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Stigma & Infectious Diseases
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A Song of Stigmafrom Jony Jerusalem (One of the most outspoken AIDS activists in Israel. He has
documented his battle with the illness on Web sites and through Internet
forums and has lectured in schools.)
To view a letter from people living in China with Hepatitis B
and the discrimination that they face everyday clickHere
Stigma and why it is an important issue for you!
By James Hoyt
Many of us here have often wondered why more money, more education,
more research and more programs are not available to those infected with
an infectious disease. A very simple reason is behind this and the lack
of unity amongst those infected with and the stigma often associated
with either Hepatitis C or HIV/AIDS. Stigma is a difficult and
sometimes evasive attitude to understand. Stigma is about
discrimination, depriving those less fortunate of the rights as human
beings. It is about the perceived separating of good people from bad.
Throughout History, people who were infected with some unknown illness
were Stigmatized.
Why stigma is important to you
"To explore the relationship between stigma and public health,
examine the social and cultural determinants of stigma, explore how
stigma prevents people from seeking or getting treatment for disease,
and determine future research opportunities, the Fogarty International
Center (FIC), in partnership with other National Institutes of Health (NIH)
Institutes and Offices, U.S. agencies, and domestic and international
organizations (see list below), announces a major international
conference oriented toward developing a research agenda that will lead
to the mitigation of the impact of stigma on individuals and societies.
Such an agenda would be expected to include activities designed not only
to better understand stigma's social and cultural determinants but also
to identify and test ideas for effective new behavioral interventions.
Stigma has been defined as a deeply discrediting attribute that
reduces a person to one who is in some way tainted and can therefore be
denigrated. It is a pervasive problem that affects health globally,
threatening an individual's psychological and physical well-being. It
prevents individuals from coming forward for diagnosis and impairs their
ability to access care or participate in research studies designed to
find solutions. Much attention has been paid to the plight of the
stigmatized, including those with AIDS or suspected to have AIDS, those
with leprosy, and those suffering from mental health disorders. But
stigma goes beyond these disorders to include some health conditions
that are no longer stigmatized in the developed world but continue to
have an impact in resource-poor countries.
Action has been slow in coming. Little is known about how pervasive
the problem of stigma is in the developing world and about how health
care systems can work to tackle its negative effects on individuals and
societies." from Stigma and Global Health: Developing a Research
Agenda
Additional articles can be found under the following sub-topics: