
no division of homosexual subcategories when the overwhelming majority of
the HIV cases reported in Greece identify homosexual contact as the mode of
transmission.
VI. Conclusion
Thus the threat of HIV/AIDS may still be, unfortunately, regarded as
“foreign” or outside of the mainstream population. This situation
strikingly parallels that of the United States years ago at the onset of the
HIV/AIDS epidemic. Many people conceptualize it as a disease that affects
homosexuals and foreigners. And, through this conception, it is yet another
factor that elevates the threat of contamination from the outside through
the sexual mode of entrance. In reference to the tremendous aid afforded to
non-citizens on behalf of the Greek state, Dr. Kioses replied that, while it
is a measure of duty and goodwill, “We must protect our ethnicity and
nationality”. This is a truth coming from a man who devotes his life to
patients with HIV/AIDS, and it is assuredly not meant to harbour racial
overtones. And it is true that in Greece 10 to 15 percent of new HIV
patients each year are of migrant status. Yet, the remaining roughly 85
percent are Greek citizens. If we hypothetically can include all of this
migrant population in that seventy percent of patients who are at full blown
AIDS status when they test positive for HIV, then this means that the
remaining 50 percent are Greek citizens who do not confront their illness
until there is little that treatment can offer.
While the administration recognizes the increased incidence of HIV
contraction through heterosexual contact in the late 1990’s, outreach
focuses intensely on migrant populations which account for a much smaller
percentage of HIV-positive individuals than that of Greek patients,
homosexual and heterosexual subcategories independently and combined. It
cannot be denied that migrant populations are an important issue in
epidemiology and deserve attention for the benefit of themselves and the
rest of society. But prevention efforts must also strive to deliver the
cliché but fundamental message “AIDS does not discriminate” to the
mainstream population. In the case of Greece, the administration may be
inadvertently perpetuating a skewed conception of HIV/AIDS, thus leaving the
public misinformed of the level of personal risk and the magnitude of the
epidemic.
REFERENCES
Ballas, Costis
1998 Greece. In HIV/AIDS Care and Support for Migrants and Ethnic Minority
Communities in Europe. Jeanette du Putter ed. Woerden
Dubisch, Jill
1986. Culture Enters Through the Kitchen: Women, Food, and Social
Boundaries in Rural Greece. In Gender and Power in Rural Greece.
Jill Dubisch ed. Princeton, PUP.
Halkias, Alexandra
1998. Give Birth for Greece! Abortion and Nation in Letters to the Editor
of the Mainstream Greek Press. Journal of Modern Greek Studies.
Vol. 16.
International Planned Parenthood Federation
2000 Attitudes of Greek Parents Towards Sex Education. International
Planned Parenthood Federation-EuropeanNetwork.
www.ippf.org/regions/europe/choices/v28n1/greek.htm
KEEL
2002 KEEL 14th annual Epidemiological Report on HIV/AIDS. Hellenic Centre
for Infectious Diseases Control. Ed. Arvantitis, M. MD.
www.keel.org.gr.
Vereni, Pietro.
1996. Boundaries, Frontiers, Persons, Individuals: Questioning “Identity”
At National Borders. pp 77-89. Europea II-I.
2001 Greece Now: Safe Sex. Greece Now Project www.greece.gr/LIFE/lifestyle/safesex.stm.
(Accessed May 2003)
Zacharouli, Eva and Amalia Mavraki
2003. Greece. In Access to Care: Privilege or Right? Migration and HIV
Vulnerability in Europe. AIDS & Mobility. G. Broring, C.
Canter, N. Schinaia, and B. Teixeira, eds. Pp. 60-70.
http://www.aidsmobility.org/greece.htm
(Accessed Dec. 2003)
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